Calling All Advocates!

A MESSAGE FROM THE FOUNDATION OF PERIPHERAL NEUROPATHY TO ITS ADVOCATES FOR MORE RESEARCH FUNDING

On September 10, the Senate Appropriations Committee will begin marking up the fiscal year 2020 Defense Appropriations Act.  As a result, our peripheral neuropathy research request will likely be determined in the next few days, and for this reason we are asking you to contact your Senators TODAY if you have not done so in the past few weeks.

Earlier this year, we asked you to contact your Senators to request their support for including the designation of “peripheral neuropathy” among the disorders and conditions eligible for research funding under the Peer-Reviewed Medical Research Program (PRMRP).  Since a significant amount of time has passed since then, we thought it would be a good idea to check in with your Senators to remind them of this request, and urge them to contact the Senate Appropriations Committee to include this designation in the fiscal year 2020 Defense Appropriations Act.

What can you do?

Please write your Senator and urge him/her to contact the Senate Appropriations Committee.  Ask your Senator to include peripheral neuropathy among the disorders and conditions eligible for funding under the Peer-Reviewed Medical Research Program in the fiscal 2020 Defense Appropriations Act.

Here’s how you can do it

  • Find the contact for your Senator here.
  • Go to your Senators’ website pages/online contact forms
  • You will be asked to fill out a form with your name, address, and message.  Where the form asks for your message, copy in:

Please use the message below:

MESSAGE TO YOUR SENATORS

Date

Dear Senator,

Earlier this year, I contacted you regarding an important request related to the fiscal year 2020 Defense Appropriations Act.  Now that Congress has enacted the Bipartisan Budget Agreement, and work on the Defense Appropriations Act will resume in September, I am asking again that you contact the Senate Committee on Appropriations to support the inclusion in that measure of the designation of “peripheral neuropathy” among the disorders and conditions eligible for research funding under the Peer-Reviewed Medical Research Program (PRMRP).

Affecting more than 20 million Americans, peripheral neuropathy refers to the many conditions that involve damage to the peripheral nervous system. Peripheral neuropathy is common among the veterans community, particularly those diagnosed with diabetes, hepatitis C, and HIV and those exposed to Agent Orange.  ADD ANY PERSONAL INFORMATION HERE, HOW PERIPHERAL NEUROPATHY AFFECTS YOU.

  • If  you prefer, write a letter directly to your Senator using the wording above.
  • Let us know at [email protected] that you have sent a letter or contacted your Senator so we are able to advise our consultant to follow up in DC

The Foundation for Peripheral Neuropathy urges you to contact the Senate Appropriations Committee prior to September 9, 2019 and request that they include “peripheral neuropathy” among the eligible PRMRP conditions and have this language included in the fiscal year 2020 Defense Appropriations Act.

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