About Us
Here for those affected
The Foundation for Peripheral Neuropathy is a 100% philanthropically funded public charity foundation committed to improving the lives of those affected by peripheral neuropathy (PN). We are dedicated to furthering awareness, education, advocacy, and research to advance the discovery of new therapies and possible cures.

Our primary focus:
- Research: accelerating the advancement of new therapies and cures
- Advocacy: advocating for more research funding for PN
- Education: serving as the premiere resource of PN information for patients, their families and caregivers, and healthcare providers
- Awareness: raising awareness of PN

Awarded by GuideStar® 2024 Guidelines Certification
Financials & accomplishments
Meet our team
We foster collaboration among today’s most gifted and dedicated neuroscientists and physicians. These individuals help us determine which areas of research hold the most promise for effective PN therapies. It is our goal to use every means to improve the lives of those affected by this debilitating disorder.
 
				Ronald Lissak
Owner, RJ Consulting LLC
 
				Kristy Townsend, PhD
Vice President, Associate Professor Department of Neurosurgery The Ohio State University | Wexner Medical Center
 
				Adam Halper
Director of Strategy, Anthem, Inc.
 
				A. Gordon Smith, MD, FAAN
Professor and Chair of the Department of Neurology, Virginia Commonwealth University
 
				Lou Mazawey
Board Member
 
				Scott Hirsch
Chief Financial Officer, The Benida Group
 
				Van Salmans
Consultant, Salmans & Associates
 
				Amanda Peltier, MD, MS
Associate Professor at Vanderbilt University Medical Center
 
				Shanna Patterson, MD, MS
Site Chair of the Department of Neurology for Mount Sinai West and Mount Sinai Morningside Operations
 
				Jennie Starr
Market Insights and Brand Planning, Nestlé Health Science
 
				George Montague
Medical Technology Executive
 
				Jack Miller
                    Chairman Emeritus, the Foundation for Peripheral Neuropathy
President, Jack Miller Family Foundation                
 
				Nathan Staff, MD, PhD (Chair)
                    Consultant and Research Chair, Department of Neurology
 Professor of Neurology
 Mayo Clinic
 Rochester, MN                
 
				David Bennett, MB, PhD
                    Professor of Neurology and Neurobiology
 University of Oxford
 Division of Clinical Neurology
 United Kingdom                
 
				Eva Feldman, MD, PhD
                    Professor, Neurology
 Director, ALS Center of Excellence
 Director, NeuroNetwork for Emerging Therapies
 Michigan Medicine
 Ann Arbor, MI                
 
				Ahmet Höke, MD, PhD, FRCPC
                    Professor of Neurology and Neuroscience
 Director, Neuromuscular Division
 Johns Hopkins School of Medicine
 Baltimore, MD                
 
				Sandra Rieger, PhD
                    Associate Professor
 Department of Biology, Sylvester Comprehensive Cancer Center
 University of Miami
 Coral Gables, FL                
 
				Lindsay Colbert
Executive Director
 
				Jane Bartmann
Marketing and Communications Specialist
 
				Katie Britton
Director of Development and External Relations
 
				Melvin Craig
Senior Administrative Coordinator
 
				Amanda Homscheid
Program Manager
 
				Lauren Reidy
Associate Director of Development
Research partners
We partner with research institutions around the world. Our global reach supports more patients and scientists, expanding the peripheral neuropathy research network.
Our primary research program is our biobank. The Peripheral Neuropathy Research Registry (PNRR) collects samples through a network of neurological partner clinics to build this unique biobank. Our collection sites have been selected based on the patient populations they serve, their geographic location, and their willingness and ability to participate in the PNRR specimen and data collection. Having collection sites across the United States expands access for patients and increases enrollment. This fuels more research.
The IMAG±iNe study started in 2016 at two hospitals in the Netherlands: the University Medical Center Utrecht and Maastricht University Medical Center. With help from the Foundation for Peripheral Neuropathy, the study has now grown to include hospitals in other countries. The goal is to learn more about a rare nerve disease called IgM-associated peripheral neuropathy, which can happen with or without something called anti-MAG antibodies. All of this work will help scientists plan better treatments in the future.
We partner with The American Brain Foundation, in collaboration with the American Academy of Neurology, to fund Clinical Research Training Scholarships (CRTS) in Peripheral Neuropathy. This early career research funding gets more researchers to pursue neuropathy research. These awards will be reviewed by top experts in the field to promote research in peripheral neuropathy.
 
					Clinical Research Lead
Simone Thomas
(410) 614-4188
601 N. Caroline Street
5th Floor
Baltimore, MD 21287
 
					Principal Investigator
Dr. Christopher T. Doughty
5 Francis Street
Boston MA 02115
 
					Principal Investigators
Dr. Ingemar Merkies & Dr. Catharine Faber
P. Debyelaan 25
6229 HX Maastricht
Netherlands
Principal Investigator
Dr. Alexander Morrison
410 W. 10th Avenue
Columbus, OH 43210
 
					Principal Investigators
Dr. Perry van Doormaal & Dr. Nicolette Notermans
Heidelberglaan 100
3584 CX Utrecht
Netherlands
Principal Investigator
Eduardo Nobile Orazio
+39 02 82241
Via Alessandro Manzoni
56, 20089 Rozzano MI, Italy
 
					Research coordinator
David Simpson, MD
(212) 241-0784
Department of Neurology
1468 Madison Ave
Annenberg Bldg., Room 2-40
New York, NY 10024
 
					Research coordinator
Senda Ajroud-Driss, MD
(312) 695-7950
Peripheral Neuropathy Clinic
675 North St. Clair St., Suite 20-100
Chicago, IL 60611
 
					Research coordinator
Mazen Dimachkie, MD
(913) 945-9932
Department of Neurology
3901 Rainbow Blvd.
Kansas City, KS 66160
 
					Research coordinator
J. Rob Singleton, MD
(801) 585-9516
Department of Neurology
175 N Medical Dr #3335
Salt Lake City, UT 84132
 
					
Stefanie Geisler, MD
(314) 362-6981
Department of Neurology
660 S. Euclid Ave, Box 8111
St. Louis, MO 63110
 
					Research Coordinator
Amro Stino, MD
(734) 936-9010
Department of Neurology
1500 E. Medical Center Drive
1914 Taubman Center SPC 5316
Ann Arbor, MI 48109-5316
 
					Research Coordinator
Said Alhassan
(919) 966-0515
Neuroscience Clinical Trials Unit
170 Manning Drive
CB 7025
Chapel Hill, NC 27599
 
					Principal Investigator
Dr. Luis Querol
Unidad de Enfermedades Neuromusculares
Servicio de Neurología
Hospital Santa Creu i Sant Pau
Carrer del Mas Casanovas, 90
08041 – Barcelona
Spain
Phone: +34 935 53 78 01
 
					Principal Investigator
Andoni Echaniz Laguna
78 Rue du Général Leclerc
94270 Le Kremlin-Bicêtre
France
Phone: +33 1 45 21 21 21
 
					Principal Investigator
Dr. Stojan Peric
Pasterova 2
Beograd 11000
Serbia
Phone: +381 11 3609999
 
					Principal Investigator
Juliette Svahn
3 Quai des Célestins
69002 Lyon
France
Phone: +33 825 08 25 69
 
					Principal Investigator
Thomas Harbo
Palle Juul-Jensens Blvd 161
8200 Aarhus
Denmark
Phone: +45 70 11 31 31
 
					
David Bennett, MB PhD, FRCP
FMedSci Professor of Neurology and Neurobiology,
Head of the Division of Clinical Neurology,
Nuffield Department of Clinical Neurosciences,
The University of Oxford,
Honorary Consultant Neurologist Oxford University Hospitals,
Senior Research Fellow Green Templeton College.
Tel: 01865 231512
 
					
 
					
 
					
Corporate sponsors
Thank you to our valued corporate allies for their vital support in advancing research, awareness and education for those affected by PN. For more information about sponsorship opportunities, contact us.


 
					