About Us
Here for those affected
The Foundation for Peripheral Neuropathy is a 100% philanthropically funded public charity foundation committed to improving the lives of those affected by peripheral neuropathy (PN). We are dedicated to furthering awareness, education, advocacy, and research to advance the discovery of new therapies and possible cures.

Our primary focus:
- Research: accelerating the advancement of new therapies and cures
- Advocacy: advocating for more research funding for PN
- Education: serving as the premiere resource of PN information for patients, their families and caregivers, and healthcare providers
- Awareness: raising awareness of PN

Awarded by GuideStar® 2024 Guidelines Certification
Meet our team
We foster collaboration among today’s most gifted and dedicated neuroscientists and physicians. These individuals help us determine which areas of research hold the most promise for effective PN therapies. It is our goal to use every means to improve the lives of those affected by this debilitating disorder.

Ronald Lissak
President and General Manager, Positrigo Inc.

Kristy Townsend, PhD
Vice President, Associate Professor Department of Neurosurgery The Ohio State University | Wexner Medical Center

Jack Miller
Chairman Emeritus, the Foundation for Peripheral Neuropathy
President, Jack Miller Family Foundation

Adam Halper
Director of Strategy, Anthem, Inc.

A. Gordon Smith, MD, FAAN
Professor and Chair of the Department of Neurology, Virginia Commonwealth University

Lou Mazawey
Board Member

Scott Hirsch
Chief Financial Officer, The Benida Group

Van Salmans
Consultant, Salmans & Associates

Amanda Peltier, MD, MS

Shanna Patterson, MD, MS

Nathan Staff, MD, PhD (Chair)
Consultant and Research Chair, Department of Neurology
Professor of Neurology
Mayo Clinic
Rochester, MN

David Bennett, MB, PhD
Professor of Neurology and Neurobiology
University of Oxford
Division of Clinical Neurology
United Kingdom

Eva Feldman, MD, PhD
Professor, Neurology
Director, ALS Center of Excellence
Director, NeuroNetwork for Emerging Therapies
Michigan Medicine
Ann Arbor, MI

Ahmet Höke, MD, PhD, FRCPC
Professor of Neurology and Neuroscience
Director, Neuromuscular Division
Johns Hopkins School of Medicine
Baltimore, MD

Sandra Rieger, PhD
Associate Professor
Department of Biology, Sylvester Comprehensive Cancer Center
University of Miami
Coral Gables, FL

Lindsay Colbert
Executive Director

Jane Bartmann
Marketing and Communications Specialist

Katie Britton
Director of Development and External Relations

Susan Gibson
Program Manager

Tanya Zivin
Sr. Administrative Coordinator
Research partners
We are pleased to partner with research institutions around the world. Our global focus helps us grow our network and support more patients and scientists who benefit from our support.
Our primary research program, the Peripheral Neuropathy Research Registry (PNRR), is an established network of leading neurological consortium partner clinics who work with each other and FPN to build this unique biobank. Our collection sites have been selected based on the patient populations they serve, their geographic location, and their willingness and ability to participate in the PNRR specimen and data collection.

Research coordinator
Ahmet Höke, MD, PhD
(410) 614-4188
601 N. Caroline Street
5th Floor
Baltimore, MD 21287

Research coordinator
David Simpson, MD
(212) 241-0784
Department of Neurology
1468 Madison Ave
Annenberg Bldg., Room 2-40
New York, NY 10024

Research coordinator
Senda Ajroud-Driss, MD
(312) 695-7950
Peripheral Neuropathy Clinic
675 North St. Clair St., Suite 20-100
Chicago, IL 60611

Research coordinator
Mazen Dimachkie, MD
(913) 945-9932
Department of Neurology
3901 Rainbow Blvd.
Kansas City, KS 66160

Research coordinator
J. Rob Singleton, MD
(801) 585-9516
Department of Neurology
175 N Medical Dr #3335
Salt Lake City, UT 84132

Stefanie Geisler, MD
(314) 362-6981
Department of Neurology
660 S. Euclid Ave, Box 8111
St. Louis, MO 63110

Research Coordinator
Amro Stino, MD
(734) 936-9010
Department of Neurology
1500 E. Medical Center Drive
1914 Taubman Center SPC 5316
Ann Arbor, MI 48109-5316

Research Coordinator
Roy Freeman, MD
(617) 632-8454
Center for Autonomic and Peripheral Nerve Disorders
One Deaconess Road
Boston, MA 02215
*Past PNRR Partner – Not currently enrolling patients.

Principal Investigator
Dr. Luis Querol
Unidad de Enfermedades Neuromusculares
Servicio de Neurología
Hospital Santa Creu i Sant Pau
Carrer del Mas Casanovas, 90
08041 – Barcelona
Spain
Phone: +34 935 53 78 01

Principal Investigator
Andoni Echaniz Laguna
78 Rue du Général Leclerc
94270 Le Kremlin-Bicêtre
France
Phone: +33 1 45 21 21 21

Principal Investigator
Dr. Stojan Peric
Pasterova 2
Beograd 11000
Serbia
Phone: +381 11 3609999

Principal Investigator
Juliette Svahn
3 Quai des Célestins
69002 Lyon
France
Phone: +33 825 08 25 69

Principal Investigator
Thomas Harbo
Palle Juul-Jensens Blvd 161
8200 Aarhus
Denmark
Phone: +45 70 11 31 31
Principal investigator
Eduardo Nobile Orazio
Via Alessandro Manzoni
56
20089 Rozzano MI
Italy
Phone: +39 02 82241

David Bennett, MB PhD, FRCP
FMedSci Professor of Neurology and Neurobiology,
Head of the Division of Clinical Neurology,
Nuffield Department of Clinical Neurosciences,
The University of Oxford,
Honorary Consultant Neurologist Oxford University Hospitals,
Senior Research Fellow Green Templeton College.
Tel: 01865 231512
FPN is pleased to partner with The American Brain Foundation, in collaboration with the American Academy of Neurology, to fund Clinical Research Training Scholarships in Peripheral Neuropathy. These awards will be reviewed by top experts in the field in an effort to promote research in peripheral neuropathy.



Corporate sponsors
Thank you to our valued corporate allies for their vital support in advancing research, awareness and education for those affected by PN. For more information about sponsorship opportunities, contact us.
Marketing and Awareness Impact Sponsors
Ambassador Level Support ($20,000 – $24,999)


Champion Level Support ($5,000 – $19,999)

Research Impact Sponsors
Champion Level Support ($5,000 – $19,999)


Patient Education Webinar Sponsors


Corporate Support also provided by
