About Us

The Foundation for Peripheral Neuropathy is a 100% philanthropically funded public charity foundation committed to improving the lives of those affected by peripheral neuropathy (PN). We are dedicated to furthering awareness, education, advocacy, and research to advance the discovery of new therapies and possible cures.

Our primary focus:

  • Research: accelerating the advancement of new therapies and cures
  • Advocacy: advocating for more research funding for PN
  • Education: serving as the premiere resource of PN information for patients, their families and caregivers, and healthcare providers
  • Awareness: raising awareness of PN
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Ronald Lissak

President and General Manager, Positrigo Inc.

Kristy Townsend, PhD

Vice President, Associate Professor Department of Neurosurgery The Ohio State University | Wexner Medical Center

Jack Miller

Chairman Emeritus, the Foundation for Peripheral Neuropathy
President, Jack Miller Family Foundation

Adam Halper

Director of Strategy, Anthem, Inc.

A. Gordon Smith, MD, FAAN

Professor and Chair of the Department of Neurology, Virginia Commonwealth University

Lou Mazawey

Board Member

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Scott Hirsch

Chief Financial Officer, The Benida Group

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Van Salmans

Consultant, Salmans & Associates

Amanda Peltier, MD, MS

Shanna Patterson, MD, MS

Nathan Staff, MD, PhD (Chair)

Consultant and Research Chair, Department of Neurology
Professor of Neurology
Mayo Clinic
Rochester, MN

David Bennett, MB, PhD

Professor of Neurology and Neurobiology
University of Oxford
Division of Clinical Neurology
United Kingdom

Eva Feldman, MD, PhD

Professor, Neurology
Director, ALS Center of Excellence
Director, NeuroNetwork for Emerging Therapies
Michigan Medicine
Ann Arbor, MI

Ahmet Höke, MD, PhD, FRCPC

Professor of Neurology and Neuroscience
Director, Neuromuscular Division
Johns Hopkins School of Medicine
Baltimore, MD

Sandra Rieger, PhD

Associate Professor
Department of Biology, Sylvester Comprehensive Cancer Center
University of Miami
Coral Gables, FL

Lindsay Colbert

Executive Director

Jane Bartmann

Marketing and Communications Specialist

Katie Britton

Director of Development and External Relations

Susan Gibson

Program Manager

Tanya Zivin

Sr. Administrative Coordinator

We are pleased to partner with research institutions around the world. Our global focus helps us grow our network and support more patients and scientists who benefit from our support.

Our primary research program, the Peripheral Neuropathy Research Registry (PNRR), is an established network of leading neurological consortium partner clinics who work with each other and FPN to build this unique biobank. Our collection sites have been selected based on the patient populations they serve, their geographic location, and their willingness and ability to participate in the PNRR specimen and data collection.

John Hopkins Medicine logo.

Research coordinator

Ahmet Höke, MD, PhD

(410) 614-4188
601 N. Caroline Street
5th Floor
Baltimore, MD 21287

Icahn School of Medicine logo.

Research coordinator

David Simpson, MD

(212) 241-0784
Department of Neurology
1468 Madison Ave
Annenberg Bldg., Room 2-40
New York, NY 10024

Northwestern University logo.

Research coordinator

Senda Ajroud-Driss, MD

(312) 695-7950
Peripheral Neuropathy Clinic
675 North St. Clair St., Suite 20-100
Chicago, IL 60611

University of Kansas logo.

Research coordinator

Mazen Dimachkie, MD

(913) 945-9932
Department of Neurology
3901 Rainbow Blvd.
Kansas City, KS 66160

University of Utah logo.

Research coordinator

J. Rob Singleton, MD

(801) 585-9516
Department of Neurology
175 N Medical Dr #3335
Salt Lake City, UT 84132

Washington University logo.

Stefanie Geisler, MD

(314) 362-6981
Department of Neurology
660 S. Euclid Ave, Box 8111
St. Louis, MO 63110

Michigan University logo.

Research Coordinator

Amro Stino, MD

(734) 936-9010
Department of Neurology
1500 E. Medical Center Drive
1914 Taubman Center SPC 5316
Ann Arbor, MI 48109-5316

Beth Isreal Deaconess Medical Center logo.

Research Coordinator

Roy Freeman, MD

(617) 632-8454

Center for Autonomic and Peripheral Nerve Disorders
One Deaconess Road
Boston, MA 02215

*Past PNRR Partner – Not currently enrolling patients.

Sant PAu Campus Selut Barcelona logo.

Principal Investigator

Dr. Luis Querol

Unidad de Enfermedades Neuromusculares
Servicio de Neurología
Hospital Santa Creu i Sant Pau
Carrer del Mas Casanovas, 90
08041 – Barcelona
Spain
Phone: +34 935 53 78 01

Hopital Bicetre AP-HP logo.

Principal Investigator

Andoni Echaniz Laguna

78 Rue du Général Leclerc
94270 Le Kremlin-Bicêtre
France
Phone: +33 1 45 21 21 21

Clinical Center of Seribia logo.

Principal Investigator

Dr. Stojan Peric

Pasterova 2
Beograd 11000
Serbia
Phone: +381 11 3609999

HCL logo.

Principal Investigator

Juliette Svahn

3 Quai des Célestins
69002 Lyon
France
Phone: +33 825 08 25 69

AARHURS University logo.

Principal Investigator

Thomas Harbo

Palle Juul-Jensens Blvd 161
8200 Aarhus
Denmark
Phone: +45 70 11 31 31

Principal investigator

Eduardo Nobile Orazio

Via Alessandro Manzoni
56
20089 Rozzano MI
Italy
Phone: +39 02 82241

Oxford University logo.

David Bennett, MB PhD, FRCP

FMedSci Professor of Neurology and Neurobiology,
Head of the Division of Clinical Neurology,
Nuffield Department of Clinical Neurosciences,
The University of Oxford,
Honorary Consultant Neurologist Oxford University Hospitals,
Senior Research Fellow Green Templeton College.
Tel: 01865 231512

FPN is pleased to partner with The American Brain Foundation, in collaboration with the American Academy of Neurology, to fund Clinical Research Training Scholarships in Peripheral Neuropathy. These awards will be reviewed by top experts in the field in an effort to promote research in peripheral neuropathy.

American Academy of Neurology logo.

American Brain Foundation.

PNS logo.

Thank you to our valued corporate allies for their vital support in advancing research, awareness and education for those affected by PN. For more information about sponsorship opportunities, contact us.

Marketing and Awareness Impact Sponsors

Ambassador Level Support ($20,000 – $24,999)

Johnson and Johnson logo.
Lilly a Medicine company.

Champion Level Support ($5,000 – $19,999)

CSL Behring

Research Impact Sponsors

Champion Level Support ($5,000 – $19,999)

GSK logo.
Regenesis logo.

Patient Education Webinar Sponsors

Alnylam logo.
Anodyne Therapy logo.

Corporate Support also provided by

Livon logo.

Help improve the lives of those with PN. Your contribution helps us support research and provide an improved quality of life for those affected.