Events

Upcoming Events

Webinars

Understanding the Connection Between Polyneuropathy and hATTR Amyloidosis
Tuesday, October 26
2:30 – 3:30 p.m. Eastern Time
1:30 – 2:30 p.m. Central Time
12:30 – 1:30 p.m. Mountain Time
11:30 a.m. – 12:30 p.m. Pacific Time

Please click here to register.

Hereditary ATTR (hATTR) amyloidosis is a rare, genetic condition that affects an estimated 50,000 people worldwide. hATTR amyloidosis is caused by a gene change, or variant, that affects the function of a protein called transthyretin (TTR). In hATTR amyloidosis, the TTR gene change causes the protein to take on an abnormal shape and misfold. This change in shape causes the protein to build up in various parts of the body, including the nerves, heart, and digestive system.

As a hereditary disease, hATTR amyloidosis is passed down through family members. If one parent has hATTR amyloidosis, each child will have a 50% chance of inheriting the variant from that parent. However, inheriting the variant does not necessarily mean that they will develop hATTR amyloidosis.

Join us to hear from Alnylam Patient Education Liaison Karen, and Rick, a patient living with hATTR amyloidosis. Learn how to recognize the signs and symptoms of the disease, how it is passed down, and where to find additional educational resources.

You can also access educational resources and information about hATTR amyloidosis at www.hATTRbridge.com.

Content sponsored and provided by Alnylam Pharmaceuticals.
The Bridge is a registered trademark of Alnylam Pharmaceuticals, Inc. © 2021 Alnylam Pharmaceuticals, Inc. All rights reserved. NP-USA-00493

Webinar sponsor:

Biomedical Research 101
Wednesday, November 3
3 – 4 p.m. Eastern Time
2 – 3 p.m. Central Time
1 – 2 p.m. Mountain Time
12 – 1 p.m. Pacific Time

Please click here to register.

Patients and scientists alike recognize the importance of scientific research to increase the understanding of peripheral neuropathy, lead us to new treatments, and give us hope for the future. But do you understand fully the research process and where patients can play a part?

Please join us for our upcoming webinar, Biomedical Research 101, to learn the basics of biomedical research terminology, to understand the basics of the clinical research process, and how to find out about current peripheral neuropathy research. Kristy Townsend, PhD, will walk us through a toolbox on how to navigate the research landscape and become more “savvy consumers” of research information.

A Q&A session will follow the presentation.

Ongoing Events

For Support Group events, please visit our Support Group Page.