Peripheral Neuropathy Support Groups

Support groups bring together people who share a common health concern or interest. A support group usually focuses on a specific situation or condition, such as peripheral neuropathy. Support groups may be formed by a lay person with the condition or by someone interested in it, such as a family member, or a healthcare professional.

Some groups are educational and structured. For example, the group leader may invite a doctor, psychologist, nurse or social worker to talk about a topic relative to the group’s needs. Other support groups emphasize emotional support and shared experiences.

Start a neuropathy support group

If you are interested in starting a support group, we invite you to read and/or download the Foundation for Peripheral Neuropathy Support Group Leadership Manual. For more information please contact Nancy Frohman at (847) 808-4374 or [email protected]

Let the Foundation for Peripheral Neuropathy help you publicize your events and share information with patients. Download our guidelines for submitting news and events including deadlines and required information.

Find a neuropathy support group near you.

While not everyone wants or needs support beyond that offered by family and friends, you may find it helpful to turn to others outside your immediate circle for help with management of peripheral neuropathy. A support group can help you cope better and feel less isolated as you make connections with others facing similar challenges. A support group shouldn’t replace your standard medical care, but it can be a valuable resource to help you cope. Below you can search for a support group in your area.

If you do not see a support group near you and you are interested about starting a support group, please contact us at [email protected]

 The support group leaders are devoted volunteers who have dedicated their time and resources to support the PN community.  Many of our group leaders are willing to provide local resources in their area for people with peripheral neuropathy

Join a virtual support group

Virtual support groups are a good option if you do not want to travel, or if there isn’t a group in your area.

PERIPHERAL NEUROPATHY RESOURCES ONLINE SUPPORT GROUP

ADMINISTRATOR:    Cj Holliday – [email protected]
ADVISORY BOARD: Phil Clutts, Joe Korzelik, Barlow Humphries, Paul Sixta, Deanna Munzert, Jay Selman & Barbara Crawford
WEBSITE: peripheralneuropathyresources.com
PODCASTS: https://anchor.fm/deanna-munzert
JOINING A MEETING: This group meets by Zoom; by invitation (provide an email to Cj to receive a Zoom invitation)
MEETING DATES: Second Monday of each month
MEETING TIMES: Open discussion meeting at 4PM ET / 3PM CT/2PM MT/1PM PT
CONTACT:  [email protected]

PERIPHERAL NEUROPATHY SUCCESS STORIES!

Private Facebook group with a focus on sharing the successes of individuals living with peripheral neuropathy.

PERIPHERAL NEUROPATHY RESOURCES

Private Facebook peripheral neuropathy (PN) discussion group meeting every month for people with PN and/or their caregivers.

NEUROPATHY CARE SUPPORT GROUP

Private Facebook group committed to helping bring education and knowledge to each person with neuropathy, their families and care takers.

OUR NEUROPATHY FRIENDS

Private Facebook group for those who have peripheral neuropathy.

OUR NEUROPATHY FRIENDS SPOUSES

Private Facebook group for those whose spouse, parent, friend or other loved one has peripheral neuropath

Find your state below:

ALABAMA
Want to get one started? Contact [email protected].

ALASKA
Want to get one started? Contact [email protected].

ARIZONA
Want to get one started? Contact [email protected].

ARKANSAS
Want to get one started? Contact [email protected].

CALIFORNIA

Monterey and other California locations:
Bill Donovan
Email: [email protected]

Messages and announcements:
Name of group: Monterey, CA Neuropathy Support Group
Meeting place: via Zoom
Instructions: Email Bill Donovan requesting the meeting information and providing your name, mailing address, telephone number and email address. Instructions will be sent for connecting to the meeting via Zoom via computer/ tablet, smartphone or telephone.
Time: Third Wednesdays (10:30am – 11:30am PDT/12:30pm – 1:30pm CT, sign-in opens at 10:00am PDT/12:00pm CT). Please email Bill to confirm.

Note: Zoom meeting participation is not limited to the physical location in the name. Anyone from any city is welcome to attend, listen and/or share.

For other information on support groups in CA, please contact the Western Neuropathy Association (WNA) at [email protected].

COLORADO
Want to get one started? Contact [email protected].

CONNECTICUT

Darien
Brian McKay
Tel: 203-875-0846
Email: [email protected]

Messages and announcements:
Name of group: Fairfield County Neuropathy Nerve Pain Support Group
Meeting place: 551 Post Road, Suite 2b, Darien, CT
Time: 1st Saturday of the month at noon

Waterford
Linda J. McIntosh
Email: [email protected]
Phone: 860-460-6445—please leave a message and you will receive a return call with information

Messages and announcements:
No longer having meetings, but is available over the phone

 

DELAWARE
Want to get one started? Contact [email protected].

DISTRICT OF COLUMBIA (DC)

Pat Gualtieri
Email: [email protected]

Steve Klitzman
Email: [email protected]

Messages and announcements:

Name of group: Peripheral Neuropathy Support Group of Metro DC

Time: 1st Saturday of each month from 2:00 – 4:00 p.m. (no meeting in July)

Group currently meets virtually over Zoom, and welcomes members from Washington DC, Maryland, and Virginia, as well as outside the DC Metro area. For more information or to register for the meeting, contact the group at [email protected].

FORMER meeting place: Mason District Governmental Center
FORMER address: 6507 Columbia Pike, Annandale, VA 22003

FLORIDA

Jacksonville
Alan Berger, M.D.
Karen Perrin, RN
TEL: 904-244-9719
Email: [email protected]

Messages and announcements:
Name of group: Jacksonville PN Support Group
Meeting place: U.S. Health Jacksonville
Address: 580 W. 8th Street, Tower #2, 10th Floor, Jacksonville, FL 32209
Time: 2nd Saturday of every month from 10:00 to 11:30 a.m. (signs will be posted inside entrance with conference room location).

Tampa
Cindy Tofthagen, PHD, ARNP, AOCNP, FAANP, FAAN
TEL: 904-953-1409
Email: [email protected]

Messages and announcements:
Name of group: Peripheral Neuropathy Support Group
Location: virtual support group via Zoom conferencing, contact Cindy for phone-in or log-in instructions.
Group meets in-person periodically for social gatherings
Time: 1st Monday of every month at 1:00 to 2:00 p.m. ET

GEORGIA
Want to get one started? Contact [email protected].

 

IDAHO
Want to get one started? Contact [email protected].

ILLINOIS

Chicago
Rev. Angel K. Mason
Tel: 773-288-9341
Email: [email protected]

Messages and announcements:
Name of group: Chicago Chronic Pain Group
FORMER meeting place: Uptown Public Library
FORMER: Address: 929 W. Buena Ave., Chicago, IL 60613
Time: 2nd and 4th Saturday of every month from 10:00 a.m. to noon.

NOTE: Currently meets Saturdays 10:00 a.m. -12:00 p.m. CT via Zoom. For more information, contact Rev Angel Mason at [email protected] to find out exact Saturdays and to sign up.

INDIANA

Indianapolis
Meg L. Frazer, M.D.
Tel: 317-844-2903
Email: [email protected]

Messages and announcements:
Name of group: Central Indiana Neuropathy And Chronic Pain Support Group
FORMER meeting place: St. Luke’s United Methodist Church
FORMER Address: 100 West 86th Street, Indianapolis, IN 46260
Time: 3rd Monday of every month from 6:30 – 8:00 p.m. CT

NOTE: Currently group meets via Zoom the third Monday of each month 6:30 – 8:00 pm CT. For more information contact [email protected].

IOWA

Dubuque
Joe Korzelik
Email: [email protected]

Messages and announcements:
Name of group: Dubuque Peripheral Neuropathy Support Group
The group has discontinued meeting due to inadequate attendance and will meet if enough people are interested in getting together. Remaining members participate in the virtual support group detailed below.

KANSAS

Kansas City
Shirley J. Lynn
H: 913-299-9873
Email: [email protected]

Messages and announcements:
This group is no longer meeting, but Shirley is available by email or phone.

KENTUCKY
Want to get one started? Contact [email protected].

LOUISIANA
Want to get one started? Contact [email protected].

MAINE
Want to get one started? Contact [email protected].

MARYLAND

DC Area

Pat Gualtieri
Email: [email protected]

Steve Klitzman
Email: [email protected]

Messages and announcements:

Name of group: Peripheral Neuropathy Support Group of Metro DC

Time: 1st Saturday of each month from 2:00 – 4:00 p.m. (no meeting in July)

Group currently meets virtually over Zoom, and welcomes members from Washington DC, Maryland, and Virginia, as well as outside the DC Metro area. For more information or to register for the meeting, contact the group at [email protected].

FORMER meeting place: Mason District Governmental Center
FORMER address: 6507 Columbia Pike, Annandale, VA 22003

Montgomery County (Bethesda/Chevy Chase)

Monthly Zoom-based support group. 

First meeting will be held Thursday, November 17, 2021, at 7 p.m. (ET), and feature guest speaker Dr. Ahmet Hoke of Johns Hopkins. Topic: Peripheral Neuropathy: Diagnosis, Treatment and Education. To register, please go to: https://jhjhm.zoom.us/meeting/register/tJMvceuopjIvG91lXW-RDcEHaeJKWwEEG0GJ

For further information, please contact Group Leader, Steve Klitzman at [email protected], M: 202-277-9509, H: 301-312-6557. From 2010-21, Steve was the Group Leader of the only other public PN support group in the entire DMV area, the PN Support Group of Metro DC.

MASSACHUSETTS

Orleans
Kristina Meservey
TEL: 774-207-0153 or 860-912-3111
Email: [email protected]

Messages and announcements:
Name of group: Cape and Islands Neuropathy Support Group
Group presently suspended due to lack of meeting space. Kristina Meservey is available to suggest resources by phone.

Weston
Leslie MacGregor Levine (leader)
TEL: 781-786-6280
Email: [email protected]

Messages and announcements:
Name of group: Metrowest Boston Neuropathy Support Group
Old meeting place: Weston Community Center / Council on Aging
Address: 20 Alphabet Lane, Weston, MA 02493

Note: The group meets on the 3rd Thursday 1:00 -3:00 pm ET via Zoom September – June. Contact Leslie MacGregor Levine at [email protected].

MICHIGAN
Want to get one started? Contact [email protected].

MINNESOTA

Want to get one started? Contact [email protected].

Duluth
Scott Smith
TEL: 218-476-3277 home
612-267-3658 cell
Email: [email protected]

Hibbing/Iron Range
Scott Smith
TEL: 218-476-3277 home
612-267-3658 cell
Email: [email protected]

MISSOURI

North Kansas City

Shirley J. Lynn
H: 913-299-9873
Email: [email protected]

Messages and announcements:
This group is no longer meeting, but Shirley is available by email or phone.

MONTANA
Want to get one started? Contact [email protected].

NEBRASKA
Want to get one started? Contact [email protected].

NEVADA

Support group on Zoom: For information contact Nevada Neuropathy Support Group. Email Katherine Stenzel at [email protected].

Instructions: Email Katherine Stenzel requesting the meeting information and providing your name, mailing address, telephone number and email address. Instructions will be sent for connecting to the meeting via Zoom via computer/ tablet, smartphone or telephone.
Time: Please email Katherine to confirm.

Note: Zoom meeting participation is not limited to the physical location in the name. Anyone from any city is welcome to attend, listen and/or share.

Las Vegas:

Group is no longer meeting, but group leader still manages a Facebook page and information list.

Contact Barbara Montgomery at [email protected]

NEW HAMPSHIRE
Want to get one started? Contact [email protected].

NEW JERSEY

Englewood

Dean S. Lewis (Coordinator)
TEL: 516-448-0833 (Please send TEXT)
Email: [email protected]

Mary Robertson (Publicist)
TEL: 973-226-1535
Email: [email protected]

Messages and announcements:
Name of group: Northern NJ Peripheral Neuropathy Support Group
Meets 3rd Weds in Mar, April, May, Sept, Oct, and Nov. Virtual meetings currently. Contact Dean Lewis at [email protected] or Mary Robertson at [email protected]

Roseland
Mary Robertson (Leader)
TEL: 973-226-1535
Email: [email protected]

Messages and announcements:
Name of group: West Essex PN Support Group
Meeting place: Roseland United Methodist Church
Address: 144 Eagle Rock Avenue, Roseland, NJ 07068
Time: please contact Mary for upcoming meeting dates and times.

Fanwood
Fontaine Gatti
Email: [email protected]

Messages and announcements:
Name of group: Union County Support Group

NEW MEXICO
Want to get one started? Contact [email protected].

NEW YORK

Manhattan
Steven Smith
TEL: 914-310-0490
Email: [email protected]

Messages and announcements:
Name of group: The Manhattan PN Support Group
Meeting place: CBS Building
Address: 51 W. 52nd Street, New York, NY – ask doorman for conference room
Time: 3rd Thursday of every month from 6:00 to 8:00 p.m.

Great Neck
Joseph Malkevitch (Leader)
TEL: 516-746-3780
Email: [email protected]
Web page: http://york.cuny.edu/~malk/neuropathy.html

Messages and announcements:
Name of group: Long Island Neuropathy Support Group
Meeting place: North Shore University Hospital
Address: 145 Community Drive, Great Neck, NY 11021
Time: meets 4 times per year, Thursday at 6:15 – 8:15 p.m. (contact Joseph for exact dates)

Garden City (Long Island)
Lucia Jamaluddin, LMSW
TEL: 516-324-7708
Email: [email protected]

Message and announcements:
Name of group: Neuropathy Patient Support Group
FORMER meeting place: Winthrop Wellness Pavilion
FORMER ADDRESS: 1300 Franklin Ave., Suite ML-5, Garden City, NY 11501
TIME: Group meets monthly on the second Wednesdays at 1:00 – 2:00 p.m. ET parking is free. Please call to reserve your place and confirm meeting date and time.

NOTE: Group meets via Zoom the 2nd Weds of the month from 1:00 – 2:00 pm ET. For information email [email protected].

Niskayuna
Dorothy M. Zube
TEL: 518-399-1558
Email: [email protected]

Messages and announcements:
Name of group: Capital District Neuropathy Support Group
Meeting place: Glen Eddy Retirement Community
Address: One Glen Eddy Drive, Niskayuna, NY 12309
Time: 2nd Thurs of March, Jun, Sept and Dec at 1 p.m.

NORTH CAROLINA

Want to get one started? Contact [email protected].

NORTH DAKOTA
Want to get one started? Contact [email protected].

 

OHIO

Northeast Ohio
David Perk
Tel: 216-383-1111

Messages and announcements: serving all of Northeast Ohio including Cleveland, Akron, Macedonia
Name of group: Northeast Ohio PN Support Group
Meeting place: Good Shepherd Christian Church
Address: 9571 Shepard Road, Macedonia, OH 44056
Time: 2nd Tuesday of every month from 1:30 – 2:30 p.m.

OKLAHOMA
Want to get one started? Contact [email protected].

OREGON

Grants Pass – Medford
Note: At these locations, a Support Group is not available but our Local PN Resources have offered to answer questions from patients with peripheral neuropathy:

David Tally
TEL: 541-248-4418
Email: [email protected]

Carol Smith
TEL: 541-955-4995
Email: [email protected]

Portland
Bev Anderson
TEL: 877-622-6298
Email: [email protected]

Message and announcements:
Please contact Bev Anderson for more information.

Salem
Bev Anderson
TEL: 877-622-6298
Email: [email protected]

 

 

PENNSYLVANIA

Pittsburgh Area
Bill Wilshire
TEL: 724-515-7662
Email: [email protected]

Messages and announcements:
Name of group: Pittsburgh Area Neuropathy Support Group
FORMER Meeting place: Brushcreek Lutheran Church (downstairs)
FORMER Address: 177 Brushcreek Road, Irwin, PA 15642
Time: 3rd Wednesday of the month (April through October) from 6 to 8 p.m.

NOTE: Currently group Meets 3rd Weds April-October. Hybrid meetings: some via Zoom, thinking of starting in person. Contact Bill Wilshire at [email protected].

RHODE ISLAND
Want to get one started? Contact [email protected].

SOUTH CAROLINA
Want to get one started? Contact [email protected].

SOUTH DAKOTA
Want to get one started? Contact [email protected].

 

TENNESSEE
Want to get one started? Contact [email protected].

TEXAS

Austin – East
Marty Meraviglia
TEL: 512-970-5454

Messages and announcements:
Meeting place: Conely-Guerrero Senior Center, Education Room
Address: 808 Nile St., Austin, TX 78702
Time: Tuesdays, once per month. 9:30 to 11 a.m.

Houston
Katherine Stenzel
[email protected]

Message and announcements:
Name of group: Houston Neuropathy Support Group
Meeting Place: via Zoom
Time: 2nd Saturday of each month from 1 to 2:30pm CST
Send email to [email protected] for Zoom link.
Note: while group is located in Houston, anyone is welcome to attend the Zoom meetings.

Tai Chi Classes for Neuropathy in Central Texas
Southwest Austin
Thursday mornings 10 – 11 a.m.
Location TBD

Please contact Linda Gibson at [email protected] for more information and to register.

Northwest Hills
Jewish Community Center
7300 Hart Ln., Austin, TX 78731

Level 1 & 2: Tuesday and Friday mornings 9 AM -10 AM (Level 1 is from Jan-Mar and slides into Level 2 Apr-Jun; Level 1 starts over in Jul)
Level 3: Monday and Thursday mornings 9 AM -10 AM (Sun Style as well with a bump up to 73 forms with more skills being built)

To register and for class rates please contact Annie Skelton at [email protected].

Georgetown
If you are interested in joining a Tai Chi class in Georgetown, please email Norm Gill at [email protected].

VIRGINIA

DC Area:

Pat Gualtieri
Email: [email protected]

Steve Klitzman
Email: [email protected]

Messages and announcements:

Name of group: Peripheral Neuropathy Support Group of Metro DC

Time: 1st Saturday of each month from 2:00 – 4:00 p.m. (no meeting in July)

Group currently meets virtually over Zoom, and welcomes members from Washington DC, Maryland, and Virginia, as well as outside the DC Metro area. For more information or to register for the meeting, contact the group at [email protected].

FORMER meeting place: Mason District Governmental Center
FORMER address: 6507 Columbia Pike, Annandale, VA 22003

WASHINGTON

Shelton
Mary Ann Mijanovich
TEL: 360-480-9480
Email: [email protected]

Messages and announcements:
Name of group: Shelton Neuropathy Support Group
Meeting place: Shelton Library
Address: 710 West Alder Street, Shelton, WA
Time: 1st Thursday of every month from 10:00 – 11:30 a.m.

WEST VIRGINIA
Want to get one started? Contact [email protected].

WISCONSIN
Want to get one started? Contact [email protected].

WYOMING
Want to get one started? Contact [email protected].

 

Calgary (Alberta)
Linda Petiot
TEL: 403-668-9777
Email: [email protected]

Val Shaw Lewis
Founder & Past President
TEL: 403-271-1568
Email: [email protected]

Email: [email protected]
Website: calgaryneuropathy.com

Messages and announcements:
Name of group: Calgary Neuropathy Association
Time: Meets every other Tuesday. Discussion groups and presentation will start again in September 2021 after a summer hiatus. The group will meet virtually as well on in person. Check their website for times and speakers, www.calgaryneuropathy.com.

Ontario
Note: A Support Group is not available at this location, but our Local PN Resources have offered to answer questions from patients with peripheral neuropathy:

Glenn Rogers
Email: [email protected]

John Beak
Email: [email protected]

Messages and announcements:
Support group permanently suspended. Please email for more information.

 

Send this to a friend