Inside our biobank: FPN’s Peripheral Neuropathy Research Registry

This webinar focused on FPN’s Peripheral Neuropathy Research Registry (PNRR) biobank. The program featured Dr. Ahmet Höke, neurologist at Johns Hopkins and lead investigator of the study, along with Adam Halper, FPN board member, neuropathy patient, and PNRR participant. Dr. Höke explained what a biobank is, why the PNRR was created, and how patients played a key role in its impact. Adam gave a brief talk on the impact of the biobank from his perspective as a patient. The session also highlighted discoveries made through the biobank, current research projects, and how this work continued to bring hope for better treatments for peripheral neuropathy.