Neuropathy News Sept. 2025

10 marathons. 26.2 miles. 1 mission.
Please join us in celebrating PN patient and FPN friend Dieter’s incredible journey running Chicago 10 times!
Now with a new purpose: raising awareness and funds for peripheral neuropathy. Diagnosed with idiopathic polyneuropathy in 2024, Dieter continues to run strong, proving that resilience and advocacy go hand in hand.
Join Dieter in supporting FPN and help make a difference for those living with neuropathy.
Every step counts!

Raising $18K for FPN Day
October 15, 2007 is the day FPN was founded — a day when a bold mission began. Thanks to supporters like you, we help hundreds of thousands of patients around the world, fund important research, and give medical professionals the tools they need to best serve patients.
This upcoming FPN Day, on October 15, mark your calendar to celebrate our 18th anniversary by joining our community of changemakers and making a gift to help us reach our $18,000 goal!
Don’t want to wait? Donate today and write “FPN Day” on your online donation.

Advocacy Update
At the end of July, the Senate Appropriations Committee approved its version of the fiscal year 2026 Defense Appropriations Act.
Their version brings funding back up to $370 million and adds peripheral neuropathy back to the list of conditions that can be studied.
This is good news! But it is not final yet. The full Senate will vote on it in September.

New biobank research discovery
The FPN biobank, the Peripheral Neuropathy Research Registry, continues to supply important information for researchers to learn more about this disease.
The most recent research finding was on Neurofilament light chain (Nf-L), which are important parts of the structure that help keep big (myelinated) nerve fibers strong and stable. When these big nerve fibers die and break down, Nf-L gets released into the blood stream.
Researchers learned that those who had higher Nf-L levels had worse neuropathy and were more likely to have damage to their larger fiber nerves.

Diabetic Neuropathy Clinical Trial
Researchers are seeking adult participants older than 18 years old who have painful diabetic peripheral neuropathy. The aim of the study is to assess a diagnostic tool and to determine if Spinal Cord Stimulation will reduce pain in these patients. The study will last 18 months and there will be a total of 8 visits. Study participants will complete some tests, skin punch biopsies, blood draws and questionnaire.
Learn more about this clinical trial.
For more information contact: [email protected]