Peripheral Neuropathy Support Groups

Support groups bring together people who share a common health concern or interest. A support group usually focuses on a specific situation or condition, such as peripheral neuropathy. Support groups may be formed by a lay person with the condition or by someone interested in it, such as a family member, or a healthcare professional.

Some groups are educational and structured. For example, the group leader may invite a doctor, psychologist, nurse or social worker to talk about a topic relative to the group’s needs. Other support groups emphasize emotional support and shared experiences.

Start a neuropathy support group

If you are interested in starting a support group, we invite you to read and/or download the Foundation for Peripheral Neuropathy Support Group Leadership Manual. For more information please contact Lindsay Colbert at (847) 883-9942 or [email protected].

Let the Foundation for Peripheral Neuropathy help you publicize your events and share information with patients. Download our guidelines for submitting news and events including deadlines and required information.

Find a neuropathy support group near you.

While not everyone wants or needs support beyond that offered by family and friends, you may find it helpful to turn to others outside your immediate circle for help with management of peripheral neuropathy. A support group can help you cope better and feel less isolated as you make connections with others facing similar challenges. A support group shouldn’t replace your standard medical care, but it can be a valuable resource to help you cope. Below you can search for a support group in your area.

If you do not see a support group near you and you are interested about starting a support group, please contact us at [email protected].

The support group leaders are devoted volunteers who have dedicated their time and resources to support the PN community. Many of our group leaders are willing to provide local resources in their area for people with peripheral neuropathy.

Join a virtual support group

Virtual support groups are a good option if you do not want to travel, or if there isn’t a group in your area.

PERIPHERAL NEUROPATHY RESOURCES ONLINE SUPPORT GROUP
ADMINISTRATOR: Cj Holliday – [email protected]
ADVISORY BOARD: Phil Clutts, Barbara Crawford, Barlow Humphries, Joe Korzelik, Diane Mowitz,  Deanna Munzert, Jay Selman & Paul Sixta
WEBSITE: peripheralneuropathyresources.com
PODCASTS: https://anchor.fm/deanna-munzert
JOINING A MEETING: This group meets by Zoom; by invitation (provide an email to Cj to receive a Zoom invitation)
MEETING DATES: Second Monday of each month
MEETING TIMES: Open discussion meeting at 4PM ET / 3PM CT/2PM MT/1PM PT
CONTACT: [email protected]

PERIPHERAL NEUROPATHY SUCCESS STORIES!
Private Facebook group with a focus on sharing the successes of individuals living with peripheral neuropathy. Over 20,000 members worldwide.

PERIPHERAL NEUROPATHY RESOURCES
Private Facebook peripheral neuropathy (PN) discussion group meeting every month for people with PN and/or their caregivers.

NEUROPATHY CARE SUPPORT GROUP
Private Facebook group committed to helping bring education and knowledge to each person with neuropathy, their families and care takers.

OUR NEUROPATHY FRIENDS
Private Facebook group for those who have peripheral neuropathy.

OUR NEUROPATHY FRIENDS SPOUSES
Private Facebook group for those whose spouse, parent, friend or other loved one has peripheral neuropathy.

PERIPHERAL NEUROPATHY SUPPORT NETWORK
EXECUTIVE DIRECTOR: Pat Gualtieri – [email protected]
WEBSITE: pnsNetwork.org
FACEBOOK: Private group for questions, information sharing and resources. ON YOUR FEET

Find your state below:

ALABAMA
Want to get one started? Contact [email protected].

ALASKA
Want to get one started? Contact [email protected].

ARIZONA
Want to get one started? Contact [email protected].

ARKANSAS
Want to get one started? Contact [email protected].

CALIFORNIA

WESTERN NEUROPATHY ASSOCIATION
MEETING DATES AND TIMES:
2nd Saturday of each month at 11am Pacific, 1pm Central
3rd Wednesday of each month at 10am Pacific, noon Central
4th Saturday of each month at 11am Pacific, 1pm Central
(no meetings in December)
CONTACT: Katherine Stenzel ([email protected]) for Zoom link

Auburn
Sharlene McCord (530) 878-8392
Kathy Clemens (916) 580-9449, [email protected]

Name of Group: Western Neuropathy Association Auburn Support Group
Meeting Place: Woodside Village Mobile Home Park, 12155 Luther Road
Meeting Date and Time: First Monday of the month at 11am PT
(no meetings in the summer)

Santa Cruz area
Mary Ann Leer (831) 477-1239

Name of Group: Western Neuropathy Association Santa Cruz Support Group
Starting in-person meetings. Contact Mary Ann for more information.

COLORADO
Colorado Neuropathy Group: https://www.meetup.com/colorado-online-neuropathy-support-and-education/
Contact: Jenny Fraser via their meet up web site

CONNECTICUT

Darien
Brian McKay
Tel: 203-875-0846
Email: [email protected]

Messages and announcements:
Name of group: Fairfield County Neuropathy Nerve Pain Support Group
Meeting place: 551 Post Road, Suite 2b, Darien, CT
Time: 1st Saturday of the month at noon

Waterford
Linda J. McIntosh
Email: [email protected]
Phone: 860-460-6445—please leave a message and you will receive a return call with information

Messages and announcements:
No longer having meetings, but is available over the phone.

DELAWARE
Want to get one started? Contact [email protected].

DISTRICT OF COLUMBIA (DC)

Pat Gualtieri
Email: [email protected]

Messages and announcements:
Name of group: Peripheral Neuropathy Support Group of DC/VA
Time: 1st Saturday of each month from 2:00 – 4:00 p.m.
Group currently meets virtually over Zoom, and welcomes members from Washington DC, Maryland, and Virginia, as well as outside the DC Metro area. For more information or to be added to the mailing list, go to pnsNetwork.org and click on JOIN.

FLORIDA

Jacksonville
Alan Berger, MD
Karen Perrin, RN
TEL: 904-244-9719
Email: [email protected]

Messages and announcements:
Name of group: Jacksonville PN Support Group
Meeting place: U.S. Health Jacksonville
Address: 580 W. 8th Street, Tower #2, 10th Floor, Jacksonville, FL 32209
Time: 2nd Saturday of every month from 10:00 to 11:30 a.m. (signs will be posted inside entrance with conference room location).

Tampa
Cindy Tofthagen, PhD, ARNP, AOCNP, FAANP, FAAN
TEL: 904-953-1409
Email: [email protected]

Messages and announcements:
Name of group: Peripheral Neuropathy Support Group
Location: virtual support group via Zoom conferencing, contact Cindy for phone-in or log-in instructions.
Group meets in-person periodically for social gatherings
Time: 1st Monday of every month from 1:00 to 2:00 p.m. ET

GEORGIA
Want to get one started? Contact [email protected].

IDAHO
Want to get one started? Contact [email protected].

ILLINOIS

Chicago
Rev. Angel K. Mason
Tel: 773-288-9341
Email: [email protected]

Messages and announcements:
Name of group: Chicago Chronic Pain Group
FORMER meeting place: Uptown Public Library
FORMER: Address: 929 W. Buena Ave., Chicago, IL 60613

NOTE: Currently meets second and fourth Wednesday of each month from 6-8 p.m. CT via Zoom. For more information, contact Rev Angel Mason at [email protected] to sign up.

INDIANA

Indianapolis
Meg L. Frazer, M.D.
Tel: 317-844-2903
Email: [email protected]

Messages and announcements:
Name of group: Central Indiana Neuropathy And Chronic Pain Support Group
FORMER meeting place: St. Luke’s United Methodist Church
FORMER Address: 100 West 86th Street, Indianapolis, IN 46260
Time: 3rd Monday of every month from 6:30 – 8:00 p.m. CT

NOTE: Currently group meets via Zoom the third Monday of each month 6:30 – 8:00 pm CT. For more information contact [email protected].

IOWA

Dubuque
Joe Korzelik
Email: [email protected]

Messages and announcements:
Name of group: Dubuque Peripheral Neuropathy Support Group
The group has discontinued meeting due to inadequate attendance and will meet if enough people are interested in getting together. Remaining members participate in the virtual support group detailed below.

KANSAS
Want to get one started? Contact [email protected].

KENTUCKY
Want to get one started? Contact [email protected].

LOUISIANA
Want to get one started? Contact [email protected].

MAINE
Want to get one started? Contact [email protected].

MARYLAND

Montgomery County (Bethesda/Chevy Chase)
Steve Klitzman
Email: [email protected]

Messages and announcements:
Name of group: Bethesda/Chevy Chase PN Support Group
Time: Third Thursday of the month at 7:00 pm
Monthly Zoom-based support group.

For further information, please contact Group Leader, Steve Klitzman at [email protected]. M: 202-277-9509, H: 301-312-6557. From 2010-21, Steve was the Group Leader of the only other public PN support group in the entire DMV area, the PN Support Group of Metro DC.

Peripheral Neuropathy Support Group of Riderwood Retirement Village
Silver Spring, MD
Co-Chairpersons: James David and Almeda Girod
Contact: [email protected] or 301-273-9376
[email protected] or 301-288-4458

This group serves the residents of Riderwood Retirement Village in Silver Spring, MD. To join their group, please reach out to James David or Almeda Girod. The group meets the 4th Wednesday of every month at 3:30 pm in the Chesapeake Room in Montgomery Station, Riderwood Retirement Village.

MASSACHUSETTS

Orleans
Kristina Meservey
TEL: 774-207-0153 or 860-912-3111
Email: [email protected]

Messages and announcements:
Name of group: Cape and Islands Neuropathy Support Group
Group presently suspended due to lack of meeting space. Kristina Meservey is available to suggest resources by phone.

Weston
Leslie MacGregor Levine (leader)
TEL: 781-786-6280
Email: [email protected]

Messages and announcements:
Name of group: Metrowest Boston Neuropathy Support Group
Old meeting place: Weston Community Center / Council on Aging
Address: 20 Alphabet Lane, Weston, MA 02493

Note: The group meets on the 3rd Thursday 1:00 -3:00 pm ET via Zoom September – June. Contact Leslie MacGregor Levine at [email protected].

MICHIGAN
Want to get one started? Contact [email protected].

MINNESOTA

Duluth
Scott Smith
TEL: 218-476-3277 home
612-267-3658 cell
Email: [email protected]

Hibbing/Iron Range
Scott Smith
TEL: 218-476-3277 home
612-267-3658 cell
Email: [email protected]

MISSOURI
Want to get one started? Contact [email protected].

MONTANA
Want to get one started? Contact [email protected].

NEBRASKA
Want to get one started? Contact [email protected].

NEVADA

Las Vegas

Group is no longer meeting, but group leader still manages a Facebook page and information list.

Contact Barbara Montgomery at [email protected].

NEW HAMPSHIRE
Want to get one started? Contact [email protected].

NEW JERSEY

Englewood
Dean S. Lewis (Coordinator)
TEL: 516-448-0833 (Please send TEXT)
Email: [email protected]

Mary Robertson (Publicist)
TEL: 973-226-1535
Email: [email protected]

Messages and announcements:
Name of group: Northern NJ Peripheral Neuropathy Support Group
Meets 3rd Weds in Mar, April, May, Sept, Oct, and Nov. Virtual meetings currently. Contact Dean Lewis at [email protected] or Mary Robertson at [email protected]

Roseland
Mary Robertson (Leader)
TEL: 973-226-1535
Email: [email protected]

Messages and announcements:
Name of group: West Essex PN Support Group
Meeting place: Roseland United Methodist Church
Address: 144 Eagle Rock Avenue, Roseland, NJ 07068
Time: please contact Mary for upcoming meeting dates and times.

Fanwood
Fontaine Gatti
Email: [email protected]

Messages and announcements:
Name of group: Union County Support Group

NEW MEXICO
Want to get one started? Contact [email protected].

NEW YORK

Manhattan
Steven Smith
TEL: 914-310-0490
Email: [email protected]

Messages and announcements:
Name of group: The Manhattan PN Support Group
Meeting place: CBS Building
Address: 51 W. 52nd Street, New York, NY – ask doorman for conference room
Time: 3rd Thursday of every month from 6:00 to 8:00 p.m.

Great Neck
Joseph Malkevitch (Leader)
TEL: 516-746-3780
Email: [email protected]
Web page: http://york.cuny.edu/~malk/neuropathy.html

Messages and announcements:
Name of group: Long Island Neuropathy Support Group
Meeting place: North Shore University Hospital
Currently this support group is not active.

Garden City (Long Island)
Lucia Jamaluddin, LMSW
TEL: 516-324-7708
Email: [email protected]

Message and announcements:
Name of group: Neuropathy Patient Support Group
FORMER meeting place: Winthrop Wellness Pavilion
FORMER ADDRESS: 1300 Franklin Ave., Suite ML-5, Garden City, NY 11501
TIME: Group meets monthly on the second Wednesdays at 1:00 – 2:00 p.m. ET parking is free. Please call to reserve your place and confirm meeting date and time.

NOTE: Group meets via Zoom the 2nd Weds of the month from 1:00 – 2:00 pm ET. For information email [email protected].

Long Island
GROUP NAME: Chronic Pain Warriors of Long Island (Facebook Group)
www.facebook.com/groups/chronicpainwarriorsofLI

NORTH CAROLINA

Want to get one started? Contact [email protected].

NORTH DAKOTA
Want to get one started? Contact [email protected].

OHIO

Northeast Ohio
David Perk
Tel: 216-383-1111

Messages and announcements: serving all of Northeast Ohio including Cleveland, Akron, Macedonia
Name of group: Northeast Ohio PN Support Group
Meeting place: Good Shepherd Christian Church
Address: 9571 Shepard Road, Macedonia, OH 44056
Time: 2nd Tuesday of every month from 1:30 – 2:30 p.m.

OKLAHOMA
Want to get one started? Contact [email protected].

OREGON

Grants Pass – Medford
David Tally
TEL: 541-248-4418
Email: [email protected]

Name of Group: Western Neuropathy Association Grants Pass-Medford Support Group
Meeting Date: 3rd Thursday of the month at 3:30pm PT
Contact David Tally for meeting place information.

PENNSYLVANIA

Pittsburgh Area
Bill Wilshire
TEL: 724-515-7662
Email: [email protected]

Messages and announcements:
Name of group: Pittsburgh Area Neuropathy Support Group
FORMER Meeting place: Brushcreek Lutheran Church (downstairs)
FORMER Address: 177 Brushcreek Road, Irwin, PA 15642
Time: 3rd Wednesday of the month (April through October) from 6 to 8 p.m.

NOTE: Currently group Meets 3rd Weds April-October. Hybrid meetings: some via Zoom, thinking of starting in person. Contact Bill Wilshire at [email protected].

RHODE ISLAND
Want to get one started? Contact [email protected].

SOUTH CAROLINA
Want to get one started? Contact [email protected].

SOUTH DAKOTA
Want to get one started? Contact [email protected].

 

TENNESSEE
Want to get one started? Contact [email protected].

TEXAS

Houston
Katherine Stenzel
[email protected]

Name of Group: Western Neuropathy Association Houston Support Group
Meeting Place: Memorial Drive United Methodist Church, 12955 Memorial Drive
Room DS100, enter from the back (south) of the building
Meeting Date: Quarterly – 1st Saturday (March, June, September, December) at 1pm CT
Contact: Katherine Stenzel at [email protected]

Tai Chi Classes for Neuropathy in Central Texas
Southwest Austin
Thursday mornings 10 – 11 a.m.
Location TBD

Please contact Linda Gibson at [email protected] for more information and to register.

Northwest Hills
Jewish Community Center
7300 Hart Ln., Austin, TX 78731

Level 1 & 2: Tuesday and Friday mornings 9 AM -10 AM (Level 1 is from Jan-Mar and slides into Level 2 Apr-Jun; Level 1 starts over in Jul)
Level 3: Monday and Thursday mornings 9 AM -10 AM (Sun Style as well with a bump up to 73 forms with more skills being built)

To register and for class rates please contact Annie Skelton at [email protected].

Georgetown
If you are interested in joining a Tai Chi class in Georgetown, please email Norm Gill at [email protected].

VIRGINIA

DC Area
Pat Gualtieri
Email: [email protected]

Messages and announcements:
Name of group: Peripheral Neuropathy Support Group of DC/VA
Time: 1st Saturday of each month from 2:00 – 4:00 p.m.
Group currently meets virtually over Zoom, and welcomes members from Washington DC, Maryland, and Virginia, as well as outside the DC Metro area. For more information or to be added to the mailing list, go to pnsNetwork.org and click on JOIN.

WASHINGTON
Want to get one started? Contact [email protected].

WASHINGTON, DC

Pat Gualtieri
Email: [email protected]

Messages and announcements:
Name of group: Peripheral Neuropathy Support Group of DC/VA
Time: 1st Saturday of each month from 2:00 – 4:00 p.m.
Group currently meets virtually over Zoom, and welcomes members from Washington DC, Maryland, and Virginia, as well as outside the DC Metro area. “For more information or to be added to the mailing list, go to pnsNetwork.org and click on JOIN.

WEST VIRGINIA
Want to get one started? Contact [email protected].

WISCONSIN
Want to get one started? Contact [email protected].

WYOMING
Want to get one started? Contact [email protected].

Calgary (Alberta)

Linda Petiot
Tel: 403-668-9777 (leave a message)
Email: [email protected]
Website: CalgaryNeuropathy.com

Group Name: Calgary Neuropathy Association (CNA)
Meet Times: The CNA meet times and locations are best found on the website and dates and times may change due to guest speaker or facilitator needs.
All are welcome from anywhere as we meet via ZOOM, registration is required.

Ontario
Note: A Support Group is not available at this location, but our Local PN Resources have offered to answer questions from patients with peripheral neuropathy:

Glenn Rogers
Email: [email protected]

John Beak
Email: [email protected]

Messages and announcements:
Support group permanently suspended. Please email for more information.

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