July 2023
FPN had a successful meeting at the Peripheral Nerve Society in Copenhagen last month. Lindsay Colbert, Executive Director, met with countless existing and new experts in PN research and collaborated with other Patient Advocacy Groups in the field. More updates and research findings will be shared in our upcoming newsletters, so please keep opening our emails and mailings. In the interim, enjoy your summer and thank you for supporting FPN!
Meet Jane: Jell-O on the Beach
An avid hiker and outdoor enthusiast, Jane shares her most challenging climb – her journey to live with and thrive despite her peripheral neuropathy. Jane recently shared her story with FPN in order to help give hope to other patients.
Read more.
You can help researchers better understand CIDP/MMN: Survey Opportunity
FPN is excited to announce that our partners at Inspire are conducting a study to help researchers better understand the experiences of people living with CIDP or MMN. Take a brief survey and earn a $50 gift card.
New Research Funding Opportunities
The Department of Defense (DOD) Chronic Pain Management Research Program (CPMRP) has released several FY23 funding opportunities for researchers interested in studying pain. To learn more about the mechanism, program instructions and pre-application deadlines, click here.
FPN Webinar: CIDP
Join us on August 18, at Noon CST/1:00 pm EST/10:00 am PST, for an informative webinar on chronic inflammatory demyelinating neuropathy (CIDP) with Dr. Sami Khella of Penn Presbyterian Medical Center. Dr. Khella will discuss different ways a patient should manage the condition, from when a patient seeks diagnosis to possible treatment options. The program will also highlight how CIDP varies from other forms of neuropathies. There will be a Q & A with Dr. Khella following the presentation.
You can register for the webinar here.
PN & MS Have Some Similarities
Peripheral neuropathy (PN) and multiple sclerosis (MS) are neurological disorders that share several symptoms, including pain and paresthesias (abnormal sensations). Either condition can make it difficult to use your arms and hands or to walk.
Despite these similarities, PN and MS are completely distinct diseases with different causes and treatments.
What is a DAF?
A donor-advised fund, or DAF, is an investing account that allows you to contribute to it and receive immediate tax benefits but donate to charity over time. The purpose of a DAF is to allow philanthropic donors to boost the amount of money they give by growing their funds, as well as receiving tax breaks. Â
Opening a DAF account is simple. There are many investment management companies that sponsor DAF’s, such as Fidelity Charitable, Schwab Charitable, Charityvest, or your local community foundation. You can choose the company that is most convenient for you.Â
Learn more.
Gardening with Chronic Pain: A Guide
Gardening can have physical and mental benefits, but it can be difficult with chronic pain. You can build up a tolerance, but you have to work at it. Check out this NPR article filled with tips on gardening with chronic pain.