FPN Welcomes the University of North Carolina at Chapel Hill
The Foundation for Peripheral Neuropathy (FPN) is pleased to welcome the University of North Carolina at Chapel Hill as a new site for patient enrollments into the Peripheral Neuropathy Research Registry (PNRR). FPN is confident that this new partnership will be fruitful for the peripheral neuropathy research community.
The importance of the PNRR
Since its inception in 2008, the Peripheral Neuropathy Research Registry (the PNRR) has been a unique resource for the peripheral neuropathy research community. It is the only biobank with human samples of DNA, plasma and serum, from peripheral neuropathy patients. There are currently over 2,500 samples available for researchers and scientists to access for their studies.
This biobank is used to facilitate both clinical and basic research studies – with published papers sourced from its data and more projects underway.
FPN is excited to welcome the University of North Carolina at Chapel Hill as a new enrollment site for patients who are interested in participating in this research. They join the network of other partners, including Johns Hopkins University in Baltimore, Ichan School of Medicine at Mount Sinai Medical Center in New York City, Northwestern University in Chicago, Regents of the University of Michigan, the University of Kansas Medical Center Research Institute, the University of Utah, and Washington University School of Medicine in St. Louis. FPN’s collection sites have been selected based on the patient populations they serve, their geographic location, their willingness and ability to participate in the PNRR specimen and data collection and their interest in advancing PN research and related discoveries.
Want to participate in the PNRR?
Patients often ask how they can participate in the PNRR. Currently, patients who have neuropathy caused by diabetes or are idiopathic (unknown cause) can be considered for this research program. Additionally, patients who are able and willing to travel to one of the enrollment sites are encouraged to do so and get a thorough examination to verify the qualification needs. For more information, please review the patient research registry page on FPN’s website.
Interested in accessing bio samples for your research?
The data in the PNRR aims to help researchers access detailed genotypic and phenotypic history and neurological examination information about people with painful and non-painful peripheral neuropathies. Access is open to all researchers — membership in the enrollment consortium is not required. To learn more and apply for access to our biospecimens, please visit the research registry for researchers page on the FPN website.
FPN is thrilled to expand our collaborative efforts with a new partner dedicated to advancing in knowledge and treatment of PN. Please join us in welcoming the University of North Carolina at Chapel Hill to the FPN research team!
