Neuropathy News Oct. 2025
Celebrating Jack Miller, FPN’s founder on FPN Day
Tomorrow, FPN celebrates its 18th anniversary. In honor of our founding, we are proud to celebrate Jack Miller, the man who founded the Foundation for Peripheral Neuropathy.
In his previous patient story from 2011, Jack shared the complete history of why he started FPN and his own long journey with peripheral neuropathy. Now, 14 years later at the age of 96 and approaching FPN’s 18th anniversary tomorrow, he provides us with an update.
Hear from Jack Miller in honor of FPN Day.
Our goal this year is to raise $18,000 on our anniversary. Can’t wait to show your support? Put ‘FPN Day’ in the comment box when you donate now.
Webinar on October 22
Regain your balance: Therapy and exercise for neuropathy patients
Featuring Mark Fasick and Dr. LeeAnn Manoni from the NeuroBalance Center. Learn how the body’s balance system works and why it is important. Get some simple exercises that can help improve balance. Learn how doctors check for fall risk and treatment options for balance problems. Our focus is on patients living with peripheral neuropathy, but strong balance can help us all stay healthier at any age. Traditional and new methods will be discussed, including modern technology and an overview of leg brace options when extra support is needed.
New research partner: The Ohio State University
The Ohio State University (OSU) has joined the IMAGiNe Study as a new research site and partner of FPN. OSU will take part in this international study about anti-MAG peripheral neuropathy, a rare and often misunderstood nerve disease.
New Clinical Stage Study (STAND) for Idiopathic Small Fiber Neuropathy
A new clinical-stage study is evaluating an investigational medication for patients diagnosed with small fiber neuropathy.
To learn more about this first-in-human gene therapy clinical trial, click here.
Share your experience with CIDP: CIDP-Health Index Study (CIDP-HI)
Researchers at the University of Rochester are doing a study to learn how the symptoms of chronic inflammatory demyelinating polyneuropathy (CIDP) impact daily life. Individuals age 18 or older with CIDP are eligible to participate in a 30–60 minute audio-only Zoom interview with a research coordinator to talk about their symptoms.
Your answers are private and will help guide future research.
Interested? Contact Matt Rathbun at [email protected] or Jennifer Weinstein at [email protected].
