I’ve had peripheral neuropathy for about 10 years though I wasn’t officially diagnosed with idiopathic neuropathy until several years ago. My neurologist gave me neurontin, told me there’s no cure and “have a nice life”. Does that sound familiar? Too many of us have heard it.
I settled for taking the medication, eating better, doing low impact exercise every day (Tai Chi works for me), and waiting for a cure. Unfortunately, since that time, not much has changed in effective treatments and we don’t seem to be any closer to a cure.
Today, I’m pretty sure the cure isn’t coming during my lifetime. Our disease, though affecting 20,000,000 Americans with varying severity, is not really a killer. And, probably because it isn’t life-threatening, it doesn’t get the attention or funding that other diseases do that can affect a smaller portion of the population.
When I finally realized I couldn’t just wait for others to fund better treatments, and perhaps a cure, I searched for an organization to which I would give money. I picked this Foundation for several reasons:
- Jack Miller, the founder, has PN.
- The Foundation’s primary focus is research to find new and effective treatments, and eventually a cure.
- The Foundation is funding a patient research registry that will be used collaboratively by those doing the research it funds.
- Last but certainly not least, The Foundation is efficiently run by experienced professionals.
So, simply, what I’m saying is this: Without money research doesn’t happen and PN just isn’t getting the funding that you’d expect – or hope – given the number of people with the disease.
If those of us that have PN, or have a relative or friend with PN, don’t step up to help fund the research, there won’t be new treatments or a cure.
I am asking you to join us by giving what you can, plus a little more, to fund research for the treatment, and a cure, for PN. Your donation is an investment in better health for all of us.
Mr. Easley’s story is all too familiar but he knows that together we can make a difference. If you are interested in contacting him, please send him an email at [email protected].