E-Newsletter October 2018 final

October 2019

Austin Patient Conference

On September 14, in collaboration with the Neuropathy Alliance of Texas, FPN hosted a Patient Conference in Austin, Texas. The presentations centered around the topic of living well; namely how to maintain your independence at home and on the road, integrative approaches to thriving with chronic illness, exercising through all stages of PN, and an update on clinical trials for treatment for neuropathy.

If you were unable to attend this event and would like to watch the presentations, the recording can now be accessed by Premium Members through our online Media Center.

Thank you to our sponsors: Alnylam Pharmaceuticals Inc., PeriphEX Corp., and REGENESIS Inc.

Carfit: Safer Driving for Older Drivers

CarFit is an educational program that provides a quick 12-point check on how well you and your vehicle fit together. CarFit is designed to help improve a driver’s awareness of community resources for driving as well as promote conversations regarding safe driving behavior.

Learn more.

Stem Cell Study for CIDP

Chronic inflammatory demyelinating polyneuropathy (CIDP) is a disease believed to be caused by immune cells that attack the body instead of protecting it. As a result, the affected nerves fail to respond to stimuli and cause symptoms of numbness, tingling, pain and progressive muscle weakness.

Currently, a study at Northwestern University is looking at treating CIDP with a multifaceted approach, including a drug, a protein, and stem cells to stop the progression of CIDP. The purpose of the stem cell infusion is to evaluate whether this treatment will produce a normal immune system that will no longer attack the body.

Learn more about this study.

Donating Your Vehicle to Help PN Patients

Do you have an old car, truck, motorcycle, boat or other vehicle that you want to dispose of? How about donating it to help patients with peripheral neuropathy live better lives…

The Foundation for Peripheral Neuropathy is working with Donation Line, LLC, an administrative agent which works with nonprofits to facilitate vehicle donations. Donation Line LLC is rated A+ by the Better Business Bureau. You can find out more about Donation Line LLC and the vehicles they will accept at www.donationline.com.

You can donate your vehicle by going directly to this link.

Move or Modify: Home Choices for PN Patients

Mobility issues and changes in health often bring up big questions on home choices for patients with peripheral neuropathy. The Foundation for Peripheral Neuropathy got some good advice from two experts on the subject, John Glenn (Broker, Senior Real Estate Specialist) and Christina Beasley (Broker and Senior Care Expert).