Upcoming Webinars
An Underrecognized Cause of Polyneuropathy: hATTR Amyloidosis
Hereditary ATTR (hATTR) amyloidosis is a rare, genetic condition that affects an estimated 50,000 people worldwide. hATTR amyloidosis is caused by a gene change or variant, that affects the function of a protein called transthyretin (TTR). In hATTR amyloidosis, the TTR gene change causes the protein to take on an abnormal shape and misfold. This change in shape causes the protein to build up in various parts of the body, including the nerves, heart, and digestive system.
As a hereditary disease, hATTR amyloidosis is passed down through family members. If one parent has hATTR amyloidosis, each child will have a 50% chance of inheriting the variant from that parent. However, inheriting the variant does not necessarily mean that they will develop hATTR amyloidosis.
Thursday, October 17
1:00 – 2:15 pm Eastern Time
12:00 – 1:15 pm Central Time
11:00 am – 12:15 pm Mountain Time
10:00 – 11:15 am Pacific Time
Please click here to register.
Please feel free to share this invitation with anyone who may be interested in attending.
This event is sponsored by Alnylam Pharmaceuticals.
The Bridge is a trademark of Alnylam Pharmaceuticals, Inc.
© 2024 Alnylam Pharmaceuticals, Inc. All rights reserved. TTR-USA-00344-V2
Hereditary Neuropathy & Genetic Testing Featuring Dr. Florian Thomas
Wednesday, October 30, 11 am CT
The Foundation for Peripheral Neuropathy welcomes Florian Thomas, MD, MA, PhD, MSc, of Hackensack University Medical Center, for a one-hour program on hereditary neuropathies (including ATTR amyloidosis) and genetic testing. There will be a Q&A session following the presentation.
Webinar generously sponsored by Alnylam Pharmaceuticals.
Please click here to register.
If you have not already, please take the pre-webinar survey by October 20.
Navigating Sleep with PN
Friday, November 15, 2024, 2 pm CT
Please join us in welcoming guest speaker, Brandon R. Peters, M.D., FAASM, who will discuss the relationship between peripheral neuropathy, pain, and sleep. During this program, we will learn about some of the most commonly used medications that may aid pain and sleep. Additionally, Dr. Peters will touch on restless legs syndrome and periodic limb movements of sleep and how these conditions connect to both PN and sleep disruptions.
Dr. Peters is a double board-certified neurologist and sleep medicine specialist and fellow of the American Academy of Sleep Medicine who currently practices at Virginia Mason Franciscan Health in Seattle, WA. He is a leading voice in sleep medicine who works at the cutting edge of medicine and technology to advance the field.
CIDP featuring Vanessa Tiongson, MD and Bob Laskoff (CIDP Patient)
Wednesday, December 4, 2:30 pm CT
Webinar generously sponsored by Johnson&Johnson.
Details and registration information will be available soon.