Peripheral Neuropathy Support Groups

Support groups bring together people who share a common health concern or interest. A support group usually focuses on a specific situation or condition, such as peripheral neuropathy.  Support groups may be formed by a lay person with the condition or by someone interested in it, such as a family member, or a healthcare professional.

Some groups are educational and structured. For example, the group leader may invite a doctor, psychologist, nurse or social worker to talk about a topic relative to the group’s needs. Other support groups emphasize emotional support and shared experiences.

For Peripheral Neuropathy Support Group Leaders

If you are interested in starting a support group, we invite you to read and/or download  the Foundation for Peripheral Neuropathy Support Group Leadership Manual. For more information please contact Nancy Frohman at (847) 808-4374 or nancy@tffpn.org.

Let the Foundation for Peripheral Neuropathy help you publicize your events and share information with patients. Download our guidelines for submitting news and events including deadlines and required information.

Find a neuropathy support group near you.

While not everyone wants or needs support beyond that offered by family and friends, you may find it helpful to turn to others outside your immediate circle for help with management of peripheral neuropathy. A support group can help you cope better and feel less isolated as you make connections with others facing similar challenges. A support group shouldn’t replace your standard medical care, but it can be a valuable resource to help you cope. Below you can search for a support group in your area.

If you do not see a support group near you and you are interested about starting a support group, please contact us at info@tffpn.org. The support group leaders are devoted volunteers who have dedicated their time and resources to support the PN community.

Find your state below:

ALABAMA
Want to get one started? Contact info@tffpn.org.

ALASKA
Want to get one started? Contact info@tffpn.org.

ARIZONA
Want to get one started? Contact info@tffpn.org.

ARKANSAS
Want to get one started? Contact info@tffpn.org.

CALIFORNIA

Monterey and other California locations:
Bill Donovan
Email: wbdpad@gmail.com

Messages and announcements:
Name of group: Monterey, CA Neuropathy Support Group
Meeting place: via Zoom
Instructions: Email Bill Donovan requesting the meeting information and providing your name, mailing address, telephone number and email address. Instructions will be sent for connecting to the meeting via Zoom via computer/ tablet, smartphone or telephone.
Time: Third Wednesdays (10:30am – 11:30am PDT/12:30pm – 1:30pm CT, sign-in opens at 10:00am PDT/12:00pm CT). Please email Bill to confirm.

Note: Zoom meeting participation is not limited to the physical location in the name. Anyone from any city is welcome to attend, listen and/or share.

For other information on support groups in CA, please contact the Western Neuropathy Association (WNA) at info@pnhelp.org.

COLORADO
Want to get one started? Contact info@tffpn.org.

CONNECTICUT

Darien
Brian McKay
Tel: 203-875-0846
Email: beinfo@neuropathyct.com

Messages and announcements:
Name of group: Fairfield County Neuropathy Nerve Pain Support Group
Meeting place: 551 Post Road, Suite 2b, Darien, CT
Time: 1st Saturday of the month at noon

Waterford
Linda J. McIntosh
Email: lynmac47@aol.com
Phone: 860-460-6445—please leave a message and you will receive a return call with information

Messages and announcements:
No longer having meetings, but is available over the phone

DELAWARE
Want to get one started? Contact info@tffpn.org.

DISTRICT OF COLUMBIA (DC)

Pat Gualtieri
Email: leader@dcpnsupport.org

Steve Klitzman
Email: steve.klitzman@gmail.com

Messages and announcements:

Name of group: Peripheral Neuropathy Support Group of Metro DC

Time: 1st Saturday of each month from 2:00 – 4:00 p.m. (no meeting in July)

Group currently meets virtually over Zoom, and welcomes members from Washington DC, Maryland, and Virginia, as well as outside the DC Metro area.   For more information or to register for the meeting, contact the group at dcpn@gmail.com.

FORMER meeting place: Mason District Governmental Center
FORMER address: 6507 Columbia Pike, Annandale, VA 22003

FLORIDA

Jacksonville
Alan Berger, M.D.
Karen Perrin, RN
TEL: 904-244-9719
Email: karen.perrin@jax.ufl.edu

Messages and announcements:
Name of group: Jacksonville PN Support Group
Meeting place: U.S. Health Jacksonville
Address: 580 W. 8th Street, Tower #2, 10th Floor, Jacksonville, FL 32209
Time: 2nd Saturday of every month from 10:00 to 11:30 a.m. (signs will be posted inside entrance with conference room location).

Tampa
Cindy Tofthagen, PHD, ARNP, AOCNP, FAANP, FAAN
TEL: 904-953-1409
Email: Tofthagen.Cindy@mayo.edu

Messages and announcements:
Name of group: Peripheral Neuropathy Support Group
Location: virtual support group via Zoom conferencing, contact Cindy for phone-in or log-in instructions.
Group meets in-person periodically for social gatherings
Time: 1st Monday of every month at 1:00 to 2:00 p.m. ET

GEORGIA
Want to get one started? Contact info@tffpn.org.

IDAHO
Want to get one started? Contact info@tffpn.org.

ILLINOIS

Chicago
Rev. Angel K. Mason
Tel: 773-288-9341
Email: angel.mason@icloud.com

Messages and announcements:
Name of group: Chicago Chronic Pain Group
FORMER meeting place: Uptown Public Library
FORMER: Address: 929 W. Buena Ave., Chicago, IL 60613
Time: 2nd and 4th Saturday of every month from 10:00 a.m. to noon.

NOTE: Currently meets Saturdays 10:00-12:00 am CT via Zoom. For more information, contact Rev Angel Mason at angel.mason@icloud.com to find out exact Saturdays and to sign up.

INDIANA

Indianapolis
Meg L. Frazer, M.D.
Tel: 317-844-2903
Email: margaret.l.frazer@pfizer.com

Messages and announcements:
Name of group: Central Indiana Neuropathy And Chronic Pain Support Group
FORMER meeting place: St. Luke’s United Methodist Church
FORMER Address: 100 West 86th Street, Indianapolis, IN 46260
Time: 3rd Monday of every month from 6:30 – 8:00 p.m. CT

NOTE: Currently group meets via Zoom the third Monday of each month 6:30 – 8:00 pm CT. For more information contact Margaret.L.Frazer@pfizer.com.

IOWA

Dubuque
Joe Korzelik
Email: fooetoou2@gmail.com

Messages and announcements:
Name of group: Dubuque Peripheral Neuropathy Support Group
The group has discontinued meeting due to inadequate attendance and will meet if enough people are interested in getting together. Remaining members participate in the virtual support group detailed below.

KANSAS

Kansas City
Shirley J. Lynn
H: 913-299-9873
Email: denimladye@yahoo.com

Messages and announcements:
This group is no longer meeting, but Shirley is available by email or phone.

KENTUCKY
Want to get one started? Contact info@tffpn.org.

LOUISIANA
Want to get one started? Contact info@tffpn.org.

MAINE
Want to get one started? Contact info@tffpn.org.

MARYLAND

DC Area

Pat Gualtieri
Email: leader@dcpnsupport.org

Steve Klitzman
Email: steve.klitzman@gmail.com

Messages and announcements:

Name of group: Peripheral Neuropathy Support Group of Metro DC

Time: 1st Saturday of each month from 2:00 – 4:00 p.m. (no meeting in July)

Group currently meets virtually over Zoom, and welcomes members from Washington DC, Maryland, and Virginia, as well as outside the DC Metro area.   For more information or to register for the meeting, contact the group at dcpn@gmail.com.

FORMER meeting place: Mason District Governmental Center
FORMER address: 6507 Columbia Pike, Annandale, VA 22003

MASSACHUSETTS

Orleans
Kristina Meservey
TEL: 774-207-0153 or 860-912-3111
Email: tinameserveycpnp@aol.com

Messages and announcements:
Name of group: Cape and Islands Neuropathy Support Group
Group presently suspended due to lack of meeting space. Kristina Meservey is available to suggest resources by phone.

Weston
Leslie MacGregor Levine (leader)
TEL: 781-786-6280
Email: lcmacgr@gmail.com

Messages and announcements:
Name of group: Metrowest Boston Neuropathy Support Group
Old meeting place: Weston Community Center / Council on Aging
Address: 20 Alphabet Lane, Weston, MA 02493

Note: The group meets on the 3rd Thursday 1:00 -3:00 pm ET via Zoom September – June. Contact Leslie MacGregor Levine at lcmacgr@gmail.com.

MICHIGAN
Want to get one started? Contact info@tffpn.org.

MINNESOTA

Duluth
Scott Smith
TEL: 218-476-3277 home
612-267-3658 cell
Email: hookhanddad@gmail.com

Hibbing/Iron Range
Scott Smith
TEL: 218-476-3277 home
612-267-3658 cell
Email: hookhanddad@gmail.com

MISSOURI

North Kansas City

Shirley J. Lynn
H: 913-299-9873
Email: denimladye@yahoo.com

Messages and announcements:
This group is no longer meeting, but Shirley is available by email or phone.

MONTANA
Want to get one started? Contact info@tffpn.org.

NEBRASKA
Want to get one started? Contact info@tffpn.org.

NEVADA

Support group on Zoom: For information contact Nevada Neuropathy Support Group. Email Katherine Stenzel at klstenzel@hotmail.com.

Instructions: Email Katherine Stenzel requesting the meeting information and providing your name, mailing address, telephone number and email address. Instructions will be sent for connecting to the meeting via Zoom via computer/ tablet, smartphone or telephone.
Time: Please email Katherine to confirm.

Note: Zoom meeting participation is not limited to the physical location in the name. Anyone from any city is welcome to attend, listen and/or share.

Las Vegas:

Group is no longer meeting, but group leader still manages a Facebook page and information list.

Contact Barbara Montgomery at lvneuopathygroup@gmail.com

NEW HAMPSHIRE
Want to get one started? Contact info@tffpn.org.

NEW JERSEY

Englewood

Dean S. Lewis (Coordinator)
TEL: 516-448-0833 (Please send TEXT)
Email: deasnL4@yahoo.com

Mary Robertson (Publicist)
TEL: 973-226-1535
Email: ithacamom@gmail.com

Messages and announcements:
Name of group: Northern NJ Peripheral Neuropathy Support Group
Meets 3rd Weds in Mar, April, May, Sept, Oct, and Nov. Virtual meetings currently. Contact Dean Lewis at deasnL4@yahoo.com or Mary Robertson at ithacamom@me.com

Roseland
Mary Robertson (Leader)
TEL: 973-226-1535
Email: ithacamom@gmail.com

Messages and announcements:
Name of group: West Essex PN Support Group
Meeting place: Roseland United Methodist Church
Address: 144 Eagle Rock Avenue, Roseland, NJ 07068
Time: please contact Mary for upcoming meeting dates and times.

Fanwood
Fontaine Gatti
Email: fontainegatti@msn.com

Messages and announcements:
Name of group: Union County Support Group

NEW MEXICO
Want to get one started? Contact info@tffpn.org.

NEW YORK

Manhattan
Steven Smith
TEL: 914-310-0490
Email: stevenspuds@optonline.net

Messages and announcements:
Name of group: The Manhattan PN Support Group
Meeting place: CBS Building
Address: 51 W. 52nd Street, New York, NY – ask doorman for conference room
Time: 3rd Thursday of every month from 6:00 to 8:00 p.m.

Great Neck
Joseph Malkevitch (Leader)
TEL: 516-746-3780
Email: malkevitch@york.cuny.edu
Web page: http://york.cuny.edu/~malk/neuropathy.html

Messages and announcements:
Name of group: Long Island Neuropathy Support Group
Meeting place: North Shore University Hospital
Address: 145 Community Drive, Great Neck, NY 11021
Time: meets 4 times per year, Thursday at 6:15 – 8:15 p.m. (contact Joseph for exact dates)

Garden City (Long Island)
Lucia Jamaluddin, LMSW
TEL: 516-324-7708
Email: lucia.jamaluddin@nyulangone.org

Message and announcements:
Name of group: Neuropathy Patient Support Group
FORMER meeting place: Winthrop Wellness Pavilion
FORMER ADDRESS: 1300 Franklin Ave., Suite ML-5, Garden City, NY 11501
TIME: Group meets monthly on the second Wednesdays at 1:00 – 2:00 p.m. ET parking is free. Please call to reserve your place and confirm meeting date and time.

NOTE: Group meets via Zoom the 2nd Weds of the month from 1:00 – 2:00 pm ET. For information email Lucia.Jamaluddin@nyulangone.org.

Niskayuna
Dorothy M. Zube
TEL: 518-399-1558
Email: dorothy_zube@yahoo.com

Messages and announcements:
Name of group: Capital District Neuropathy Support Group
Meeting place: Glen Eddy Retirement Community
Address: One Glen Eddy Drive, Niskayuna, NY 12309
Time: 2nd Thurs of March, Jun, Sept and Dec at 1 p.m.

NORTH CAROLINA

Want to get one started? Contact info@tffpn.org.

NORTH DAKOTA
Want to get one started? Contact info@tffpn.org.

OHIO

Northeast Ohio
David Perk
Tel: 216-383-1111

Messages and announcements: serving all of Northeast Ohio including Cleveland, Akron, Macedonia
Name of group: Northeast Ohio PN Support Group
Meeting place: Good Shepherd Christian Church
Address: 9571 Shepard Road, Macedonia, OH 44056
Time: 2nd Tuesday of every month from 1:30 – 2:30 p.m.

OKLAHOMA
Want to get one started? Contact info@tffpn.org.

OREGON

Grants Pass – Medford
Note: At these locations, a Support Group is not available but our Local PN Resources have offered to answer questions from patients with peripheral neuropathy:

David Tally
TEL: 541-248-4418
Email: david@tallymediagroup.com

Carol Smith
TEL: 541-955-4995
Email: carolruthsmi95@gmail.com

Portland
Bev Anderson
TEL: 877-622-6298
Email: info@pnhelp.org

Message and announcements:
Please contact Bev Anderson for more information.

Salem
Bev Anderson
TEL: 877-622-6298
Email: info@pnhelp.org

Message and announcements:
Please contact Bev Anderson for more information.

PENNSYLVANIA

Pittsburgh Area
Bill Wilshire
TEL: 724-515-7662
Email: wilshireb@comcast.net

Messages and announcements:
Name of group: Pittsburgh Area Neuropathy Support Group
FORMER Meeting place: Brushcreek Lutheran Church (downstairs)
FORMER Address: 177 Brushcreek Road, Irwin, PA 15642
Time: 3rd Wednesday of the month (April through October) from 6 to 8 p.m.

NOTE: Currently group Meets 3rd Weds April-October. Hybrid meetings: some via Zoom, thinking of starting in person. Contact Bill Wilshire at wilshireb@comcast.net.

RHODE ISLAND
Want to get one started? Contact info@tffpn.org.

SOUTH CAROLINA
Want to get one started? Contact info@tffpn.org.

SOUTH DAKOTA
Want to get one started? Contact info@tffpn.org.

TENNESSEE
Want to get one started? Contact info@tffpn.org.

TEXAS

Austin – East
Marty Meraviglia
TEL: 512-970-5454

Messages and announcements:
Meeting place: Conely-Guerrero Senior Center, Education Room
Address: 808 Nile St., Austin, TX 78702
Time: Tuesdays, once per month. 9:30 to 11 a.m.

Houston
Katherine Stenzel
klstenzel@hotmail.com

Message and announcements:
Name of group: Houston Neuropathy Support Group
Meeting Place: via Zoom
Time: 2nd Saturday of each month from 1 to 2:30pm CST
Send email to klstenzel@hotmail.com for Zoom link.
Note: while group is located in Houston, anyone is welcome to attend the Zoom meetings.

Tai Chi Classes for Neuropathy in Central Texas
Southwest Austin
Thursday mornings 10 – 11 a.m.
Location TBD

Please contact Linda Gibson at movementimprovement@yahoo.com for more information and to register.

Northwest Hills
Jewish Community Center
7300 Hart Ln., Austin, TX 78731

Level 1 & 2: Tuesday and Friday mornings 9 AM -10 AM (Level 1 is from Jan-Mar and slides into Level 2 Apr-Jun; Level 1 starts over in Jul)
Level 3: Monday and Thursday mornings 9 AM -10 AM (Sun Style as well with a bump up to 73 forms with more skills being built)

To register and for class rates please contact Annie Skelton at annie.skelton@shalomaustin.org.

Georgetown
If you are interested in joining a Tai Chi class in Georgetown, please email Norm Gill at sjnwgill@aol.com.

VIRGINIA

DC Area:

Pat Gualtieri
Email: leader@dcpnsupport.org

Steve Klitzman
Email: steve.klitzman@gmail.com

Messages and announcements:

Name of group: Peripheral Neuropathy Support Group of Metro DC

Time: 1st Saturday of each month from 2:00 – 4:00 p.m. (no meeting in July)

Group currently meets virtually over Zoom, and welcomes members from Washington DC, Maryland, and Virginia, as well as outside the DC Metro area.   For more information or to register for the meeting, contact the group at dcpn@gmail.com.

FORMER meeting place: Mason District Governmental Center
FORMER address: 6507 Columbia Pike, Annandale, VA 22003

WASHINGTON

Shelton
Mary Ann Mijanovich
TEL: 360-480-9480
Email: maryann990@hotmail.com

Messages and announcements:
Name of group: Shelton Neuropathy Support Group
Meeting place: Shelton Library
Address: 710 West Alder Street, Shelton, WA
Time: 1st Thursday of every month from 10:00 – 11:30 a.m.

 

WEST VIRGINIA
Want to get one started? Contact info@tffpn.org.

WISCONSIN
Want to get one started? Contact info@tffpn.org.

WYOMING
Want to get one started? Contact info@tffpn.org.

Calgary (Alberta)
Linda Petiot
TEL: 403-668-9777
Email: linda@calgaryneuropathy.com

Val Shaw Lewis
Founder & Past President
TEL: 403-271-1568
Email: coccyn@telus.net

Email: info@calgaryneuropathy.com
Website: calgaryneuropathy.com

Messages and announcements:
Name of group: Calgary Neuropathy Association
Time: Meets every other Tuesday. Discussion groups and presentation will start again in September 2021 after a summer hiatus. The group will meet virtually as well on in person. Check their website for times and speakers, www.calgaryneuropathy.com.

Ontario
Note: A  Support Group is not available at this location, but our Local PN Resources have offered to answer questions from patients with peripheral neuropathy:

Glenn Rogers
Email: neuropathysupportgroupofcanada@hotmail.com

John Beak
Email: johnhbeak@gmail.com

Messages and announcements:
Support group permanently suspended. Please email for more information.

Facebook Support Groups

PERIPHERAL NEUROPATHY SUCCESS STORIES!
Private Facebook group with a focus on sharing the successes of individuals living with peripheral neuropathy.

PERIPHERAL NEUROPATHY RESOURCES
Private Facebook peripheral neuropathy (PN) discussion group meeting every month for people with PN and/or their caregivers.

NEUROPATHY CARE SUPPORT GROUP
Private Facebook group committed to helping bring education and knowledge to each person with neuropathy, their families and care takers.

ON YOUR FEET (DC PN SUPPORT GROUP)

OUR NEUROPATHY FRIENDS
Private Facebook group for those who have peripheral neuropathy.

OUR NEUROPATHY FRIENDS SPOUSES
Private Facebook group for those whose spouse, parent, friend or other loved one has peripheral neuropathy.

Online Zoom Support Group

GROUP NAME: Peripheral Neuropathy Resources Online Support Group

ADMINISTRATOR: Cj Holliday – contactingcj@gmail.com

WEBSITE: peripheralneuropathyresources.com

AND WE OFFER SHORT PODCASTS: https://anchor.fm/deanna-munzert

JOINING A MEETING: This group meets by Zoom; by invitation (provide an email to Cj to receive a Zoom invitation)

MEETING DATES: Second Monday of each month

MEETING TIMES: Open discussion meeting at 4PM ET / 3PM CT/2PM MT/1PM PT

ADVISORY BOARD: Phil Clutts, Joe Korzelik, Barlow Humphries, Paul Sixta, Deanna Munzert, Jay Selman & Barbara Crawford