eNews May 2025
Advocacy Day & the critical need for research dollars
Thanks to all our Peripheral Neuropathy Awareness Week contributors
From our live webinar participants who submitted great questions, to our social followers who shared content to educate on PN, and all those who talked to their community about their personal experience last week, thank you!
Increased awareness leads to more research, which leads to better treatments, and hopefully one day, cures. While we work year-round to increase awareness, your voices help amplify the call to eliminate PN once and for all—and with your continued support, we’re one step closer every day.
NIH call to action for PN research funding
Peripheral neuropathies pose a significant clinical challenge in the field of neurological disorders. In this letter to the editor, a request is made to centralize the coordination of PN-related funding at the National Institutes of Health (NIH). This would streamline collaboration among researchers, allowing for the exchange of knowledge, data, and resources across various PN disciplines.
A special mention to FPN Board Vice President Kristy Townsend and FPN MedSci Board Member Eva Feldman for authoring this letter, among other experts.
Why participate in clinical trials?
Upcoming FPN webinar
Please join us on Thursday, June 12 as we welcome Jennifer Gewandter, PhD, MPH from the University of Rochester. In this program sponsored by Lilly, patients will gain a basic understanding of different phases of clinical research. Participants will also learn about potential roles for people living with neuropathy in research and important things to consider before joining a clinical trial.
2024 Year in Review
Another year is in the books. We’re excited to share our 2024 impact with you, which included an increased focus on neuropathy research funding.
Advocacy & Grassroots
Every year, the U.S. Congress determines which conditions are eligible for governmental funding through the Department of Defense by listing them in the Senate version of the annual Defense Appropriations Act. Because conditions are not automatically renewed, advocacy is required annually to ensure members of Congress remain supportive of peripheral neuropathy.
Contact your representatives today by using this template to ensure PN is once again included as an eligible condition.
How Exercise Helps People with Neuromuscular Disorders Stay Strong and Mobile
“There is no neuromuscular disorder that cannot be improved with exercise,” says Laurence Kinsella, MD, FAAN, co-director for neurology at the SSM Neuroscience Institute in Fenton, MO.
In this article from Brain&Life, a patient with Charcot-Marie-Tooth (CMT) disease shares how her exercise routine has helped her day-to-day.
