The Foundation for Peripheral Neuropathy is a Public Charity committed to fostering collaboration among today’s most gifted and dedicated neuroscientists and physicians. These specialists from around the country will help us maintain a comprehensive view of the field and determine the research areas that hold the most promise in neuropathy research and treatment to develop new and effective therapies that can reverse, reduce and one day eliminate Peripheral Neuropathy. It is our ultimate goal to utilize every means and opportunity to dramatically improve the lives of those living with this painful and debilitating disorder.
Our mission is to dramatically improve the lives of people living with Peripheral Neuropathy.
- Serving as the premier resource of information for patients, their families and healthcare providers
- Accelerating a cure for peripheral neuropathies
- Funding collaborative efforts of leading scientists
- Raising awareness of peripheral neuropathy
Meet the team
Lou resides in Arlington VA, and has practiced law his entire career with Groom Law Group, Chartered in Washington DC. Groom is the largest employee benefit law specialty firm in the country and Lou has more than 40 years of experience with the firm, working on a wide variety of matters related to the tax aspects of employee benefits — including pension, 401k and health and insurance plans — for Fortune 200, tax-exempt, institutional and state and local governmental clients.
Lou grew up in Northern New Jersey and graduated from New York University before attending law school. He continues to be involved with NYU – including participation on the Steering Committee to establish a NYU-DC campus in Washington DC. Lou graduated from Georgetown University Law Center in Washington DC in 1974. He taught on the Adjunct Faculty there for five years in his field of practice and is an active alumnus.
In 2003, Lou was first affected with PN (of the relatively rare autoimmune variety associated with anti-MAG or “monoclonal gammothapy of undetermined significance”). He was fortunate to become a patient of Board Member, Dr. David Cornblath, who has helped Lou manage his illness for many years. Lou is currently funding a Research Fellowship focusing on PN patients with anti-MAG with a goal of developing more information on effective treatment strategies.
Chairman Emeritus, The Foundation for Peripheral Neuropathy
President, Jack Miller Family Foundation
Jack established the Foundation for Peripheral Neuropathy to support the funding of collaborative research with the goal of improved treatments and an eventual cure for Peripheral Neuropathy. A prominent Chicago entrepreneur and philanthropist, he was the founder and former President/CEO of Quill Corporation. In addition to being Chairman of the Foundation for Peripheral Neuropathy, his other endeavors include being co-chairman of Millbrook Real Estate and Chairman of the Jack Miller Center for Teaching America’s Founding Principles and History. He and his wife, Goldie, also support Jewish and community efforts through the Jack and Goldie Wolfe Miller Fund.
David R. Cornblath, MD
Professor of Neurology, The Johns Hopkins Hospital
Dr. David Cornblath received his medical degree from Case Western Reserve University. He completed his internship in medicine at University Hospitals in Cleveland, Ohio followed by a residency in neurology at the Hospital of the University of Pennsylvania. He then became Clinical Fellow of the Muscular Dystrophy Association in the Peripheral Nerve Morphology Laboratory also at the Hospital of the University of Pennsylvania. Now a Professor of Neurology at Johns Hopkins, Dr. Cornblath focuses on neuromuscular diseases with special emphasis on peripheral neuropathies. He has participated in a wide range of clinical studies – from Phase 1 to 4 – including Guillain-Barre syndrome, chronic inflammatory demyelinating polyneuropathy, ALS, neuromuscular diseases associated with HIV infection, diabetic neuropathy, neurotrophins in neuropathy and painful neuropathies. Dr. Cornblath is a member of the scientific board of the GBS Foundation International, and an officer of the Peripheral Nerve Society. He is also chair of one of the Hopkins Institutional Review Boards.
Adam is a strategy consultant at McKinsey & Company where he has advised clients in the healthcare, high tech and basic materials industries. Prior to joining McKinsey, Adam earned a JD from the University of Michigan Law School and an MBA from Oxford where he served as a portfolio manager for the business school’s venture fund.
Having developed peripheral neuropathy at the age of 28, Adam is intimately familiar with the challenges presented by the condition. He is deeply committed to improving the lives of PN patients around the world through better treatment options and greater awareness of current best practices in managing PN
Mr. Hirsch is the Chief Financial Officer of The Benida Group, responsible for accounting and tax functions for the real estate, investment and family office operations at The Benida Group. Previously, Mr. Hirsch held the position of Tax Manager at Miami Corporation and Deloitte & Touche LLP. Scott received his Bachelor of Science in Accountancy from the University of Illinois and holds CPA and CFP® certifications.
Alicia Schuyler Oberman
Director, Jack Miller Family Foundation
Alicia Schuyler Oberman serves as the Foundation Director of the Jack Miller Family Foundation (for which she is also a Board member) and its related philanthropic fund, the Jack and Goldie Wolfe Miller Fund. Prior to joining the staff of the foundation, Alicia worked as an attorney in the corporate and securities group of the Chicago-based law firm Neal, Gerber & Eisenberg LLP. While practicing, she represented various public and private companies and individuals in a wide variety of business transactions, including mergers and acquisitions, private equity investments, joint venture transactions, divestiture transactions and corporate restructurings. In addition, Alicia serves on various other non-profit boards.
Scientific Advisory Board
Ahmet Höke, MD, PhD, FRCPC
Professor of Neurology and Neuroscience
Director, Neuromuscular Division
Johns Hopkins School of Medicine
Deborah Lee, MD, PhD
Insys Therapeutics, Inc.
Richard Lewis, MD
Director, Electromyography Laboratory
Cedars-Sinai Medical Center
Department of Neurology
Los Angeles, CA
MD, Medical Director
Bristol Meyers Squibb
Meet the staff
Pam Shlemon – Executive Director
Pam has over 30 years of management, operational and strategic planning experience. As President and Executive Director, Ms. Shlemon plays a critical role in shaping the Foundation’s research strategy, as well as establishing a multidisplinary team of scientific experts who will assist the Foundation in achieving their mission. She advises on strategic and programmatic direction and spearheads the Foundation’s fundraising programs. Prior to joining the Foundation, Ms. Shlemon was the Regional Vice President for ChartOne, a national leader in technology solutions for the healthcare industry.
Marlene Dodinval – Sr. Program Coordinator
Marlene manages the Peripheral Neuropathy Research Registry, has oversight of the planning and implementation of our international research symposium, and coordinates the activities of our national support groups and many aspects of communication and engagement with our members and constituents. Prior to joining the Foundation Marlene was Regional Director for a national nonprofit membership and advocacy organization doing outreach and fundraising. Marlene also had a successful corporate career having worked for a large consulting company, and two small startups managing key business processes.
Angela Nevel – Sr. Administrative Assistant
Angela provides administrative support to the Foundation staff and Board members, handles educational and research programs for the Foundation, and performs general office tasks. Angela worked as an Executive Administrative Assistant for seven years before joining the Foundation. She holds a B.A. from National Louis University.