The Foundation for Peripheral Neuropathy is a public charity foundation committed to fostering collaboration among today’s most gifted and dedicated neuroscientists and physicians. These specialists from around the country will help us maintain a comprehensive view of the field and determine the research areas that hold the most promise in neuropathy research and treatment to develop new and effective therapies that can reverse, reduce and one day eliminate Peripheral Neuropathy. It is our ultimate goal to utilize every means and opportunity to dramatically improve the lives of those living with this painful and debilitating disorder.
Our mission is to dramatically improve the lives of people living with Peripheral Neuropathy.
Meet the team
Board of Directors
Lou resides in Arlington VA, and has practiced law his entire career with Groom Law Group, Chartered in Washington DC. Groom is the largest employee benefit law specialty firm in the country and Lou has more than 40 years of experience with the firm, working on a wide variety of matters related to the tax aspects of employee benefits — including pension, 401k and health and insurance plans — for Fortune 200, tax-exempt, institutional and state and local governmental clients.
Lou grew up in Northern New Jersey and graduated from New York University before attending law school. He continues to be involved with NYU – including participation on the Steering Committee to establish a NYU-DC campus in Washington DC. Lou graduated from Georgetown University Law Center in Washington DC in 1974. He taught on the Adjunct Faculty there for five years in his field of practice and is an active alumnus.
In 2003, Lou was first affected with PN (of the relatively rare autoimmune variety associated with anti-MAG or “monoclonal gammothapy of undetermined significance”). He was fortunate to become a patient of Board Member, Dr. David Cornblath, who has helped Lou manage his illness for many years. Lou is currently funding a Research Fellowship focusing on PN patients with anti-MAG with a goal of developing more information on effective treatment strategies.
Chairman Emeritus, The Foundation for Peripheral Neuropathy
President, Jack Miller Family Foundation
Jack established our charity foundation to support the funding of collaborative research with the goal of improved treatments and an eventual cure for Peripheral Neuropathy. A prominent Chicago entrepreneur and philanthropist, he was the founder and former President/CEO of Quill Corporation. In addition to being Chairman of the Foundation for Peripheral Neuropathy, his other endeavors include being co-chairman of Millbrook Real Estate and Chairman of the Jack Miller Center for Teaching America’s Founding Principles and History. He and his wife, Goldie, also support Jewish and community efforts through the Jack and Goldie Wolfe Miller Fund.
Adam is a strategy consultant at McKinsey & Company where he has advised clients in the healthcare, high tech and basic materials industries. Prior to joining McKinsey, Adam earned a JD from the University of Michigan Law School and an MBA from Oxford where he served as a portfolio manager for the business school’s venture fund.
Having developed peripheral neuropathy at the age of 28, Adam is intimately familiar with the challenges presented by the condition. He is deeply committed to improving the lives of PN patients around the world through better treatment options and greater awareness of current best practices in managing PN
Mr. Hirsch is the Chief Financial Officer of The Benida Group, responsible for accounting and tax functions for the real estate, investment and family office operations at The Benida Group. Previously, Mr. Hirsch held the position of Tax Manager at Miami Corporation and Deloitte & Touche LLP. Scott received his Bachelor of Science in Accountancy from the University of Illinois and holds CPA and CFP® certifications.
Alicia Schuyler Oberman
Director, Jack Miller Family Foundation
Alicia Schuyler Oberman serves as the Foundation Director of the Jack Miller Family Foundation (for which she is also a Board member) and its related philanthropic fund, the Jack and Goldie Wolfe Miller Fund. Prior to joining the staff of the foundation, Alicia worked as an attorney in the corporate and securities group of the Chicago-based law firm Neal, Gerber & Eisenberg LLP. While practicing, she represented various public and private companies and individuals in a wide variety of business transactions, including mergers and acquisitions, private equity investments, joint venture transactions, divestiture transactions and corporate restructurings. In addition, Alicia serves on various other non-profit boards.
Scientific Advisory Board
Ahmet Höke, MD, PhD, FRCPC
Professor of Neurology and Neuroscience
Director, Neuromuscular Division
Johns Hopkins School of Medicine
Deborah Lee, MD, PhD
Sr. Medical Director
Richard Lewis, MD
Director, Electromyography Laboratory
Cedars-Sinai Medical Center
Department of Neurology
Los Angeles, CA
Nathan Staff, MD, PhD
Associate Professor of Neurology
Department of Neurology
Meet the staff
Lindsay Colbert – Executive Director
Lindsay serves as the Executive Director for our charity foundation, focusing on raising awareness and support for individuals living with peripheral neuropathy. She is excited to turn the board’s enthusiasm into successful outcomes for the Foundation and its members.
Prior to Lindsay’s joining the team in April 2017, she gained a decade of experience in fund development, strategic planning, and marketing at Chicago-based non-profits, including Northwestern University and Rotary International. She holds a M.A. from the University of Wisconsin-Madison. In her free time, Lindsay enjoys traveling, cycling, and watching baseball.
Nancy S. Frohman – Director of Development and Marketing
Nancy Frohman serves as the Director of Development and Marketing for the Foundation. Starting her career in the financial and corporate sector, Nancy has focused her business and management skills to the nonprofit sector for more than a decade. With broad experience in foundation and grants management, philanthropic and corporate giving, and fund development, Nancy has worked for and with nonprofit organizations in education, healthcare, and other sectors, including managing a medical foundation based in Asia for nine years. Nancy also currently sits on several local and global nonprofit boards and advisory committees. Nancy is pleased to bring these skills and experiences to FPN, and looks forward to supporting the Foundation to further its mission of research and patient programming in peripheral neuropathy. Nancy has an MBA from the American Graduate School of International Management (Thunderbird) and a BA from Duke University.
Angela Nevel – Senior Administrative Assistant
Angela provides administrative support to the Foundation staff and Board members, handles educational and research programs for the Foundation, and performs general office tasks. Angela worked as an Executive Administrative Assistant for seven years before joining the Foundation. She holds a B.A. from National Louis University.