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April 2022

Advocacy Update: Call to Action

 

FPN is continuing its campaign to make funding available for research on peripheral neuropathy. We need your help… again!

 

FPN (and the scientific community) were pleased to see that over $8 million in grant funding was awarded to research focused on peripheral neuropathy under the Department of Defense’s (DoD) Peer Reviewed Medical Research Program (PRMRP) for 2021.

 

We were equally pleased to see the action taken by Congress to designate “peripheral neuropathy” as a condition eligible for research funding under the PRMRP again for 2022.

 

Learn more.

Ebike Tour Across the US

 

Did you hear about Gregory’s Maassen’s amazing journey across the U.S. by electric bicycle? To find out more about his journey, go to his website (www.ebiketour.org). Cheer him on, ride alongside him, or donate to support peripheral neuropathy

“Long COVID” and Peripheral Neuropathy

 

Some patients with “long COVID” have incident neuropathy, according to a study published in Neurology: Neuroimmunology & Neuroinflammation.


Dr. Anne Louise Oaklander, M.D., Ph.D., from Massachusetts General Hospital in Boston, and colleagues analyzed cross-sectional and longitudinal data from patients with World Health Organization-defined long COVID without a prior neuropathy history or risks who were referred for assessment of peripheral neuropathy. Seventeen patients were tracked for 1.4 years on average.


The researchers found that 59 percent of the participants had one or more test interpretations confirming neuropathy.


Read more.

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Save the Date: Peripheral Neuropathy Awareness Week:

May 1-7, 2022 

 

Check your emails before and during the week to learn how you can get involved.

Increased Physical Activity Reduces Risk of PN in T1 Diabetic

 

Adults with type 1 diabetes for 50 years or more are less likely to have neuropathy if they performed at least 150 minutes of physical activity weekly, according to study data.


Learn more.

 

And click here to read more about exercise on FPN’s website.

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Experts Unveil NS-RADS, a New MRI-powered System for Classifying Neuropathy

 

MRI images of peripheral nerve pathologies have helped experts develop a new reporting and data system for classifying neuropathy.


Read more.

FPN Patient Education Webinars

 

We kicked off our 2022 Patient Education webinars with two informative sessions in March:

 

Kristy Townsend, PhD, gave a crash course on how to vet sources of medical and scientific information. You can watch the recording here.

 

FPN held its first PN Patient Roundtable. Four people living with peripheral neuropathy shared how they manage and cope. You can watch the recording here.

 

Watch your emails for more webinars coming up this month and in the months to follow.

 

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The Foundation for Peripheral Neuropathy provides education and support today

as we walk toward a cure for tomorrow.


Support us in advancing a cure!


FPN is a non-profit organization that is solely funded by our readers.


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