eNews April 2025
Advocacy Day & the critical need for research dollars
On March 18, FPN staff and board members traveled to Washington, D.C. to speak up for the 30 million Americans who have peripheral neuropathy (PN). Our visit was urgent because earlier in March, the U.S. Congress passed a bill that cut funding for medical research by 57%. Read a recap of our first ever Advocacy Day.
Want to join us? Contact your state representative(s) today and ask that medical research funding be restored in the FY2026 budget. Without this funding, fighting diseases without cures, like neuropathy, will become more challenging. Your voice matters now more than ever!
If you are interested to learn more about our advocacy efforts and why they are so vital, check out our advocacy webpage.
Peripheral Neuropathy Awareness Week: May 4-10
Awareness week is about a month away, but you can get involved now:
During awareness week, and all year round, you can help raise awareness of neuropathy and the need for more research by sharing our content or giving us a follow
Sign up for our Awareness Week webinar, Myths vs Facts on May 8.
Are you a PN patient? Petition your municipality to honor PN awareness week with a proclamation. Use our template to contact your local government. Last year volunteers had success with proclamations in Orlando, FL and Huntington, NY. Be sure to send your success story to [email protected] if you secure a proclamation in your hometown. We’d love to be able to feature your story like we did Stacey’s.
PN Myths vs. Facts Webinar: Deepening Understanding & Raising Awareness
With so much information available about neuropathy—some factual, some misleading—it can be difficult to separate myth from reality. In this educational program, FPN board member Shanna Patterson, MD, MS, of Mount Sinai New York, will debunk common misconceptions about peripheral neuropathy, covering its causes, symptoms, treatments, and overall impact on health.
Join us during awareness week on May 8 for this informative webinar.
A hope inspired pain journey
New research suggests that immune cells, specifically macrophages, may play a protective role in preventing the Our good friend, Michael Wright, shares his journey of hope with us, including seven lessons that his long road with pain has taught him.
Healthy ways to overcome caregiver burnout
Caring for a loved one with a neurologic disease, such as peripheral neuropathy, can be tiring. “It demands patience, resilience, and often a healthy dose of self-restraint,” says one caregiver in this article recently published by Brain&Life.
Learn some tips and stats of what being a caregiver is all about.
