January 2024

Happy New Year! For many, this is a time to reflect on successes from the past year and set intentions for the year ahead. At the Foundation, it’s no different. Our leadership is working on strategic planning, so we can be a stronger organization moving forward.

No matter where you are in your PN journey, we want to help you live a better life, so we’ll continue to bring you the educational content you’ve come to expect. We remain dedicated to our mission which includes pushing for additional research funding to advance therapies and pursue cures for PN.

As always, our website is a valuable resource. Please check out some of the highlights from the past year below.

In case you missed it: check out some of our most popular content from 2023!

Top 3 webinars:
Idiopathic PN with Norman Latov
CIDP with Sami Khella
Hereditary PN & Genetic Testing

Most visited web content:
Patient Education
Living Well with PN
Exercise and Physical Therapy for PN

Long COVID: a personal story

COVID can cause PN. As detailed in this opinion piece, published in The New York Times by graphic designer Giorgia Lupi, the symptoms from long COVID, peripheral neuropathy among them, can wreak havoc on your life. 

“Long COVID is a physical affliction, but chronic illness, stretching over months and years, has a way of picking apart your mind and breaking your heart.”

Read Lupi’s story with long COVID.

FPN funds IMAGiNe Study for anti-MAG research

The IMAGiNe study is an international research collaborative focused on patients with anti-MAG peripheral neuropathy. The objectives of the study are to identify clinical and biological criteria to help the neurological community monitor and predict the progression of this rare form of peripheral neuropathy, and to identify effective treatments.

In 2023, FPN funded 66 new patient enrollments in this important study and collaborated with seven international research institutions to help advance new discoveries and knowledge.

Read more.

FPN webinar: a holistic approach to diabetic neuropathy

Please join us on Friday, January 26, at 12pm CT, as we welcome experts from the fields of neurology, integrative medicine, and physical therapy to discuss a holistic approach to diabetic peripheral neuropathy. A live Q&A will follow to conclude the program.

We encourage all PN patients, regardless of cause, to consider attending this program.

Link to webinar recording.

Low vitamin D linked to paclitaxel-induced peripheral neuropathy

From Medscape Medical News, patients with breast cancer who have low levels of vitamin D when they begin treatment with paclitaxel are more likely to develop peripheral neuropathy, suggesting that correcting levels before treatment might help prevent the condition.

Read more.