June 2023
As we near the mid-year point, we continue to push through to advance our mission.Â
A special thank you to everyone who helped make Peripheral Neuropathy Awareness Week a success! Please review our summary report of our awareness campaign and continue to help us share important information about this condition and our organization’s work.
New Research Project Underway
The Peripheral Neuropathy Research Registry (PNRR), our very own biobank of human DNA samples, remains a valuable resource to researchers. A new study being funded by FPN will focus on Neurofilament light chains (NfL) and its potential as a biomarker for disease progression of neuropathy.
Read more.
Clinical Research Training Scholarship in PN: Applications Now Open
FPN is pleased to partner with the American Academy of Neurology and the American Brain Foundation on an early career research grant entitled the Clinical Research Training Scholarship in Peripheral Neuropathy.
The goal of this funding mechanism is to support promising early career investigators who are likely to continue a strong career in peripheral neuropathy research. These grants are intended for any basic, translational, or clinical research project on peripheral neuropathy, to improve understanding of disease mechanisms, diagnosis, or treatments.
Applications are now open. Click here to view the RFA.
My Last Nerve: A Documentary
Compelled by his dad’s torturous disease, a brash kid from Boston commits his life to ending his father’s illness and finds hope in the most unlikely of places – in the depths of the Arctic Ocean.
The film is the story of research scientist Max Glanz and his journey to find a cure for his father’s neuropathy. The documentary debuted at The Atlanta Film Festival in April. Max is a scientist and researcher at the Center for Neurogenetics at the University of Florida College of Medicine. Â
For more information and to watch the trailer, click here.
Charitable Trusts: What You Need to Know
Like all trusts, a charitable trust is a legal entity that you create for the purpose of holding and managing assets. A charitable trust can specifically help manage charitable giving. It distributes its proceeds and assets to charity based on your instructions and can do so both during your lifetime and after your death. For this reason, charitable trusts are often a significant portion of estate planning.
Learn more about how you can set up a charitable trust, or more about other planned giving options with the Foundation. To contact us directly, please email [email protected] or call 847-883-9942.
“What Nerve!”
At the Foundation for Peripheral Neuropathy, we like to share with our constituents stories of hope from their peers who are living their best lives, despite the odds being stacked against them. One such constituent is Gloria, who at 98 years old, shares her experience falling down and wisdom on getting back up.
EPPIC-Net: Novaremed Painful Diabetic PN Trial
Do you have painful diabetic peripheral neuropathy? EPPIC-Net is looking for adults who have had PDPN for at least 6 months for a research study. With your help, a new investigational medication will be studied.
You will be asked to be a part of 8-9 separate in-clinic visits and answer questions about your health and response to the medication. You will receive up to $850 and study-related care and investigational medication at no cost.
Find out more about this study by calling or emailing EPPIC-Net at [email protected] or 917-574-0021.