Additional Resources

Agency for Healthcare Research and Quality
Website of the US Department of Health and Human Services. Articles on Neuropathy (and other health issues) can be searched in their online database.

American Chronic Pain Association (ACPA)
A non-profit organization with an international presence that provides information, education and a support group network to help people with chronic pain.

Beyond Celiac
Beyond Celiac advances widespread understanding of celiac disease as a serious genetic autoimmune condition and works to secure early diagnosis and effective management. We empower our community to live life to the fullest, and serve as a leading and trusted resource that inspires hope, accelerates innovation and forges pathways to a cure.

Charcot-Marie-Tooth Association (CMTA)
Founded in 1983, the Charcot-Marie-Tooth Association is a 501(C)(3) nonprofit organization with more than 15,000 patients and families, supportive friends, and medical professionals in its database. The CMTA’s mission is to generate the resources to find a cure, to create awareness, and to improve the quality of life for those affected by Charcot-Marie-Tooth. In 2008, the CMTA launched STAR, a Strategy to Accelerate Research focused on finding treatments and, ultimately, a cure for CMT. The CMTA’s vision is a world without CMT!

GBS|CIDP Foundation International
Our commitment is to support those touched by GBS | CIDP and variants so that every patient has access to an early and accurate diagnosis, proper treatment, and the opportunity for a full recovery.

Hereditary Neuropathy Foundation
The Hereditary Neuropathy Foundation is a 501(c)(3) non-profit organization which raises awareness, funds scientific research, and educates the medical community as well as the general public about Charcot-Marie Tooth disease (CMT), offering people with CMT, and their families, medical information and emotional support.

MEDLINEplus
The National Library of Medicine and the National Institutes of Health offer information on more than 600 diseases and conditions.  The web site includes a medical dictionary, a medical encyclopedia and information on prescription and nonprescription drugs.

National Diabetes Information Clearinghouse (NDIC) – Diabetic Neuropathy
NDIC provides comprehensive information on Diabetic Neuropathy

National Institute of Neurological Disorders and Stroke (NINDS)
NINDS website contains general information on peripheral neuropathy and links to additional resources.

National Center for Complementary and Alternative Medicine
NCCAM supports research on complementary and alternative medicine (CAM).  The web site includes information, resources and publications about CAM.

Neuropathy Action Foundation (NAF)
The Neuropathy Action Foundation (NAF), a 501(c)(3) non-profit, is dedicated to ensuring neuropathy patients obtain the necessary resources, information and tools to access individualized treatment to improve their quality of life. The NAF increases awareness among physicians, appropriate institutions, the general public and public policy officials that neuropathy can potentially be a serious, widespread and disabling condition, which may be treatable when appropriate medical care is provided.

Patient Advocate Foundation
Patient Advocate Foundation’s Patient Services provides patients with arbitration, mediation and negotiation to settle issues with access to care, medical debt, and job retention related to their illness.

PolyNeuro Exchange
This site is designed to share up-to-date and current information on symptoms, diagnosis, and treatment options for peripheral neuropathies. Video and audio presentations provide insights from recognized leaders in the field of inflammatory neuropathies and related sciences.  Newer content to the site includes:

  • “Subcutaneous Immunoglobulin in Multifocal Motor Neuropathy,” Hans Katzberg, MD (slides)
  • “Incidence of GBS and CIDP following influenza vaccination,” Peter Donofrio, MD (slides)
  • “Dosing schedules for IVIG:  The use of an algorithm as a suggestion for personalized dosing”, Dr. Michael Lunn, PhD (slides)
  • “Subcutaneous Immunoglobulin:  Feasibility and Safety in Neuromuscular Diseases, Zaeem Siddiqi, MD (poster)
  • “Subcutaneous Immunoglobulin in responders to Intravenous Immunoglobulins with Chronic Inflammatory Demyelinating Polyradiculoneuropathy,” Nabil Moumane, MD (poster)

Restless Legs Syndrome Foundation
Information about restless legs syndrome – a common disorder associated with uncomfortable sensations in the legs (often described as crawling, tingling, creeping, pulling or painful) and an overwhelming urge to move the legs that often interferes with sleep.

U.S. Department of Veterans Affairs
The VA presumes Veterans’ early-onset peripheral neuropathy is related to their exposure to Agent Orange or other herbicides during service when the disease appears within one year of exposure to a degree of at least 10 percent disabling by VA’s rating regulations.  Visit their website for information about qualifying for benefits.