Donn Seidholz is a great storyteller – and he has great stories to tell. Donn shared stories about his time as a minor league baseball player, about his life-long devotion to athletics and fitness, his quest for answers about his peripheral neuropathy, and most, recently, his bout with COVID-19. We share some of Donn’s stories …
The Foundation for Peripheral Neuropathy congratulates the 13 athletes, including our own Lindsay Colbert, who participated in the Hoka One One Run the L Challenge. The participants completed the challenge by walking, running, biking or wheeling 131 miles in their own towns in this virtual race. The 131 miles of the Run the L Challenge …
On September 9 2020, the Foundation for Peripheral Neuropathy (FPN) published the story of Mike McDonough. Mike set a goal for himself to ride 341 miles from Kaysville to St. George, Utah, to raise money and awareness for peripheral neuropathy. The money raised would go to purchasing eBikes for donation, with the remainder of the …
Mike McDonough’s Story: Pedal Through the Pain Update! Read More »
To Every Neuropathy Warrior Out There, I noticed the beginning of my neuropathy about 15 years ago. Burning in my feet was so bad I would stand in the snow when possible. Of course, that was only 3-4 months out of the year. Eventually, the heat turned to freezing cold. I couldn’t do anything to …
Ron Lissak, FPN Board member, was interviewed by Brain & Life magazine for their most recent issue (June/July 2020) on his experience with COVID-19 and peripheral neuropathy. Here is the article as it appeared in Brain & Life June/July, 2020 About 11 years ago, I was diagnosed with peripheral neuropathy. As a result, I have …
COVID-19 Worsened Ron Lissak’s Neuropathy, but Strengthened his Family Read More »
For over 13 years, I have had nine neurologists evaluate and retake my medical history. Whenever diagnosis is elusive, having a medical history retaken by different doctors is not a bad idea. After all, a fresh set of eyes may uncover important information (1). Over those 13 years, I have had four different diagnoses, so …
by William Schwalbe Register for our upcoming webinar with Will on May 17! More than three years ago, I came down with a mysterious illness I thought might be a flu, but turned out to be something entirely different. My blizzard of symptoms began innocuously in November 2016 with terribly cold feet. So cold that …
Michael Wright, founder of the Facebook group, Peripheral Neuropathy Success Stories! shares his PN journey with us: PERIPHERAL NEUROPATHY SUCCESS STORIES! is the Facebook support group that I started on a whim. See, I had been in several other support groups for PN, and they all made me feel worse. I would read about what …
Faces of PN: Peripheral Neuropathy Success Stories! FB Group Founder Read More »
Edward from the UK shares his PN journey with us: The train is here, and I’m already late for my first internship. Better sprint the short 50 m distance between my front door and the train station – as I am quickly becoming a master at. It’s been raining, in typical British fashion. August monsoon …
Faces of PN: Living with Multifocal Motor Neuropathy Read More »
Susan from Oregon shares her PN story with us: Dear Friends and FPN Family, I first became acquainted with neuropathy when my late husband was diagnosed about 10 years ago. Much to my regret, I never took the time to learn about this progressive disease. Quite possibly I might have recognized my own symptoms of …
