At the Foundation for Peripheral Neuropathy (FPN), we like to share with our constituents stories of hope from their peers who are living their best lives, despite the odds being stacked against them. Meet Gil – scientist, writer, avid outdoorsman and FPN supporter – who is another example. This is Gil’s neuropathy journey. We sat down with Gil to learn […]
I’m writing this essay for a couple of reasons: as a way to bring more awareness to small fiber neuropathy (SFN) and explain its toll on me personally. The symptoms of small fiber neuropathy vary greatly person to person. But for me, it is chronic pain. I’ve been in pain ever since I can remember. […]
Read More… from Dana’s Story: My Personal Journey with Small Fiber Neuropathy
Small Fiber Neuropathy brings two women together in friendship and for a cause Rosy George and Jen Roland were strangers living hundreds of miles apart. Soon after her life-changing diagnosis, Rosy of New York reached out to the Foundation for Peripheral Neuropathy looking for support. She was given Jen’s contact information, a young mom from Maryland who was also struggling […]
Read More… from Jen and Rosy’s Story: Two Moms Unite Over Small Fiber Neuropathy
D.C. – San Francisco Fundraiser Supports 30-Million Neuropathy Sufferers and Kicks Off Peripheral Neuropathy Awareness Week May 1-8, 2022 For the first time, a cyclist is riding an electric bicycle (e-bike) cross country over 3,400 miles of Lincoln Highway in a journey that started April 2 in his hometown of Washington, D.C., and will finish in San Francisco on August 1, 2022. […]
Read More… from E-Biking Across the U.S. to Raise Awareness for Peripheral Neuropathy
“Optimism is the faith that leads to achievement; nothing can be done without hope.” —Helen Keller The Diagnosis I was diagnosed with idiopathic peripheral neuropathy in August 2021. Two years prior to a diagnosis, I kept feeling that my socks were bunching up in my feet. I started buying new sneakers and socks. But the feeling […]
Chuck is a husband, father, grandfather, outdoorsman – and a PN patient who strongly supports the Foundation for Peripheral Neuropathy (FPN) and advocates for his own health and that of others. We chatted with Chuck about his recent adventures and his tips for others who want to follow his example of exploring the national parks. What is your connection to peripheral […]
Vicki’s Journey to Fulfillment: My name is Vicki, and I have bilateral progressive peripheral neuropathy. I have had this condition for over 15 years, and I am ok with it! In the Beginning My journey started in my mid 40s when I noticed numbness in my right calf. It was not something that I really […]
This is Terry’s story. On Friday the 13th of March 2020, when the world stopped for COVID-19, I finally got an answer from my neurologist about the burning pain in my feet and, sometimes, hands. I had a “nickel’s worth of neuropathy” he stated. I remember thinking, “Oh my goodness, if this is only a nickel’s […]
Read More… from Terry’s Story: Local Support Group Offers Help
When Jen set out to raise awareness for PN, she did more than she expected. Her outreach helped others and brought people together. Jen shares her story here. Jen’s Story I never thought neuropathy would be part of my story. Prior to my diagnosis, I was a healthy 39-year-old writer, health coach, and personal trainer. […]
Read More… from Jen’s Story: Raising Awareness for PN Brings People Together
My PN Story My journey with PN began in 2019 with the onset of burning pain in my toes and fingers that quickly spread up my legs and arms. Within a few weeks I couldn’t walk without assistance. Even the slightest touch felt as if I were being shocked. My health declined rapidly. I no […]