News Archives - The Foundation For Peripheral Neuropathy

PERIPHERAL NEUROPATHY RESEARCHERS INVITED TO PRE-APPLY FOR RESEARCH GRANTS FROM DoD PEER REVIEWED MEDICAL RESEARCH PROGRAM

Leave a Comment / Advocacy, News, Research, Research Studies, webinar / By Jennifer Riskind

The Foundation for Peripheral Neuropathy and the Department of Defense Peer-Reviewed Medical Research Program Co-Host March 8 Webinar About Award Pre-Applications CHICAGO, Feb. 28, 2023 /PRNewswire/ — For the third consecutive year, peripheral neuropathy (PN) has been renewed for research funding by the Department of Defense Peer Reviewed Medical Research Program (PDMRP)’s $370 million fund. In advance of pre-application deadlines, the Foundation for Peripheral Neuropathy (FPN) and the …

PERIPHERAL NEUROPATHY RESEARCHERS INVITED TO PRE-APPLY FOR RESEARCH GRANTS FROM DoD PEER REVIEWED MEDICAL RESEARCH PROGRAM Read More »

Call to Action 2023 – Peer Reviewed Medical Research Program!

Leave a Comment / Advocacy, Awareness, News, Research / By Jennifer Riskind

Help Advocate for Government Funding for Peripheral Neuropathy Research What It Is In response to the tireless advocacy and outreach from the peripheral neuropathy (PN) community, Congress designated peripheral neuropathy as a condition in the Peer Reviewed Medical Research Program (PRMRP) in the annual Defense Appropriations Act during fiscal years 2021 through 2023. During that …

Call to Action 2023 – Peer Reviewed Medical Research Program! Read More »

Idiopathic Neuropathy: Q&A

Leave a Comment / Idiopathic Neuropathy, News, Small Fiber Neuropathy / By [email protected]

Sometimes peripheral neuropathy seems to happen for no particular reason. Doctors call this disorder “idiopathic,” which means “of unknown cause.” Q&A with Norman Latov, MD, PhD On February 22, 2023, the Foundation for Peripheral Neuropathy (FPN) welcomed Norman Latov, MD, PhD, from Weill Cornell Medical College, to present on idiopathic neuropathy (IPN). During this 60-minute …

Idiopathic Neuropathy: Q&A Read More »

Gil’s Journey: Learning to be at Peace

Leave a Comment / News, Stories / By Jennifer Riskind

At the Foundation for Peripheral Neuropathy, we like to share with our constituents stories of hope from their peers who are living their best lives, despite the odds being stacked against them. Meet Gil – scientist, writer, avid outdoorsman and FPN supporter -who is another example. This is Gil’s neuropathy journey. We sat down with …

Gil’s Journey: Learning to be at Peace Read More »

Book Fundraiser to Benefit FPN: Order by Feb. 21

Leave a Comment / News / By Jane Bartmann

Best-selling author of “The End of Your Life Book Club” and FPN friend, Will Schwalbe, has written a new book, “We Should Not Be Friends”. Chronicling a forty-year improbable, life-changing friendship, this warm, funny, irresistible book also explores Schwalbe’s experience with small fiber neuropathy. “We Should Not Be Friends is as funny, warm, brutally honest …

Book Fundraiser to Benefit FPN: Order by Feb. 21 Read More »

Inaugural Clinical Research Training Scholarship Recipients Announced

Leave a Comment / CRTS, News, Research / By [email protected]

Paula Barreras, MD, neuroimmunology fellow at Johns Hopkins Hospital and Erika Williams, MD, PhD, neuromuscular fellow at Massachusetts General Brigham are receiving the inaugural Clinical Research Training Scholarships (CRTS). Through these awards, FPN is providing $300,000 in peripheral neuropathy (PN) research funding. Identifying Biomarkers and Pathogenic Mechanisms in Sarcoidosis-Associated Small Fiber Neuropathy Barreras will study …

Inaugural Clinical Research Training Scholarship Recipients Announced Read More »

FPN Welcomes New Board Member

Leave a Comment / News / By Foundation for PN

the Foundation for Peripheral Neuropathy is pleased to welcome its newest Board of Director, Dr. Gregory F. Maassen, effective January 1, 2023. About Dr. Maassen Dr. Gregory F. Maassen is a multimedia, strategic digital marketing, videographer, and (interim) manager with over 23 years of experience, including 18 years of senior management experience with the IFC/World …

FPN Welcomes New Board Member Read More »

Our Advocacy Work on The Hill

Leave a Comment / Advocacy, News, Research / By [email protected]

In 2020, the peripheral neuropathy (PN) research community achieved a huge breakthrough. For the first time, Congress included “peripheral neuropathy” as an eligible condition for study in the Department of Defense’s (DoD) Peer Reviewed Medical Research Program (PRMRP). This led to more than $8 million in grants being awarded for peripheral neuropathy research in fiscal …

Our Advocacy Work on The Hill Read More »

FPN Funding Contributes $90,000 to IMAGiNe Study for anti-MAG Research

Leave a Comment / Anti-MAG Peripheral Neuropathy, News / By [email protected]

Through the generosity of our donors, we’re able to support the IMAGiNe study with a $150,000 research grant to fund new patient enrollment. $90,000 of these funds, spent in 2022, resulted in over 150 new patients enrolling in the study. The IMAGiNe Study The IMAGiNe study is an international research collaborative focused on patients with …

FPN Funding Contributes $90,000 to IMAGiNe Study for anti-MAG Research Read More »

Understanding the Connection Between Polyneuropathy and hATTR Amyloidosis

Leave a Comment / Hereditary ATTR Amyloidosis Program, News / By [email protected]

“We have to look at our family and make sure we are proactive about hATTR amyloidosis so we can all get the care we need,” said Jean, living with hereditary ATTR (hATTR) amyloidosis. “We are nothing if we can’t stay positive. We have to say yes to managing this condition as a community.” Jean shared …

Understanding the Connection Between Polyneuropathy and hATTR Amyloidosis Read More »

News