Sotirios from New Jersey shares his inspirational journey of SFN: from diagnosis to symptom management. “Am I having a heart attack?” That is what I found asking myself in February 2021, while walking. Suddenly, and without warning, I – a relatively healthy and active 43-year-old without any known cardiac issues – experienced such a sharp, …
Anti-MAG neuropathy refers to a rare auto-immune associated cause of peripheral neuropathy (PN). In this case, the person’s own immune system (specifically, the IgM monoclonal antibodies) attack nerve cells required for a healthy peripheral nervous system –resulting in a slowly progressive and debilitating condition. Patients often experience loss of mobility, muscle weakness, balance, numbness and …
TREATING ANTI-MAG PN – A LOOK BACK AND WHAT MAY BE COMING Read More »
My name is Brooke Gottesman. I am a Licensed Clinical Social Worker (LCSW) working in mental health since 2004. I am currently in part-time private practice in NY with a specialization in Cognitive Behavioral Therapy (CBT). I work with patients managing chronic pain. I am writing this article to share my story of chronic pain …
Since 2019, the Foundation for Peripheral Neuropathy has been actively engaged in a campaign to increase federal funding for peripheral neuropathy research. We had an extraordinary breakthrough in fiscal year 2021, when Congress included “peripheral neuropathy” as an eligible condition for research funding from the Department of Defense’s Peer Reviewed Medical Research Program (PRMRP), and Congress …
Importance of Peripheral Neuropathy Recognized in Appropriations Act Read More »
On July 27, 2023, the Senate Committee on Appropriations approved by a large bipartisan vote the Senate version of the fiscal year 2024 Defense Appropriations Act. As it has in the three previous years (FY21-23), the Committee included “peripheral neuropathy” as an eligible condition for receiving research grants from the Department of Defense’s Peer Reviewed Medical …
The Foundation for Peripheral Neuropathy (FPN) is a 100% donor supported 501(c)3 charitable organization. Through research funding, awareness, and patient education, our work advances our mission to improve the lives of patients living with peripheral neuropathy and accelerates the development of treatments, and one day, cures. A Donor Advised Fund (DAF) We view our supporters …
An avid hiker and outdoor enthusiast, Jane shares her most challenging climb – her journey to live with and thrive despite her peripheral neuropathy. Jane recently shared her story with the Foundation for Peripheral Neuropathy in order to help give hope to other patients. When I returned to my favorite spot in Hawaii after several …
At 98, Gloria Potter shares her experience of falling down and getting back up. “What nerve!” We have heard that exclaimed over the years, but the meaning was only one of outrage and the actual nerve cells were not considered. Those of us with peripheral neuropathy may well have the outrage because we are experiencing …
The Foundation for Peripheral Neuropathy (FPN) is pleased that the IMAGiNe study protocol has been approved for publication in the Journal of The Peripheral Nervous System. The focus of this international study is a rare autoimmune cause of PN. It is identified by high levels of the IgM protein in the blood of affected patients, …
Study Protocol on IgM Anti-Mag Neuropathy Released Read More »
Margot Marsh has been through a lot over the years. She moved many times over her lifetime, mostly for other people. She has been married and divorced, raised children, restarted a career and dealt with long-term chronic pain from peripheral neuropathy. But she will be the first to tell you, if she has learned one …
