PNRR

New PN Biobank Research Discovery!

In November 2023, a new discovery was made about neuropathic pain in patients suffering from idiopathic peripheral neuropathy. Using data from the Peripheral Neuropathy Research Registry (PNRR), the Foundation for Peripheral Neuropathy’s research consortium completed an important analysis that led to an important discovery. This research is now published in a renowned research journal. Plasma …

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PNRR Study on Vitamin B6

Vitamin B6 toxicity is known to be a cause of peripheral neuropathy. There is debate regarding the threshold at which intake levels can cause neurological symptoms through vitamin B6. In a 2021 study from the Peripheral Neuropathy Research Registry (PNRR), funded by the Foundation for Peripheral Neuropathy, researchers asked if elevated plasma vitamin B6 levels …

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FPN Welcomes the University of Michigan and Dr. Amro Stino

The Foundation for Peripheral Neuropathy (FPN) is pleased to welcome the University of Michigan as a new site for patient enrollments into the Peripheral Neuropathy Research Registry. In this article, FPN’s Executive Director interviews the newest researcher to join this special team, Dr. Amro Stino, and why this new partnership will be fruitful for the …

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Can Exercise Help Patients with Idiopathic Peripheral Neuropathy?

Exercise to Help Patients with Idiopathic Neuropathy Research has consistently demonstrated that regular exercise reduces polyneuropathy (PN) symptoms in patients with type 2 diabetes. Patients with prediabetes or metabolic syndrome have also shown to benefit from regular exercise. Exercise has also shown to slow progression of peripheral neuropathy in these patient groups. However, little is …

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Key Data from FPN Patient Registry Highlighted in Top Medical Journal

In January 2019, a study was published by the Journal of the Peripheral Nervous System on the design and characteristics of patient data collected from the Peripheral Neuropathy Research Registry (PNRR). This is the first ever overall study performed on this Patient Registry and one that truly highlights the importance of this dataset for current …

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FPN Welcomes Newest Research Partner in Washington University School of Medicine in St. Louis

The Foundation for Peripheral Neuropathy (FPN) continues to build a network of leading neurological consortium partner clinics. Starting in January 2019, FPN is pleased to announce the newest research partner added to its consortium of institutions: Washington University School of Medicine in St. Louis. Washington University will join the other five research sites who work …

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Lynn Mobley shares her peripheral neuropathy story

My athletic husband stumbled. He was tired. He had a disease we’d never heard of. by Lynn Peterson Mobley, as published in The Washington Post We started our ascent of Italy’s Stromboli volcano at dusk, as the Tyrrhenian Sea darkened behind us. It was a long, steady trek upward, but not an exhausting one. At …

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FPN Welcomes Newest Board Member

The Foundation for Peripheral Neuropathy is pleased to welcome Dr. Senda Ajroud-Driss to the Board of Directors. Dr. Senda Ajroud-Driss joins FPN’s Board of Directors bringing valuable, scientific expertise in the field of peripheral neuropathy and research. Dr. Ajroud-Driss has been involved with the Foundation for over decade, serving as the Northwestern University contact for …

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Peripheral Neuropathy Research Registry Yields New Discovery

Data from the Peripheral Neuropathy Research Registry (PNRR) helps scientists examine the relevance of mutations in sodium channels, yielding a new discovery in peripheral neuropathy research. In 2012, the Foundation for Peripheral Neuropathy (FPN) initiated and funded the Peripheral Neuropathy Research Registry (PNRR) to advance research in acquired axonal peripheral neuropathies, which affects millions of Americans. …

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Peripheral Neuropathy Research Registry Update

With the support of two significant grants, the Foundation for Peripheral Neuropathy is continuing to enroll new patients into our one-of-a-kind, Peripheral Neuropathy Research Registry (PNRR). Our goal is to enroll 280 patients this year with an ultimate goal of 2000 enrolled patients. The data in the PNRR aims to help researchers access detailed genotypic …

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