Hi. I’m Becca. I am 24 years old and living with Small and Large Fiber Demyelinating Polyneuropathy. My experience with peripheral neuropathy is part of a complex and multi-systemic genetic condition called Hypermobile Ehlers-Danlos Syndrome. Early pain and first signs of neuropathy My pain journey started when I was young. Maybe 12 or 13 years old. I started to have daily, chronic, […]
Read More… from Breaking isolation, one post at a time: Becca’s story
Kelsey Waffle was diagnosed with idiopathic small fiber neuropathy at age 23, but her autonomic symptoms began much earlier. What started as unexplained health issues slowly grew into a condition that deeply changed her active and creative life. In this FPN patient interview, Kelsey’s mother and caregiver, Debbie Waffle, shares her daughter’s journey. She opens up about […]
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Author Will Schwalbe shares an update on living with small fiber neuropathy, the power of friendship, and lessons learned along the way. In this conversation with our FPN Program Manager, he reflects on adaptation, support, and hope for those navigating life with neuropathy. Will’s original story was shared in 2020 where he shares an article […]
FPN Program Manager Amanda Homscheid catches up with longtime FPN supporter and donor Susan W., who has been living with peripheral neuropathy for over 15 years. Susan shares how her journey has evolved since first telling her story, what helps her manage symptoms and what gives her hope for the future of PN research. Thank […]
When Matt first began showing signs of neuropathy, he and his wife, Cassie, didn’t realize how difficult the journey ahead would be. They faced confusing advice, failed treatments, and constant worries about the future. Through it all, they learned how important it is to have honest information and real support. Cassie shares their story in […]
Read More… from Neuropathy patient advocacy is the answer: Widow finds hope in Foundation’s purpose
Celebrating Jack Miller, FPN’s founder on FPN Day Tomorrow, FPN celebrates its 18th anniversary. In honor of our founding, we are proud to celebrate Jack Miller, the man who founded the Foundation for Peripheral Neuropathy. In his previous patient story from 2011, Jack shared the complete history of why he started FPN and his own long journey with peripheral neuropathy. […]
An update 14 years later by Jack Miller, FPN founder “18 years ago, I founded the Foundation for Peripheral Neuropathy because I was looking for a cure for my (and others’) neuropathy. We haven’t found it yet, but the search is continuing, and The Foundation for Peripheral Neuropathy is helping in many ways. Your support […]
10 marathons. 26.2 miles. 1 mission. Please join us in celebrating PN patient and FPN friend Dieter’s incredible journey running Chicago 10 times! Now with a new purpose: raising awareness and funds for peripheral neuropathy. Diagnosed with idiopathic polyneuropathy in 2024, Dieter continues to run strong, proving that resilience and advocacy go hand in hand. Join […]
Last call to apply! Early-career neuropathy research grant applications due Sept. 8 We’re pleased to announce the 2026-28 cycle of our early career research grants, offered through the American Academy of Neurology and American Brain Foundation . This grant is called the Clinical Research Training Scholarship in Peripheral Neuropathy. We are still accepting applications. Learn more and apply by September 9. […]
My name is Gabi, and I’m 21 with peripheral neuropathy caused by a surgical injury. But honestly, that’s just a footnote—let me tell you how I got here. Eyes on the sky Back in 2022, I was fresh out of high school, ready to take on the world. I had a supportive family, a suitcase […]