Sotirios from New Jersey shares his inspirational journey of SFN: from diagnosis to symptom management. “Am I having a heart attack?” That is what I found asking myself in February 2021, while walking. Suddenly, and without warning, I – a relatively healthy and active 43-year-old without any known cardiac issues – experienced such a sharp, …
An avid hiker and outdoor enthusiast, Jane shares her most challenging climb – her journey to live with and thrive despite her peripheral neuropathy. Jane recently shared her story with the Foundation for Peripheral Neuropathy in order to help give hope to other patients. When I returned to my favorite spot in Hawaii after several …
At 98, Gloria Potter shares her experience of falling down and getting back up. “What nerve!” We have heard that exclaimed over the years, but the meaning was only one of outrage and the actual nerve cells were not considered. Those of us with peripheral neuropathy may well have the outrage because we are experiencing …
Margot Marsh has been through a lot over the years. She moved many times over her lifetime, mostly for other people. She has been married and divorced, raised children, restarted a career and dealt with long-term chronic pain from peripheral neuropathy. But she will be the first to tell you, if she has learned one …
I’m writing this essay for a couple of reasons: as a way to bring more awareness to small fiber neuropathy (SFN) and explain its toll on me personally. The symptoms of small fiber neuropathy vary greatly person to person. But for me, it is chronic pain. I’ve been in pain ever since I can remember. …
Dana’s Story: My Personal Journey with Small Fiber Neuropathy Read More »
Small Fiber Neuropathy brings two women together in friendship and for a cause Rosy George and Jen Roland were strangers living hundreds of miles apart. Soon after her life-changing diagnosis, Rosy of New York reached out to the Foundation for Peripheral Neuropathy looking for support. She was given Jen’s contact information, a young mom from …
Jen and Rosy’s Story: Two Moms Unite Over Small Fiber Neuropathy Read More »
Gregory meets with FPN! Van Salmans, Lindsay Colbert, Gregory, Tanya Zivin and Nancy Frohman D.C. – San Francisco Fundraiser Supports 30-Million Neuropathy Sufferers and Kicks Off Peripheral Neuropathy Awareness Week May 1-8, 2022 For the first time, a cyclist is riding an electric bicycle (e-bike) cross country over 3,400 miles of Lincoln Highway in a journey …
E-Biking Across the U.S. to Raise Awareness For Peripheral Neuropathy Read More »
“Optimism is the faith that leads to achievement; nothing can be done without hope.” —Helen Keller The Diagnosis I was diagnosed with idiopathic peripheral neuropathy in August 2021. Two years prior to a diagnosis, I kept feeling that my socks were bunching up in my feet. I started buying new sneakers and socks. But …
Chuck is a husband, father, grandfather, outdoorsman – and a PN patient who strongly supports the Foundation for Peripheral Neuropathy and advocates for his own health and that of others. We chatted with Chuck about his recent adventures in the US National Parks and his tips for others who want to follow his example. What is your connection to peripheral neuropathy? …
My name is Vicki, and I have bilateral progressive peripheral neuropathy. I have had this condition for over 15 years, and I am ok with it! In the Beginning My journey started in my mid 40s when I noticed numbness in my right calf. It was not something that I really was concerned about; it …
