Have you ever been watching TV and stumbled upon an advertisement promoting an 80s aerobics class—filled with bright workout outfits and groovy background music? For many, it brings back memories of decades past, when Jane Fonda and Arnold Schwarzenegger were iconic television figures; for others, like me, it exposes life before YouTube workout videos and …
Meet Jeff K., an FPN supporter and volunteer, recent retiree, and resident of West Hartford, CT Jeff was diagnosed with peripheral neuropathy (PN) nine years ago, with noticeable issues emerging in the last two years. The initial diagnosis followed back surgery, and his neurosurgeon at Mass General in Boston referred him to a neurologist due …
My name is Sumedha, and I am a current high school senior in Maryland. Though I do not have peripheral neuropathy (PN) and do not know of anyone in my personal life who does, I am driven by a desire to understand and helping PN patients directly with this debilitating condition, using my research experience …
Sotirios from New Jersey shares his inspirational journey of SFN: from diagnosis to symptom management, showcasing persistence in the face of adversity. “Am I having a heart attack?” That is what I found asking myself in February 2021, while walking. Suddenly, and without warning, I – a relatively healthy and active 43-year-old without any known …
My name is Brooke Gottesman. I am a licensed clinical social worker (LCSW) working in mental health since 2004. I am currently in part-time private practice in NY with a specialization in cognitive behavioral therapy (CBT). I work with patients managing chronic pain. I am writing this article to share my story of chronic pain …
Margot Marsh has been through a lot over the years. She moved many times over her lifetime, mostly for other people. She has been married and divorced, raised children, restarted a career and dealt with long-term chronic pain from peripheral neuropathy. But she will be the first to tell you, if she has learned one …
Sometimes peripheral neuropathy seems to happen for no particular reason. Doctors call this disorder “idiopathic,” which means “of unknown cause.” Q&A with Norman Latov, MD, PhD On February 22, 2023, the Foundation for Peripheral Neuropathy (FPN) welcomed Norman Latov, MD, PhD, from Weill Cornell Medical College, to present on idiopathic neuropathy (IPN). During this 60-minute …
Small fiber neuropathy (SFN) is a common, yet underappreciated, subclass of peripheral neuropathy. While SFN shares many features with large fiber neuropathy, it has unique aspects in its evaluation and management that warrant particular attention. Q&A with Amro Stino, MD On July 11, 2022, the Foundation for Peripheral Neuropathy (FPN) welcomed Amro Stino, MD, from …
I’m writing this essay for a couple of reasons: as a way to bring more awareness to small fiber neuropathy (SFN) and explain its toll on me personally. The symptoms of small fiber neuropathy vary greatly person to person. But for me, it is chronic pain. I’ve been in pain ever since I can remember. …
Dana’s Story: My Personal Journey with Small Fiber Neuropathy Read More »
Anti-MAG peripheral neuropathy (Immunoglobulin M(IgM) Anti-Myelin Associated Glycoprotein Peripheral Neuropathy) is a rare autoimmune variety of peripheral neuropathy. In this type of PN, a person’s own immune system attacks cells that are specific in maintaining a healthy peripheral nervous system. As these cells are destroyed by antibodies, they lose function and create problems in both …
