Jen and Rosy’s Story: Two Moms Unite Over Small Fiber Neuropathy

Handshake.

Small Fiber Neuropathy brings two women together in friendship and for a cause Rosy George and Jen Roland were strangers living hundreds of miles apart. Soon after her life-changing diagnosis, Rosy of New York reached out to the Foundation for Peripheral Neuropathy looking for support. She was given Jen’s contact information, a young mom from Maryland who was also struggling […]

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CLINICAL HIGHLIGHTS: PNS Meeting 2022

The Peripheral Nerve Society Annual Meeting was held in Miami in May 2022. The Foundation for Peripheral Neuropathy is pleased to be able to provide PNS Meeting 2022 highlights, summarizing some of the clinical studies presented at the conference. Study teams reported on natural history studies and (clinical) intervention trials for peripheral neuropathies who concluded […]

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Terry’s Story: Local Support Group Offers Help

Terry’s Story

This is Terry’s story. On Friday the 13th of March 2020, when the world stopped for COVID-19, I finally got an answer from my neurologist about the burning pain in my feet and, sometimes, hands. I had a “nickel’s worth of neuropathy” he stated. I remember thinking, “Oh my goodness, if this is only a nickel’s […]

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Peripheral Neuropathy and Mental Health

Brain illustration.

Mental health can become a concern for patients with chronic conditions such as peripheral neuropathy. During recent months when the pandemic has disrupted many of our usual routines, mental health for patients and their families can become even more of an issue. The Foundation for Peripheral Neuropathy asked two experts on the subject for their […]

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Donn Seidholz’ Story: Staying in the Game

Donn Seidholz

PN patient and ex-baseball player Donn Seidholz is a great storyteller – and he has great stories to tell. Donn shared stories about his time as a minor league baseball player, about his life-long devotion to athletics and fitness, his quest for answers about his peripheral neuropathy, and most, recently, his bout with COVID-19. We […]

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Neurological Symptoms Following COVID-19

Covid 19

The Foundation for Peripheral Neuropathy asked Dr. Shanna Patterson and Dr. Rory Abrams, FPN’s Patient Education Advisors, what they are seeing in relation to neurological symptoms following COVID-19. The doctors shared the following information. What do we know about COVID-19? COVID-19 disease caused by the SARS-CoV-2 virus was first described in December 2019 in Wuhan, […]

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COVID-19 Worsened Ron Lissak’s Neuropathy, but Strengthened his Family

Ron Lissak

Ron Lissak, FPN Board member, was interviewed by Brain & Life magazine for their most recent issue (June/July 2020) on his experience with COVID-19 and peripheral neuropathy. Here is the article as it appeared in Brain & Life June/July, 2020 About 11 years ago, I was diagnosed with peripheral neuropathy. As a result, I have […]

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Ask The Expert, Part 2: Peripheral Neuropathy and COVID-19

Covid-19 sample.

Following our latest Ask the Expert session, the Foundation for Peripheral Neuropathy‘s Executive Director, Lindsay Colbert, asked its Scientific Advisory Board Chairman, Dr. Ahmet Höke MD, PhD, additional questions which came directly from the Foundation’s patients. We are continually learning about COVID-19 and its impact on peripheral neuropathy patients. We hope that you find the […]

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Ask The Expert: Peripheral Neuropathy and COVID-19

Covid-19 sample.

Earlier this week, the Foundation for Peripheral Neuropathy‘s Executive Director, Lindsay Colbert, sat down with its Scientific Advisory Board Chairman, Dr. Ahmet Höke, MD, PhD, to learn more about COVID-19 and its impact on peripheral neuropathy patients. We confirmed that people with peripheral neuropathy are not at an increased risk of being infected with COVID-19, […]

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