My pain journey started almost a decade ago with horrific discomfort in my feet, calf muscles, and coccyx (tailbone). I went from a full life of adventure, hard work, and constant motion to being almost completely grounded from pain. Like many people who develop pain almost overnight, I became obsessed with finding answers and treatments. […]
In December 2020, Amy, a 74-year-old New Yorker with a career in construction, was working remotely to avoid COVID-19. After a rare on-site meeting, she tested positive for the virus. Along with the typical symptoms, there was an added surprise; Amy developed peripheral neuropathy (PN). Though she’d experienced mild numbness in her toes the previous […]
Boston Marathon Tragedy: A Day That Changed Everything The television flickered with images of the elite runners and the wheelchair athletes surging forward, the energy of the Boston Marathon palpable even through the screen. It was April 15, 2013, a day etched in my memory. I had watched the runners begin their journey in Hopkinton, […]
Read More… from Running Through the Pain: Finding Strength in the Face of Polyneuropathy
Meet Jason B., a husband, father, supporter of FPN, and an SFN patient, as he shares his journey living with peripheral neuropathy. January 2, 1994, 24 years old, a recent college grad. I was flying from San Francisco to home in San Diego when I felt an unusual, cold yet burning sensation in my legs. […]
Read More… from Living with Peripheral Neuropathy: A 30-Year Journey of Challenges and Hope
Chris F. is a resilient and dedicated individual residing in Madison, Wisconsin. Chris has led a remarkable life marked by a thriving business career and a strong commitment to family. Over three decades, he navigated the complexities of entrepreneurship, describing it as an exhilarating journey filled with challenges and triumphs. With 48 years of marriage […]
Read More… from Chris advocates for peripheral neuropathy awareness
Meet Jeff K., an FPN supporter and volunteer, recent retiree, and resident of West Hartford, CT Jeff K. was diagnosed with peripheral neuropathy (PN) nine years ago, with noticeable issues emerging in the last two years. The initial diagnosis followed back surgery, and his neurosurgeon at Mass General in Boston referred him to a neurologist due to […]
Sotirios from New Jersey shares his inspirational journey of SFN: from diagnosis to symptom management, showcasing persistence in the face of adversity. “Am I having a heart attack?” That is what I found asking myself in February 2021, while walking. Suddenly, and without warning, I – a relatively healthy and active 43-year-old without any known cardiac […]
My name is Brooke Gottesman. As a licensed clinical social worker (LCSW) working in mental health since 2004, I am currently in part-time private practice in NY with a specialization in cognitive behavioral therapy (CBT). My practice focuses on patients managing chronic pain. Writing this article is an opportunity to share my story of chronic pain […]
An avid hiker and outdoor enthusiast, Jane shares her most challenging climb – her journey to live with and thrive despite her peripheral neuropathy. Jane recently shared her story with the Foundation for Peripheral Neuropathy in order to help give hope to other patients. When I returned to my favorite spot in Hawaii after several years, I was a different person. Once […]
At 98, Gloria Potter shares her peripheral neuropathy journey. “What nerve!” We have heard that exclaimed over the years, but the meaning was only one of outrage and the actual nerve cells were not considered. Those of us with peripheral neuropathy may well have the outrage because we are experiencing a thoroughly outrageous condition. As our nerve […]