I’m writing this essay for a couple of reasons: as a way to bring more awareness to small fiber neuropathy (SFN) and explain its toll on me personally. The symptoms of small fiber neuropathy vary greatly person to person. But for me, it is chronic pain. I’ve been in pain ever since I can remember. …
Dana’s Story: My Personal Journey with Small Fiber Neuropathy Read More »
Small Fiber Neuropathy brings two women together in friendship and for a cause Rosy George and Jen Roland were strangers living hundreds of miles apart. Soon after her life-changing diagnosis, Rosy of New York reached out to the Foundation for Peripheral Neuropathy looking for support. She was given Jen’s contact information, a young mom from …
Jen and Rosy’s Story: Two Moms Unite Over Small Fiber Neuropathy Read More »
“Optimism is the faith that leads to achievement; nothing can be done without hope.” —Helen Keller The Diagnosis I was diagnosed with idiopathic peripheral neuropathy in August 2021. Two years prior to a diagnosis, I kept feeling that my socks were bunching up in my feet. I started buying new sneakers and socks. But …
Chuck is a husband, father, grandfather, outdoorsman – and a PN patient who strongly supports the Foundation for Peripheral Neuropathy and advocates for his own health and that of others. We chatted with Chuck about his recent adventures in the US National Parks and his tips for others who want to follow his example. What is your connection to peripheral neuropathy? …
My name is Vicki, and I have bilateral progressive peripheral neuropathy. I have had this condition for over 15 years, and I am ok with it! In the Beginning My journey started in my mid 40s when I noticed numbness in my right calf. It was not something that I really was concerned about; it …
MICHAEL WRIGHT has had neuropathy for about six years. Living in Charlotte, NC, with a supportive family, Michael has not let his neuropathy get the best of him. He has become a true activist, helping other patients with peripheral neuropathy and finding ways to bring attention to peripheral neuropathy and raising money for research. Michael founded the group, …
On Friday the 13th of March 2020, when the world stopped for COVID-19, I finally got an answer from my neurologist about the burning pain in my feet and, sometimes, hands. I had a “nickel’s worth of neuropathy” he stated. I remember thinking, “Oh my goodness, if this is only a nickel’s worth what might a …
When Jen set out to raise awareness for PN, she did more than she expected. Her outreach helped others and brought people together. Jen shares her story here. Jen’s Story I never thought neuropathy would be part of my story. Prior to my diagnosis, I was a healthy 39-year-old writer, health coach, and personal trainer. …
Jen’s Story: Raising Awareness for PN Brings People Together Read More »
My PN Story My journey with PN began in 2019 with the onset of burning pain in my toes and fingers that quickly spread up my legs and arms. Within a few weeks I couldn’t walk without assistance. Even the slightest touch felt as if I were being shocked. My health declined rapidly. I no …
Helping Others, Help Yourself! My issues started probably 5-6 years ago. We we know, PN is very hard to diagnose. With that being said, I was treated for carpal tunnel, they switched my cholesterol meds, and I said lots of prayers as we didn’t know what was going on! After a nerve conduction study, I …
