Idiopathic Neuropathy

How a PN patient maintains hope

Meet Jeff K., an FPN supporter and volunteer, recent retiree, and resident of West Hartford, CT. Jeff was diagnosed with peripheral neuropathy (PN) nine years ago, with noticeable issues emerging in the last two years. The initial diagnosis followed back surgery, and his neurosurgeon at Mass General in Boston referred him to a neurologist due …

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New PN Biobank Research Discovery!

In November 2023, a new discovery was made about neuropathic pain in patients suffering from idiopathic peripheral neuropathy. Using data from the Peripheral Neuropathy Research Registry (PNRR), the Foundation for Peripheral Neuropathy’s research consortium completed an important analysis that led to an important discovery. This research is now published in a renowned research journal. Plasma …

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Idiopathic Neuropathy: Q&A

Sometimes peripheral neuropathy seems to happen for no particular reason. Doctors call this disorder “idiopathic,” which means “of unknown cause.” Q&A with Norman Latov, MD, PhD On February 22, 2023, the Foundation for Peripheral Neuropathy (FPN) welcomed Norman Latov, MD, PhD, from Weill Cornell Medical College, to present on idiopathic neuropathy (IPN). During this 60-minute …

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Small Fiber Neuropathy: Q&A

Small fiber neuropathy (SFN) is a common, yet underappreciated, subclass of peripheral neuropathy. While SFN shares many features with large fiber neuropathy, it has unique aspects in its evaluation and management that warrant particular attention. Q&A with Amro Stino, MD On July 11, 2022, the Foundation for Peripheral Neuropathy (FPN) welcomed Amro Stino, MD, from …

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CLINICAL HIGHLIGHTS: PNS Meeting 2022

The Peripheral Nerve Society Annual Meeting was held in Miami in May 2022. The Foundation for Peripheral Neuropathy is pleased to be able to provide a summary of some of the clinical studies presented at the conference. Study teams reported on natural history studies and (clinical) intervention trials for Peripheral Neuropathies who concluded over the …

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Jeffrey’s Story: Life Is Good

“Optimism is the faith that leads to achievement; nothing can be done without hope.” —Helen Keller   The Diagnosis I was diagnosed with idiopathic peripheral neuropathy in August 2021. Two years prior to a diagnosis, I kept feeling that my socks were bunching up in my feet. I started buying new sneakers and socks. But …

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PNRR Study on Vitamin B6

Vitamin B6 toxicity is known to be a cause of peripheral neuropathy. There is debate regarding the threshold at which intake levels can cause neurological symptoms through vitamin B6. In a 2021 study from the Peripheral Neuropathy Research Registry (PNRR), funded by the Foundation for Peripheral Neuropathy, researchers asked if elevated plasma vitamin B6 levels …

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Chuck’s Story: Exploring the National Parks

Chuck is a husband, father, grandfather, outdoorsman – and a PN patient who strongly supports the Foundation for Peripheral Neuropathy and advocates for his own health and that of others. We chatted with Chuck about his recent adventures in the US National Parks and his tips for others who want to follow his example. What is your connection to peripheral neuropathy? …

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Terry’s Story: Local Support Group Offers Help

On Friday the 13th of March 2020, when the world stopped for COVID-19, I finally got an answer from my neurologist about the burning pain in my feet and, sometimes, hands. I had a “nickel’s worth of neuropathy” he stated. I remember thinking, “Oh my goodness, if this is only a nickel’s worth what might a …

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