Idiopathic Neuropathy

Idiopathic Neuropathy: Q&A

Sometimes peripheral neuropathy seems to happen for no particular reason. Doctors call this disorder “idiopathic,” which means “of unknown cause.” Q&A with Norman Latov, MD, PhD On February 22, 2023, the Foundation for Peripheral Neuropathy (FPN) welcomed Norman Latov, MD, PhD, from Weill Cornell Medical College, to present on idiopathic neuropathy (IPN). During this 60-minute …

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Small Fiber Neuropathy: Q&A

Small fiber neuropathy (SFN) is a common, yet underappreciated, subclass of peripheral neuropathy. While SFN shares many features with large fiber neuropathy, it has unique aspects in its evaluation and management that warrant particular attention. Q&A with Amro Stino, MD On July 11, 2022, the Foundation for Peripheral Neuropathy (FPN) welcomed Amro Stino, MD, from …

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CLINICAL HIGHLIGHTS: PNS Meeting 2022

The Peripheral Nerve Society Annual Meeting was held in Miami in May 2022. The Foundation for Peripheral Neuropathy is pleased to be able to provide a summary of some of the clinical studies presented at the conference. Study teams reported on natural history studies and (clinical) intervention trials for Peripheral Neuropathies who concluded over the …

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Jeffrey’s Story: Life Is Good

“Optimism is the faith that leads to achievement; nothing can be done without hope.” —Helen Keller   The Diagnosis I was diagnosed with idiopathic peripheral neuropathy in August 2021. Two years prior to a diagnosis, I kept feeling that my socks were bunching up in my feet. I started buying new sneakers and socks. But …

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PNRR Study on Vitamin B6

Vitamin B6 toxicity is known to be a cause of peripheral neuropathy. There is debate regarding the threshold at which intake levels can cause neurological symptoms through vitamin B6. In a 2021 study from the Peripheral Neuropathy Research Registry (PNRR), funded by the Foundation for Peripheral Neuropathy, researchers asked if elevated plasma vitamin B6 levels …

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Chuck’s Story: Exploring the National Parks

Chuck is a husband, father, grandfather, outdoorsman – and a PN patient who strongly supports the Foundation for Peripheral Neuropathy and advocates for his own health and that of others. We chatted with Chuck about his recent adventures in the US National Parks and his tips for others who want to follow his example. What is your connection to peripheral neuropathy? …

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Terry’s Story: Local Support Group Offers Help

On Friday the 13th of March 2020, when the world stopped for COVID-19, I finally got an answer from my neurologist about the burning pain in my feet and, sometimes, hands. I had a “nickel’s worth of neuropathy” he stated. I remember thinking, “Oh my goodness, if this is only a nickel’s worth what might a …

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jen

Jen’s Story: Raising Awareness for PN Brings People Together

When Jen set out to raise awareness for PN, she did more than she expected. Her outreach helped others and brought people together. Jen shares her story here. Jen’s Story I never thought neuropathy would be part of my story. Prior to my diagnosis, I was a healthy 39-year-old writer, health coach, and personal trainer. …

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Donn Seidholz’ Story: Staying in the Game

Donn Seidholz is a great storyteller – and he has great stories to tell. Donn shared stories about his time as a minor league baseball player, about his life-long devotion to athletics and fitness, his quest for answers about his peripheral neuropathy, and most, recently, his bout with COVID-19. We share some of Donn’s stories …

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Can Exercise Help Patients with Idiopathic Peripheral Neuropathy?

Exercise to Help Patients with Idiopathic Neuropathy Research has consistently demonstrated that regular exercise reduces polyneuropathy (PN) symptoms in patients with type 2 diabetes. Patients with prediabetes or metabolic syndrome have also shown to benefit from regular exercise. Exercise has also shown to slow progression of peripheral neuropathy in these patient groups. However, little is …

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