Sotirios from New Jersey shares his inspirational journey of SFN: from diagnosis to symptom management, showcasing persistence in the face of adversity. “Am I having a heart attack?” That is what I found asking myself in February 2021, while walking. Suddenly, and without warning, I – a relatively healthy and active 43-year-old without any known …
My name is Brooke Gottesman. I am a licensed clinical social worker (LCSW) working in mental health since 2004. I am currently in part-time private practice in NY with a specialization in cognitive behavioral therapy (CBT). I work with patients managing chronic pain. I am writing this article to share my story of chronic pain …
Sometimes peripheral neuropathy seems to happen for no particular reason. Doctors call this disorder “idiopathic,” which means “of unknown cause.” Q&A with Norman Latov, MD, PhD On February 22, 2023, the Foundation for Peripheral Neuropathy (FPN) welcomed Norman Latov, MD, PhD, from Weill Cornell Medical College, to present on idiopathic neuropathy (IPN). During this 60-minute …
Best-selling author of “The End of Your Life Book Club” and FPN friend, Will Schwalbe, has written a new book, “We Should Not Be Friends.” Chronicling a forty-year improbable, life-changing friendship, this warm, funny, irresistible book also explores Schwalbe’s experience with small fiber neuropathy. “We Should Not Be Friends is as funny, warm, brutally honest …
Book Fundraiser to Benefit FPN: Order by Feb. 21 Read More »
Paula Barreras, MD, neuroimmunology fellow at Johns Hopkins Hospital and Erika Williams, MD, PhD, neuromuscular fellow at Massachusetts General Brigham are receiving the inaugural Clinical Research Training Scholarships (CRTS). Through these awards, FPN is providing $300,000 in peripheral neuropathy (PN) research funding. Identifying Biomarkers and Pathogenic Mechanisms in Sarcoidosis-Associated Small Fiber Neuropathy Barreras will study …
Inaugural Clinical Research Training Scholarship Recipients Announced Read More »
the Foundation for Peripheral Neuropathy is pleased to welcome its newest Board of Director, Dr. Gregory F. Maassen, effective January 1, 2023. About Dr. Maassen Dr. Gregory F. Maassen is a multimedia, strategic digital marketing, videographer, and (interim) manager with over 23 years of experience, including 18 years of senior management experience with the IFC/World …
Small fiber neuropathy (SFN) is a common, yet underappreciated, subclass of peripheral neuropathy. While SFN shares many features with large fiber neuropathy, it has unique aspects in its evaluation and management that warrant particular attention. Q&A with Amro Stino, MD On July 11, 2022, the Foundation for Peripheral Neuropathy (FPN) welcomed Amro Stino, MD, from …
I’m writing this essay for a couple of reasons: as a way to bring more awareness to small fiber neuropathy (SFN) and explain its toll on me personally. The symptoms of small fiber neuropathy vary greatly person to person. But for me, it is chronic pain. I’ve been in pain ever since I can remember. …
Dana’s Story: My Personal Journey with Small Fiber Neuropathy Read More »
Small Fiber Neuropathy brings two women together in friendship and for a cause Rosy George and Jen Roland were strangers living hundreds of miles apart. Soon after her life-changing diagnosis, Rosy of New York reached out to the Foundation for Peripheral Neuropathy looking for support. She was given Jen’s contact information, a young mom from …
Jen and Rosy’s Story: Two Moms Unite Over Small Fiber Neuropathy Read More »
The Peripheral Nerve Society Annual Meeting was held in Miami in May 2022. The Foundation for Peripheral Neuropathy is pleased to be able to provide PNS Meeting 2022 highlights, summarizing some of the clinical studies presented at the conference. Study teams reported on natural history studies and (clinical) intervention trials for peripheral neuropathies who concluded …
