Hi. I’m Becca. I am 24 years old and living with Small and Large Fiber Demyelinating Polyneuropathy. My experience with peripheral neuropathy is part of a complex and multi-systemic genetic condition called Hypermobile Ehlers-Danlos Syndrome. Early pain and first signs of neuropathy My pain journey started when I was young. Maybe 12 or 13 years old. I started to have daily, chronic, […]
Read More… from Breaking isolation, one post at a time: Becca’s story
Kelsey Waffle was diagnosed with idiopathic small fiber neuropathy at age 23, but her autonomic symptoms began much earlier. What started as unexplained health issues slowly grew into a condition that deeply changed her active and creative life. In this FPN patient interview, Kelsey’s mother and caregiver, Debbie Waffle, shares her daughter’s journey. She opens up about […]
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Author Will Schwalbe shares an update on living with small fiber neuropathy, the power of friendship, and lessons learned along the way. In this conversation with our FPN Program Manager, he reflects on adaptation, support, and hope for those navigating life with neuropathy. Will’s original story was shared in 2020 where he shares an article […]
As we’re wrapping up 2025, we want to highlight some of our most popular content. In case you missed it, here are some of our top viewed items. Our most popular blog post of 2025: When neuropathy turned Matt and Cassie’s world upside down, they discovered the power of advocacy and honest support. Read Cassie’s […]
November is National Family Caregivers Month, a time to honor the amazing people who give their time and energy to care for others. Many caregivers work full-time jobs while also supporting a loved one living with peripheral neuropathy. Their kindness and dedication make a big difference every day. This month, we want to thank them and remind everyone […]
Paula Barreras, MD, neuroimmunology fellow at Johns Hopkins Hospital, was one of the first recipients of the Foundation for Peripheral Neuropathy’s (FPN) Clinical Research Training Scholarships (CRTS). Through these awards, FPN is supporting early-career researchers in peripheral neuropathy. Did you know that about 40% of people with sarcoidosis, an inflammatory disease, also experience a nerve condition called small fiber neuropathy (SFN)? […]
October is Breast Cancer Awareness Month, a time to highlight the importance of early detection and treatment for breast cancer. In 2024, over 360,000 individuals in the U.S. will be diagnosed, making awareness and education crucial. A common treatment for breast cancer is chemotherapy, which can lead to a side effect known as chemotherapy-induced peripheral neuropathy […]
Meet Jason B., a husband, father, supporter of FPN, and an SFN patient, as he shares his journey living with peripheral neuropathy. January 2, 1994, 24 years old, a recent college grad. I was flying from San Francisco to home in San Diego when I felt an unusual, cold yet burning sensation in my legs. […]
Read More… from Living with Peripheral Neuropathy: A 30-Year Journey of Challenges and Hope
As the chilly winds of winter give way to the gentle warmth of spring, we find ourselves amidst a season of transformation and renewal. With each new bud and blossom, we are reminded of the potential for growth and progress in the field of neuropathy research. Please join us as we look forward to brighter […]
Sotirios from New Jersey shares his inspirational journey of SFN: from diagnosis to symptom management, showcasing persistence in the face of adversity. “Am I having a heart attack?” That is what I found asking myself in February 2021, while walking. Suddenly, and without warning, I – a relatively healthy and active 43-year-old without any known cardiac […]