IMAG±iNe 2.0 study: How biomarkers could help researchers better understand IgM-associated PN 

Interview with Perry van Doormaal, MD, PhD  In this interview, Amanda Homscheid, FPN Program Manager, speaks with Perry van Doormaal, MD, PhD, a Senior Researcher at the University Medical Center Utrecht in the Netherlands and Principal Investigator of the IMAG±iNe study. This study focuses on a rare nerve disease called IgM-associated peripheral neuropathy, which can happen with or without something called anti-MAG antibodies.  In this interview, Dr. van Doormaal talks about a new study that builds on what researchers learned from the original IMAG±iNe study. […]

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Living with Neuropathy—and Speaking Up  

Living with a long-term illness that most people don’t understand can feel very lonely. But for one caring volunteer, that hard experience became a reason to help others and make a difference.  Meet Stacey U.  After getting peripheral neuropathy from a serious nerve injury, Stacey—who worked for many years in public relations—turned her personal struggle into a […]

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Chris Cashman, MD, PhD, awarded scholarship for neuropathy research 

Chris Cashman, MD, PhD, was awarded one of two 2026 Clinical Research Training Scholarship (CRTS) to support his neuropathy research.  The CRTS is a two-year scholarship program that provides funding for emerging experts in neuropathy. The scholarship supports researchers’ efforts to advance treatments, prevention, and even cures for peripheral neuropathy (PN) and is fully funded by the Foundation for Peripheral Neuropathy.    Cashman […]

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Breaking isolation, one post at a time: Becca’s story 

Hi. I’m Becca. I am 24 years old and living with Small and Large Fiber Demyelinating Polyneuropathy. My experience with peripheral neuropathy is part of a complex and multi-systemic genetic condition called Hypermobile Ehlers-Danlos Syndrome.  Early pain and first signs of neuropathy  My pain journey started when I was young. Maybe 12 or 13 years old. I started to have daily, chronic, […]

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Neuropathy News April 2026

FPN’s second annual Neuropathy Advocacy Day We held our second annual Neuropathy Advocacy Day on March 11. It was an important day to speak up for the 30 million Americans living with peripheral neuropathy. Together, we asked Congress to support more research and better care for people affected by this condition.   Learn more about […]

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Behind the lab coat: Q&A with Dr. Townsend  

“Science is a team sport” – Kristy Townsend, PhD  Dr. Townsend recently spoke on our webinar, Behind the lab coat: How medical research really works.   Kristy Townsend, PhD is a researcher and Professor in the Department of Neurological Surgery at The Ohio State University’s College of Medicine. Research in the Townsend Lab for Neurobiology & Energy Balance focuses on neural […]

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Video interview with Debbie Waffle: Kelsey’s story 

Kelsey Waffle was diagnosed with idiopathic small fiber neuropathy at age 23, but her autonomic symptoms began much earlier. What started as unexplained health issues slowly grew into a condition that deeply changed her active and creative life.  In this FPN patient interview, Kelsey’s mother and caregiver, Debbie Waffle, shares her daughter’s journey. She opens up about […]

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FPN’s second annual Neuropathy Advocacy Day 

The Foundation for Peripheral Neuropathy (FPN) held our second annual Neuropathy Advocacy Day on March 11. It was an important day to speak up for the 30 million Americans living with peripheral neuropathy (PN). Together, we asked Congress to support more research and better care for people affected by this condition.  Goals of Advocacy Day  […]

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Neuropathy News March 2026

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Nominations Open: PRMRP Consumer Reviewer (Due March 17) The Congressionally Directed Medical Research Programs (CDMRP) is looking for new consumer reviewers to join upcoming scientific review panels. If you are a PN patient and want to review research grants, this opportunity is for you! This year, $370 million has been approved for the program. Peripheral […]

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Ariel Zhang, PhD, awarded scholarship for neuropathy research 

Ariel Zhang, PhD, was awarded one of two 2026 Clinical Research Training Scholarship (CRTS) to support her important research on chemotherapy-induced peripheral neuropathy (CIPN). The CRTS is a two-year scholarship program that provides funding for emerging experts in neuropathy. The scholarship supports researchers’ efforts to advance treatments, prevention, and even cures for peripheral neuropathy (PN) and is fully funded by the Foundation for Peripheral Neuropathy.  Zhang’s research  Even though CIPN is common, it has not been studied as much as […]

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