Have you ever been watching TV and stumbled upon an advertisement promoting an 80s aerobics class—filled with bright workout outfits and groovy background music? For many, it brings back memories of decades past, when Jane Fonda and Arnold Schwarzenegger were iconic television figures; for others, like me, it exposes life before YouTube workout videos and …
Help Advocate for Government Funding for Peripheral Neuropathy Research in 2025 Due to the Foundation for Peripheral Neuropathy’s (FPN) advocacy efforts on the Hill, and countless letters from PN patients like you, Congress designated peripheral neuropathy as a condition in the Peer Reviewed Medical Research Program (PRMRP) in the annual Defense Appropriations Act during fiscal …
Make Your Voice Heard: Join the Call to Action for PN Advocacy! Read More »
On March 23, 2024, the Senate Committee on Appropriations approved, by a large bipartisan vote, the Senate version of the fiscal year 2024 Defense Appropriations Bill. As it has in the three previous years (FY21-23), the Committee renewed “peripheral neuropathy” (PN) as an eligible condition for receiving research grants from the Department of Defense’s Peer Reviewed …
For the fourth consecutive year, peripheral neuropathy (PN) has been renewed for research funding by the Department of Defense (DoD) Peer Reviewed Medical Research Program (PRMRP)’s $370 million fund for FY24. In advance of pre-application deadlines, the Foundation for Peripheral Neuropathy (FPN) is sharing with you the FY24 funding mechanisms, award amounts, maximum direct costs and how to apply. FY24 …
Principal Investigators Peter Grace, PhD, from MD Anderson Cancer Center, University of Texas, and Cobi Heijnen, PhD, from Rice University, were recently granted Investigator-Initiated Research Awards. Grace received funding totaling USD$3,064,079, and Heijnen received funding totaling USD$165,704. Peripheral Neuropathy Advocacy Grace and Heijnen’s awards were made possible through the Foundation for Peripheral Neuropathy’s (FPN) advocacy …
Principal Investigator Shailly Jariwala, MS, PhD, of the Henry M. Jackson Foundation, was recently granted a Discovery Award totaling USD$319,151 for her research on a new therapy for peripheral neuropathy. Peripheral Neuropathy Advocacy Jariwala’s award was made possible through the Foundation for Peripheral Neuropathy’s (FPN) advocacy efforts with the Department of Defense’s CDMRP program. Advocacy …
The Foundation for Peripheral Neuropathy (FPN) is pleased to announce the 2024 Clinical Research Training Scholarship (CRTS) recipient for peripheral neuropathy (PN), Francesco E. Michelassi, MD, PhD, Neuromuscular Research Fellow, Columbia University Irving Medical Center. Michelassi’s research is fully funded by FPN and will focus on chemotherapy-induced peripheral neuropathy (CIPN), by studying how a chemotherapy …
Clinical Research Training Scholarship Recipient Announced Read More »
In November 2023, a new discovery was made about neuropathic pain in patients suffering from idiopathic peripheral neuropathy. Using data from the Peripheral Neuropathy Research Registry (PNRR), the Foundation for Peripheral Neuropathy’s research consortium completed an important analysis that led to an important discovery. This research is now published in a renowned research journal. Plasma …
Through the generosity of our donors, the Foundation for Peripheral Neuropathy (FPN) was able to support the IMAGiNe study with a $165,000 research grant to fund new patient enrollment for anti-MAG neuropathy. $90,000 of these funds were spent in 2022, which resulted in over 150 new patients enrolling in the study. In 2023, an additional $24,750 was spent, …
Introduction to Anti-MAG Neuropathy Anti-MAG neuropathy refers to a rare auto-immune associated cause of peripheral neuropathy (PN). In this case, the person’s own immune system (specifically, the IgM monoclonal antibodies) attack nerve cells required for a healthy peripheral nervous system – resulting in a slowly progressive and debilitating condition. Patients often experience loss of mobility, …
TREATING ANTI-MAG PN – A LOOK BACK AND WHAT MAY BE COMING Read More »
