Idiopathic Neuropathy: Q&A

Q & A

Sometimes peripheral neuropathy seems to happen for no particular reason. Doctors call this disorder “idiopathic,” which means “of unknown cause.” Q&A with Norman Latov, MD, PhD On February 22, 2023, the Foundation for Peripheral Neuropathy (FPN) welcomed Norman Latov, MD, PhD, from Weill Cornell Medical College, to present on idiopathic neuropathy (IPN). During this 60-minute […]

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Book Fundraiser to Benefit FPN: Order by Feb. 21

We Should Not Be Friends book cover

Best-selling author of “The End of Your Life Book Club” and FPN friend, Will Schwalbe, has written a new book, “We Should Not Be Friends.” Chronicling a forty-year improbable, life-changing friendship, this warm, funny, irresistible book also explores Schwalbe’s experience with small fiber neuropathy. “We Should Not Be Friends is as funny, warm, brutally honest […]

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Inaugural Clinical Research Training Scholarship Recipients Announced

CRTS Award winners.

Paula Barreras, MD, neuroimmunology fellow at Johns Hopkins Hospital and Erika Williams, MD, PhD, neuromuscular fellow at Massachusetts General Brigham are receiving the inaugural Clinical Research Training Scholarships (CRTS). Through these awards, FPN is providing $300,000 in peripheral neuropathy (PN) research funding. Identifying Biomarkers and Pathogenic Mechanisms in Sarcoidosis-Associated Small Fiber Neuropathy Barreras will study […]

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FPN Welcomes New Board Member

Dr. Gregory Maassen

The Foundation for Peripheral Neuropathy is pleased to welcome its newest Board Director, Dr. Gregory Maassen, PhD, effective January 1, 2023. About Dr. Gregory Maassen Dr. Gregory Maassen is a multimedia, strategic digital marketing, videographer, and (interim) manager. He has over 23 years of experience. This includes 18 years of senior management experience with the […]

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Small Fiber Neuropathy: Q&A

Q&A

Small fiber neuropathy (SFN) is a common, yet underappreciated, subclass of peripheral neuropathy. While SFN shares many features with large fiber neuropathy, it has unique aspects in its evaluation and management that warrant particular attention. Q&A with Amro Stino, MD On July 11, 2022, the Foundation for Peripheral Neuropathy (FPN) welcomed Amro Stino, MD, from […]

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Dana’s Story: My Personal Journey with Small Fiber Neuropathy

Family with two sons.

I’m writing this essay for a couple of reasons: as a way to bring more awareness to small fiber neuropathy (SFN) and explain its toll on me personally. The symptoms of small fiber neuropathy vary greatly person to person. But for me, it is chronic pain. I’ve been in pain ever since I can remember. […]

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Jen and Rosy’s Story: Two Moms Unite Over Small Fiber Neuropathy

Handshake.

Small Fiber Neuropathy brings two women together in friendship and for a cause Rosy George and Jen Roland were strangers living hundreds of miles apart. Soon after her life-changing diagnosis, Rosy of New York reached out to the Foundation for Peripheral Neuropathy looking for support. She was given Jen’s contact information, a young mom from Maryland who was also struggling […]

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CLINICAL HIGHLIGHTS: PNS Meeting 2022

The Peripheral Nerve Society Annual Meeting was held in Miami in May 2022. The Foundation for Peripheral Neuropathy is pleased to be able to provide PNS Meeting 2022 highlights, summarizing some of the clinical studies presented at the conference. Study teams reported on natural history studies and (clinical) intervention trials for peripheral neuropathies who concluded […]

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