My athletic husband stumbled. He was tired. He had a disease we’d never heard of. by Lynn Peterson Mobley, as published in The Washington Post We started our ascent of Italy’s Stromboli volcano at dusk, as the Tyrrhenian Sea darkened behind us. It was a long, steady trek upward, but not an exhausting one. At …
Lynn Mobley shares her peripheral neuropathy story Read More »
Small study offers hope to patients with small fiber neuropathy Many patients diagnosed with small fiber neuropathy, one of the many forms of peripheral neuropathy, ask their physicians about their prognosis. Physicians are usually not sure how to answer, since there is not a lot of research to back whether the condition will improve or …
Long-Time Course of Idiopathic Small Fiber Neuropathy Read More »
Walter van Woudenberg and Saskia Keyes Support FPN’s Quest for Research Findings Specific to Idiopathic Neuropathy When idiopathic neuropathy struck Walter van Woudenberg at age 55 in the late 1990s, he was surprised by the lack of information and understanding of the disease. Walter scanned the available literature, visited with neurologists, and tried many of …
Father/Daughter Support FPN’s Quest for Research Findings Read More »
My Story About Living with Peripheral Neuropathy By: Phyllis Bear I have come to really hate the word “idiopathic.” My first recollection of a problem was back in 2009, when I had difficulty climbing a hill on a golf course and my friend had to pick me up with the golf cart. I soon noticed, …
Living with Peripheral Neuropathy: Never Give Up – There is Always Hope Read More »
Ed and Jean Tomezsko share more than most married couples….they both have PN. Ed can trace his back to about 1985 while on a business trip to Colorado. Hiking in the mountains and hopping from rock to rock, Ed noticed an unusual balance issue – wobbling as he crossed a stream on the rocks. Feeling …
Some might say Dianne Jones is one of the lucky ones. Diagnosed with idiopathic peripheral neuropathy 25 years ago, she experiences numbness and tingling but she has no pain. Her hands and feet are numb; moving around is difficult. She loses her balance, bumps into things, her gait is uneven. She is stiff and uncoordinated, …
