Meet Jeff K., an FPN supporter and volunteer, recent retiree, and resident of West Hartford, CT Jeff K. was diagnosed with peripheral neuropathy (PN) nine years ago, with noticeable issues emerging in the last two years. The initial diagnosis followed back surgery, and his neurosurgeon at Mass General in Boston referred him to a neurologist …
“I have to be my own advocate, and you should be too,” said Christine, living with hereditary ATTR (hATTR) amyloidosis. “Once you know something, you can deal with it head-on. It’s the ‘not knowing’ that’s the most frustrating. Knowledge is power!” Christine shared her inspiring story about being diagnosed with and living with hATTR amyloidosis …
Understanding the Connection Between Polyneuropathy and hATTR Amyloidosis Read More »
The Foundation for Peripheral Neuropathy (FPN) is pleased to announce the 2024 Clinical Research Training Scholarship (CRTS) recipient for peripheral neuropathy (PN), Francesco E. Michelassi, MD, Neuromuscular Research Fellow, Columbia University Irving Medical Center. Michelassi’s research is fully funded by FPN and will focus on chemotherapy-induced peripheral neuropathy (CIPN), by studying how a chemotherapy drug …
Clinical Research Training Scholarship Recipient Announced Read More »
In November 2023, a new discovery was made about neuropathic pain in patients suffering from idiopathic peripheral neuropathy. Using data from the Peripheral Neuropathy Research Registry (PNRR), the Foundation for Peripheral Neuropathy’s research consortium completed an important analysis that led to an important discovery. This research is now published in a renowned research journal. Plasma …
Through the generosity of our donors, the Foundation for Peripheral Neuropathy (FPN) was able to support the IMAGiNe study with a $165,000 research grant to fund new patient enrollment for anti-MAG neuropathy. $90,000 of these funds were spent in 2022, which resulted in over 150 new patients enrolling in the study. In 2023, an additional $24,750 was spent, …
The Foundation for Peripheral Neuropathy (FPN) welcomes Dr. David Bennett, MB, PhD, to the Foundation’s Scientific Advisory Board (SAB), effective November 2023. The SAB advises both the Board of Directors and staff of the Foundation on matters related to science and technology relevant to peripheral neuropathy and its research. About Dr. David Bennett Dr. David …
My name is Sumedha, and I am a current high school senior in Maryland. Though I do not have peripheral neuropathy (PN) and do not know of anyone in my personal life who does, I am driven by a desire to understand and helping PN patients directly with this debilitating condition, using my research experience …
Sotirios from New Jersey shares his inspirational journey of SFN: from diagnosis to symptom management, showcasing persistence in the face of adversity. “Am I having a heart attack?” That is what I found asking myself in February 2021, while walking. Suddenly, and without warning, I – a relatively healthy and active 43-year-old without any known …
Introduction to Anti-MAG Neuropathy Anti-MAG neuropathy refers to a rare auto-immune associated cause of peripheral neuropathy (PN). In this case, the person’s own immune system (specifically, the IgM monoclonal antibodies) attack nerve cells required for a healthy peripheral nervous system – resulting in a slowly progressive and debilitating condition. Patients often experience loss of mobility, …
TREATING ANTI-MAG PN – A LOOK BACK AND WHAT MAY BE COMING Read More »
My name is Brooke Gottesman. I am a licensed clinical social worker (LCSW) working in mental health since 2004. I am currently in part-time private practice in NY with a specialization in cognitive behavioral therapy (CBT). I work with patients managing chronic pain. I am writing this article to share my story of chronic pain …
