Kelsey Waffle was diagnosed with idiopathic small fiber neuropathy at age 23, but her autonomic symptoms began much earlier. What started as unexplained health issues slowly grew into a condition that deeply changed her active and creative life. In this FPN patient interview, Kelsey’s mother and caregiver, Debbie Waffle, shares her daughter’s journey. She opens up about […]
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The Foundation for Peripheral Neuropathy (FPN) held our second annual Neuropathy Advocacy Day on March 11. It was an important day to speak up for the 30 million Americans living with peripheral neuropathy (PN). Together, we asked Congress to support more research and better care for people affected by this condition. Goals of Advocacy Day […]
Ariel Zhang, PhD, was awarded one of two 2026 Clinical Research Training Scholarship (CRTS) to support her important research on chemotherapy-induced peripheral neuropathy (CIPN). The CRTS is a two-year scholarship program that provides funding for emerging experts in neuropathy. The scholarship supports researchers’ efforts to advance treatments, prevention, and even cures for peripheral neuropathy (PN) and is fully funded by the Foundation for Peripheral Neuropathy. Zhang’s research Even though CIPN is common, it has not been studied as much as […]
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Meet the researcher: 2023 CRTS recipient Dr. Erika Williams Erika Williams, MD, PhD, a neuromuscular fellow at Massachusetts General Brigham, was one of our first Clinical Research Training Scholarship recipients in 2023. Her research focused on the autonomic nervous system (ANS), a component of the peripheral nervous system. “The Foundation for Peripheral Neuropathy‘s Clinical Research Training Scholarship made this work possible,” Williams shared. “The transition to an independent research career is a particularly vulnerable […]
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Program Manager, Amanda Homscheid, recently sat down with Mark Vieth, our consultant who helps the Foundation for Peripheral Neuropathy advocate for neuropathy-related funding, such as the Peer Reviewed Medical Research Program (PRMRP), and connects us with important groups on Capitol Hill, like the National Institutes of Health (NIH). Mark has been working with the Foundation for Peripheral Neuropathy for over 6 years. In this interview, he reflects on the accomplishments and progress we have made and his hopes and goals for the future. Q. You’ve worked […]
The Foundation for Peripheral Neuropathy (FPN) is excited to share that the Brigham and Women’s Hospital has joined the IMAGiNe Study as a new research site. With help from FPN, they will take part in this international study about IgM anti-MAG peripheral neuropathy, a rare autoimmune form of PN. About the IMAGiNe Study The IMAGiNe Study (IgM Anti-Myelin-Associated Glycoprotein Neuropathy Study) is led by Maastricht University Medical Center in the Netherlands. The study is creating a […]
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Author Will Schwalbe shares an update on living with small fiber neuropathy, the power of friendship, and lessons learned along the way. In this conversation with our FPN Program Manager, he reflects on adaptation, support, and hope for those navigating life with neuropathy. Will’s original story was shared in 2020 where he shares an article […]
Veteran-focused Peer Reviewed Medical Research Program funding returned to 2024 funding level after 50% cut in 2025 After a huge cut in 2025, research funding for the Department of Defense’s Peer Reviewed Medical Research Program (PRMRP) is finally back to its earlier level: $370 million. This is great news for people living with peripheral neuropathy (PN), because each year we work hard […]
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As we start a new year, we are excited to look back at what the IMAGiNe study achieved in 2025. We are also looking ahead to our goals for 2026 and beyond. At the Foundation for Peripheral Neuropathy (FPN), we celebrate every milestone that helps move peripheral neuropathy research forward. About the IMAGiNe study The IMAGiNe study (IgM Anti-Myelin-Associated Glycoprotein Neuropathy Study) is led by Maastricht University Medical […]
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FPN Program Manager Amanda Homscheid catches up with longtime FPN supporter and donor Susan W., who has been living with peripheral neuropathy for over 15 years. Susan shares how her journey has evolved since first telling her story, what helps her manage symptoms and what gives her hope for the future of PN research. Thank […]