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July 2023 FPN had a successful meeting at the Peripheral Nerve Society in Copenhagen last month. Lindsay Colbert, Executive Director, met with countless existing and new experts in PN research and collaborated with other Patient Advocacy Groups in the field. More updates and research findings will be shared in our upcoming newsletters, so please keep …
June 2023 As we near the mid-year point, we continue to push through to advance our mission. A special thank you to everyone who helped make Peripheral Neuropathy Awareness Week a success! Please review our summary report of our awareness campaign and continue to help us share important information about this condition and our organization’s …
May 2023 Peripheral Neuropathy Awareness Week! This week, May 7-13, we’re celebrating Peripheral Neuropathy Awareness Week. Help us spread awareness – buy a shirt or tell us your story. There are many opportunities to get involved. 2022 Year In Review FPN’s 2022 Annual Report is now available. We’re so proud of our achievements and look …
April 2023 April showers bring… FPN news! We are gearing up for PN Awareness Week and hope that you will help us spread the word over the next month – and every day thereafter. In addition to our awareness campaign, we are continuously doing better by offering “more.” Thank you so much for being an …
March 2023 Spring is in the Air! For many, spring signifies new beginnings and hope, and that is something that we hope each of you will carry with you every day. Because there is hope – new research is always underway, new therapies are being tested, and through our advocacy and awareness campaigns, more attention …
February 2023 Clinical Research Training Scholarships (CRTS) Awarded Paula Barreras, MD, neuroimmunology fellow at Johns Hopkins Hospital and Erika Williams, MD, PhD, neuromuscular fellow at Massachusetts General Brigham are receiving the inaugural Clinical Research Training Scholarships (CRTS) in peripheral neuropathy. Through these awards, FPN is providing $300,000 in PN research funding. Read about their important …
January 2023 FPN Funds $90,000 for Anti-MAG Research Through the generosity of our donors, we’re able to support the IMAGiNe study with a $150,000 research grant to fund new patient enrollment. $90,000 of these funds, spent in December 2022, resulted in over 150 new patients enrolling in the study for this rare form of PN. Read more. …
December 2022 Understanding the Connection Between Polyneuropathy and hATTR Amyloidosis In October, FPN and Alnylam Pharmaceuticals hosted an educational webinar about hereditary ATTR (hATTR) amyloidosis and its connection with polyneuropathy. Check out the program summary for more information and additional resources by clicking below. Click here. Neurologic Health & Environmental Factors A recent study from …
November 2022 Hereditary Neuropathy & Genetic Testing: Q&A Last month, FPN welcomed Sami Khella, MD, of Penn Presbyterian Medical Center, and Shawna Feely, MS, LGC, of the University of Iowa Hospitals and Clinics, for a program on hereditary neuropathies and the benefits of genetic testing. During this one-hour webinar, our experts addressed the problems of …
October 2022 FPN Welcomes Sandra Rieger, PhD We are pleased to announce the addition of Sandra Rieger, PhD, to the Foundation’s Scientific Advisory Board. Rieger joins an esteemed group of scientific experts in the field of peripheral neuropathy and will be charged with advancing our mission of accelerating treatments and cures. Read Rieger’s biography here. …
