On July 9, 2018, the Federal Drug Administration (FDA) held a public forum focusing on the patient’s perspective on drug development for chronic pain. The FDA invited members of the public, including the Foundation for Peripheral Neuropathy’s (FPN) President, Lou Mazawey, to attend to give their perspectives on living with chronic pain and treatment approaches […]
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Blocking the Pathway of Neuropathy Pain An international collaboration between Indiana University in Bloomington and the Turku Center for Biotechnology in Finland made early inroads into a new approach to reducing neuropathy pain. The researchers identified the correlation between the formation of a certain protein in the cell (NOS1AP) and the transmission of neurological pain. […]
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Small study offers hope to patients with small fiber neuropathy Many patients diagnosed with small fiber neuropathy, one of the many forms of peripheral neuropathy, ask their physicians about their prognosis. Physicians are usually not sure how to answer, since there is not a lot of research to back whether the condition will improve or […]
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The Foundation for Peripheral Neuropathy is pleased to announce the addition of A. Gordon Smith, MD, FAAN to the Board of Directors, effective March 1, 2018. Dr. Smith is Professor and Chair of the Department of Neurology at Virginia Commonwealth University. Prior to this role, he served as Vice Chair for Research, Chief of the […]
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What do zebrafish have to do with peripheral neuropathy research? In September 2017, we reported that Dr. Sandra Rieger had received a National Institutes of Health (NIH) research grant to continue her study of nerve regeneration and peripheral neuropathy. (See MDI Biological Laboratory Scientist Receives Grant to Study Peripheral Neuropathy.) In this study, she noticed […]
Data from the Peripheral Neuropathy Research Registry (PNRR) helps scientists examine the relevance of mutations in sodium channels, yielding a new discovery in peripheral neuropathy research. In 2012, the Foundation for Peripheral Neuropathy (FPN) initiated and funded the Peripheral Neuropathy Research Registry (PNRR) to advance research in acquired axonal peripheral neuropathies, which affects millions of Americans. […]
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An Update from the President November 7, 2017 As President of the Foundation for Peripheral Neuropathy, I can’t wait to share several exciting recent developments with all of you. First, our patient conference on October 21 was a great success. Featuring five speakers from the fine medical faculty at Northwestern University, more than 200 attendees […]
Falls are the most common cause of injury in elderly adults (age 65 and older). As many as one third of elderly adults fall each year and the risk of falling triples if you have a neurologic disorder like peripheral neuropathy. Twenty to thirty percent of older people who fall, suffer moderate to severe injuries, […]
Prescription of foot and ankle orthoses for children with Charcot-Marie-Tooth disease: a review of the evidence Grant Scheffers, Claire Hiller, Kathryn Refshauge, Joshua Burns Background: Charcot-Marie-Tooth disease (CMT) is the most common inherited peripheral neuropathy and is associated with debilitating lower limb impairments and activity limitations. These impairments and activity limitations are potentially amendable to […]
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NIH Award Will Support Research by Sandra Rieger, Ph.D., on Nerve Damage Induced by Cancer Chemotherapy BAR HARBOR, MAINE — The MDI Biological Laboratory has announced that Sandra Rieger, Ph.D., has been awarded a highly competitive grant from the National Cancer Institute, an institute of the National Institutes of Health (NIH), to study the molecular […]
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