My PN Story My journey with PN began in 2019 with the onset of burning pain in my toes and fingers that quickly spread up my legs and arms. Within a few weeks I couldn’t walk without assistance. Even the slightest touch felt as if I were being shocked. My health declined rapidly. I no […]
MICHAEL WRIGHT has had neuropathy for about six years. Living in Charlotte, NC, with a supportive family, Michael has not let his neuropathy get the best of him. He has become a true activist, helping other patients with peripheral neuropathy and finding ways to bring attention to peripheral neuropathy and raising money for research. Michael founded the support […]
Read More… from Michael’s Story: Let Your Birthday Help Us All!
Helping Others, Help Yourself! Help for PN: My issues started probably 5-6 years ago. We we know, PN is very hard to diagnose. With that being said, I was treated for carpal tunnel, they switched my cholesterol meds, and I said lots of prayers as we didn’t know what was going on! After a nerve […]
Diva’s Story: The Beginning Diva’s Story: To ring in the New Year four years ago, I fell off a horse. With all my other injuries, it took me a few days to notice that my left toe had gone just a little bit numb. “So you can’t feel your toe?” “Not really, it’s more like […]
PN patient and ex-baseball player Donn Seidholz is a great storyteller – and he has great stories to tell. Donn shared stories about his time as a minor league baseball player, about his life-long devotion to athletics and fitness, his quest for answers about his peripheral neuropathy, and most, recently, his bout with COVID-19. We […]
On September 9 2020, the Foundation for Peripheral Neuropathy (FPN) published the story of Mike McDonough. Mike set a goal for himself to ride 341 miles from Kaysville to St. George, Utah, to raise money and awareness for peripheral neuropathy. The money raised would go to purchasing eBikes for donation, with the remainder of the funds donated to FPN. […]
Read More… from Mike McDonough’s Story: Pedal Through the Pain Update!
Ron Lissak, FPN Board member, was interviewed by Brain & Life magazine for their most recent issue (June/July 2020) on his experience with COVID-19 and peripheral neuropathy. Here is the article as it appeared in Brain & Life June/July, 2020 About 11 years ago, I was diagnosed with peripheral neuropathy. As a result, I have […]
Read More… from COVID-19 Worsened Ron Lissak’s Neuropathy, but Strengthened his Family
For over 13 years, I have had nine neurologists evaluate and retake my medical history. Whenever diagnosis is elusive, having a medical history retaken by different doctors is not a bad idea. After all, a fresh set of eyes may uncover important information (1). Over those 13 years, I have had four different diagnoses, so […]