Introduction to Anti-MAG Neuropathy Anti-MAG neuropathy refers to a rare auto-immune associated cause of peripheral neuropathy (PN). In this case, the person’s own immune system (specifically, the IgM monoclonal antibodies) attack nerve cells required for a healthy peripheral nervous system – resulting in a slowly progressive and debilitating condition. Patients often experience loss of mobility, […]
Read More… from TREATING ANTI-MAG PN – A LOOK BACK AND WHAT MAY BE COMING
Importance of Peripheral Neuropathy: Since 2019, the Foundation for Peripheral Neuropathy has been actively engaged in a campaign to increase federal funding for peripheral neuropathy research. We had an extraordinary breakthrough in fiscal year 2021, when Congress included “peripheral neuropathy” as an eligible condition for research funding from the Department of Defense’s Peer Reviewed Medical Research […]
Read More… from Importance of Peripheral Neuropathy Recognized in Appropriations Act
On July 27, 2023, the Senate Committee on Appropriations approved by a large bipartisan vote the Senate version of the fiscal year 2024 Defense Appropriations Act. As it has in the three previous years (FY21-23), the Committee included “peripheral neuropathy” as an eligible condition for receiving research grants from the Department of Defense’s Peer Reviewed Medical […]
FPN had a successful meeting at the Peripheral Nerve Society in Copenhagen last month. Lindsay Colbert, Executive Director, met with countless existing and new experts in PN research and collaborated with other Patient Advocacy Groups in the field. More updates and research findings will be shared in our upcoming newsletters, so please keep opening our […]
April showers bring… FPN news! We are gearing up for PN Awareness Week and hope that you will help us spread the word over the next month – and every day thereafter. In addition to our awareness campaign, we are continuously doing better by offering “more.” Thank you so much for being an active reader. […]
The Foundation for Peripheral Neuropathy and the Department of Defense Peer-Reviewed Medical Research Program Co-Host March 8, 2023, Webinar About Award Pre-Applications CHICAGO, Feb. 28, 2023 /PRNewswire/ — For the third consecutive year, peripheral neuropathy (PN) has been renewed for research funding by the Department of Defense (DoD) Peer Reviewed Medical Research Program (PRMRP)’s $370 million fund. In advance of pre-application deadlines, the Foundation for Peripheral Neuropathy (FPN) […]
What It Is In response to the tireless advocacy and outreach from the peripheral neuropathy (PN) community, Congress designated peripheral neuropathy as a condition in the Peer Reviewed Medical Research Program (PRMRP) in the annual Defense Appropriations Act during fiscal years 2021 through 2023. During that time, the Department of Defense funded more than $13 million in […]
Read More… from Call to Action 2023 – Peer Reviewed Medical Research Program!
Paula Barreras, MD, neuroimmunology fellow at Johns Hopkins Hospital and Erika Williams, MD, PhD, neuromuscular fellow at Massachusetts General Brigham are receiving the inaugural Clinical Research Training Scholarships (CRTS). Through these awards, FPN is providing $300,000 in peripheral neuropathy (PN) research funding. Identifying Biomarkers and Pathogenic Mechanisms in Sarcoidosis-Associated Small Fiber Neuropathy Barreras will study […]
Read More… from Inaugural Clinical Research Training Scholarship Recipients Announced
In 2020, the peripheral neuropathy (PN) research community achieved a huge breakthrough. For the first time, Congress included “peripheral neuropathy” as an eligible condition for study in the Department of Defense’s (DoD) Peer Reviewed Medical Research Program (PRMRP). This secured more than $8 million in grants for peripheral neuropathy research in fiscal year 2021. Our […]