In November 2023, a new discovery was made about neuropathic pain in patients suffering from idiopathic peripheral neuropathy. Using data from the Peripheral Neuropathy Research Registry (PNRR), the Foundation for Peripheral Neuropathy’s research consortium completed an important analysis that led to an important discovery. This research is now published in a renowned research journal. Plasma […]
Through the generosity of our donors, the Foundation for Peripheral Neuropathy (FPN) was able to support the IMAGiNe study with a $165,000 research grant to fund new patient enrollment for anti-MAG neuropathy. $90,000 of these funds were spent in 2022, which resulted in over 150 new patients enrolling in the study. In 2023, an additional $24,750 was spent, […]
Read More… from FPN Funds IMAGiNe Study for anti-MAG Research
Happy New Year! For many, this is a time to reflect on successes from the past year and set intentions for the year ahead. At the Foundation, it’s no different. Our leadership is working on strategic planning, so we can be a stronger organization moving forward. No matter where you are in your PN journey, we […]
Happiest of holidays to you and yours from the Foundation for Peripheral Neuropathy. We are so grateful for your continued support in our organization, whether you already made your gift to our year end campaign, told someone about us on Giving Tuesday or recently received your PN swag. Thank you and stay safe, cozy and healthy during this season! […]
November is National Diabetes Awareness Month, a time when communities across the USA seek to bring attention to diabetes – the leading cause of peripheral neuropathy. This year’s focus from the National Institutes of Health is on taking action to prevent diabetes health problems. Check out some resources here and take control of your health. […]
Introduction to Anti-MAG Neuropathy Anti-MAG neuropathy refers to a rare auto-immune associated cause of peripheral neuropathy (PN). In this case, the person’s own immune system (specifically, the IgM monoclonal antibodies) attack nerve cells required for a healthy peripheral nervous system – resulting in a slowly progressive and debilitating condition. Patients often experience loss of mobility, […]
Read More… from TREATING ANTI-MAG PN – A LOOK BACK AND WHAT MAY BE COMING
Importance of Peripheral Neuropathy: Since 2019, the Foundation for Peripheral Neuropathy has been actively engaged in a campaign to increase federal funding for peripheral neuropathy research. We had an extraordinary breakthrough in fiscal year 2021, when Congress included “peripheral neuropathy” as an eligible condition for research funding from the Department of Defense’s Peer Reviewed Medical Research […]
Read More… from Importance of Peripheral Neuropathy Recognized in Appropriations Act
On July 27, 2023, the Senate Committee on Appropriations approved by a large bipartisan vote the Senate version of the fiscal year 2024 Defense Appropriations Act. As it has in the three previous years (FY21-23), the Committee included “peripheral neuropathy” as an eligible condition for receiving research grants from the Department of Defense’s Peer Reviewed Medical […]
FPN had a successful meeting at the Peripheral Nerve Society in Copenhagen last month. Lindsay Colbert, Executive Director, met with countless existing and new experts in PN research and collaborated with other Patient Advocacy Groups in the field. More updates and research findings will be shared in our upcoming newsletters, so please keep opening our […]
April showers bring… FPN news! We are gearing up for PN Awareness Week and hope that you will help us spread the word over the next month – and every day thereafter. In addition to our awareness campaign, we are continuously doing better by offering “more.” Thank you so much for being an active reader. […]