eNews April 2023

E-news

April showers bring… FPN news! We are gearing up for PN Awareness Week and hope that you will help us spread the word over the next month – and every day thereafter. In addition to our awareness campaign, we are continuously doing better by offering “more.” Thank you so much for being an active reader. […]

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Have you been diagnosed with CIDP? A clinical research study (ARISE) is now enrolling to evaluate an investigational medication.

Janssen Arise

Chronic inflammatory demyelinating polyneuropathy (CIDP) is a rare disease where the body’s natural defenses, like antibodies, attack the covering of the nerves, called myelin, and damage nerve function. While symptoms aren’t the same for everyone, CIDP can make your arms and legs feel weak and slow your movements. The purpose of the ARISE Study is […]

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PERIPHERAL NEUROPATHY RESEARCHERS INVITED TO PRE-APPLY FOR RESEARCH GRANTS FROM DoD PEER REVIEWED MEDICAL RESEARCH PROGRAM

Advocacy works.

The Foundation for Peripheral Neuropathy and the Department of Defense Peer-Reviewed Medical Research Program Co-Host March 8, 2023, Webinar About Award Pre-Applications CHICAGO, Feb. 28, 2023 /PRNewswire/ — For the third consecutive year, peripheral neuropathy (PN) has been renewed for research funding by the Department of Defense (DoD) Peer Reviewed Medical Research Program (PRMRP)’s $370 million fund. In advance of pre-application deadlines, the Foundation for Peripheral Neuropathy (FPN) […]

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Call to Action 2023 – Peer Reviewed Medical Research Program!

Working at a laptop.

What It Is In response to the tireless advocacy and outreach from the peripheral neuropathy (PN) community, Congress designated peripheral neuropathy as a condition in the Peer Reviewed Medical Research Program (PRMRP) in the annual Defense Appropriations Act during fiscal years 2021 through 2023. During that time, the Department of Defense funded more than $13 million in […]

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Idiopathic Neuropathy: Q&A

Q & A

Sometimes peripheral neuropathy seems to happen for no particular reason. Doctors call this disorder “idiopathic,” which means “of unknown cause.” Q&A with Norman Latov, MD, PhD On February 22, 2023, the Foundation for Peripheral Neuropathy (FPN) welcomed Norman Latov, MD, PhD, from Weill Cornell Medical College, to present on idiopathic neuropathy (IPN). During this 60-minute […]

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Book Fundraiser to Benefit FPN: Order by Feb. 21

We Should Not Be Friends book cover

Best-selling author of “The End of Your Life Book Club” and FPN friend, Will Schwalbe, has written a new book, “We Should Not Be Friends.” Chronicling a forty-year improbable, life-changing friendship, this warm, funny, irresistible book also explores Schwalbe’s experience with small fiber neuropathy. “We Should Not Be Friends is as funny, warm, brutally honest […]

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Inaugural Clinical Research Training Scholarship Recipients Announced

CRTS Award winners.

Paula Barreras, MD, neuroimmunology fellow at Johns Hopkins Hospital and Erika Williams, MD, PhD, neuromuscular fellow at Massachusetts General Brigham are receiving the inaugural Clinical Research Training Scholarships (CRTS). Through these awards, FPN is providing $300,000 in peripheral neuropathy (PN) research funding. Identifying Biomarkers and Pathogenic Mechanisms in Sarcoidosis-Associated Small Fiber Neuropathy Barreras will study […]

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