Ron Lissak joined FPN’s Board of Directors on May 15, 2020, bringing valuable expertise as a businessman, board member of other nonprofits, and PN patient. Ron currently resides in Bondville, VT, and is Vice President, National Marketing and Site Development for Ionetix Corporation, the leading supplier of 13 Ammonia for cardiac PET scanning. He has …
Do you have numbness and tingling or pain in your feet from diabetes? Do you have pain after shingles (postherpetic pain)? The Translational Pain Research Group at the Brigham and Women’s Hospital in Boston, Massachusetts, is seeking volunteers who have diabetic nerve pain or pain following shingles to participate in a research study. Volunteers who …
Edward from the UK shares his PN journey with us: The train is here, and I’m already late for my first internship. Better sprint the short 50 m distance between my front door and the train station – as I am quickly becoming a master at. It’s been raining, in typical British fashion. August monsoon …
Faces of PN: Living with Multifocal Motor Neuropathy Read More »
For most of the past two months, Congress – like most of the country – has been in lockdown and working remotely to respond to the COVID-19 pandemic. This has presented organizations like the Foundation for Peripheral Neuropathy with significant challenges in executing our grassroots advocacy strategies, particularly for any objectives related to the fiscal …
Following our latest Ask the Expert session, the Foundation for Peripheral Neuropathy‘s Executive Director, Lindsay Colbert, asked its Scientific Advisory Board Chairman, Dr. Ahmet Höke MD, PhD, additional questions which came directly from the Foundation’s patients. We are continually learning about COVID-19 and its impact on peripheral neuropathy patients. We hope that you find the …
Ask The Expert, Part 2: Peripheral Neuropathy and COVID-19 Read More »
Raise Awareness for Peripheral Neuropathy Awareness Week We need to come together to raise #PeripheralNeuropathyAwareness during Peripheral Neuropathy Awareness Week (May 4-10, 2020) and beyond! An estimated 30 million people in the United States alone experience symptoms of peripheral neuropathy, and even more people worldwide. And yet, it is still a secret disease: no one …
We need you for #PeripheralNeuropathyAwareness 2020! Read More »
Earlier this week, the Foundation for Peripheral Neuropathy‘s Executive Director, Lindsay Colbert, sat down with its Scientific Advisory Board Chairman, Dr. Ahmet Höke, MD, PhD, to learn more about COVID-19 and its impact on peripheral neuropathy patients. We confirmed that people with peripheral neuropathy are not at an increased risk of being infected with COVID-19, …
Ask The Expert: Peripheral Neuropathy and COVID-19 Read More »
Susan from Oregon shares her PN story with us: Dear Friends and FPN Family, I first became acquainted with neuropathy when my late husband was diagnosed about 10 years ago. Much to my regret, I never took the time to learn about this progressive disease. Quite possibly I might have recognized my own symptoms of …
The Foundation for Peripheral Neuropathy shares some helpful tax tips under the CARES Act. On March 27, 2020, President Trump signed into law the Coronavirus Aid, Relief, and Economic Security Act (Pub. L No. 116-136, the “CARES Act” or “the Act”). The Act is the largest economic stimulus bill in American history. The CARES Act …
RxFunction’s walk2wellness study has added Johns Hopkins in Baltimore Maryland as its fifth site for its ongoing clinical trial of its Walkasins Lower Limb Sensory Neuroprosthesis. The study is designed to assess Walkasins’ use on peripheral neuropathy patients at high-fall risk. Patients may now enroll at Johns Hopkins in Baltimore, as well as other study …
RxFunction’s walk2Wellness Study Adds a New Site Read More »
