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Understanding the Connection Between Polyneuropathy and hATTR Amyloidosis

“I have to be my own advocate, and you should be too,” said Christine, living with hereditary ATTR (hATTR) amyloidosis. “Once you know something, you can deal with it head-on. It’s the ‘not knowing’ that’s the most frustrating. Knowledge is power!” Christine shared her inspiring story about being diagnosed with and living with hATTR amyloidosis …

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The Global Burden of Polyneuropathy

2 Comments / News, Research / By Foundation for PN

The Foundation for Peripheral Neuropathy’s (FPN) Executive Director Lindsay Colbert was in attendance for a presentation by Melissa Elafros, MD, PhD, of the University of Michigan; Michelle Kvalsund, DO, MS, of the University of Zambia; and Brian Callahan MD, MS, of the University of Michigan at the Peripheral Nerve Society Annual Meeting in Miami. FPN …

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AAN’s New Painful Diabetic Polyneuropathy Guidelines

Leave a Comment / Diabetic Peripheral Neuropathy, News, Research / By Lindsay Colbert

A study entitled “Oral and Topical Treatment of Painful Diabetic Polyneuropathy: Practice Guideline Update Summary” was published on December 29, 2021, in the journal Neurology®. The Foundation for Peripheral Neuropathy (FPN) is pleased to announce that Lindsay Colbert, Executive Director, was among the few esteemed authors on the subcommittee for this important review and update. …

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Chronic Inflammatory Demyelinating Polyneuropathy

[printfriendly] Chronic inflammatory demyelinating polyneuropathy (CIDP) is a neurological disorder characterized by slowly progressive weakness and a loss of sensation in the legs and arms. CIDP is more common in young adults, and it affects men more than women. Symptoms include tingling or numbness (beginning in the toes and fingers); weakness of the arms and …

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Tibial Nerve Decompression Failed to Improve Painful Diabetic Polyneuropathy

Diabetic Peripheral Neuropathy, News, Research / By Foundation for PN

It has been hypothesized that the development of diabetic polyneuropathy (DPN) is due to swelling of the nerve, as well as thickening and stiffening of the surrounding ligaments, causing chronic compression of nerves. Researchers examined the effect of surgical decompression of the tibial nerve on the mean cross sectional area (CSA). Results indicated there was …

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eNews February 2024

February 2024 February is dedicated to MMN (Multifocal Motor Neuropathy) Awareness and Rare Disease Day on February 29 – yes, it’s a Leap Year! We invite you to help us spread awareness of these important initiatives, get connected to educational opportunities, and read more about all the great research we’re funding. All this and more …

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New PN Biobank Research Discovery!

Leave a Comment / Idiopathic Neuropathy, News, PNRR, Research / By [email protected]

In November 2023, a new discovery was made about neuropathic pain in patients suffering from idiopathic peripheral neuropathy. Using data from the Peripheral Neuropathy Research Registry (PNRR), the Foundation for Peripheral Neuropathy’s research consortium completed an important analysis that led to an important discovery. This research is now published in a renowned research journal. Plasma …

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eNews December 2023

December 2023 Happiest of holidays to you and yours from the Foundation for Peripheral Neuropathy. We are so grateful for your continued support in our organization, whether you already made your gift to our year end campaign, told someone about us on Giving Tuesday or recently received your PN swag. Thank you and stay safe, …

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Webinar: CIDP, From Soup to Nuts, with Sami Khella, MD

Dr. Khella will discuss different ways a patient should manage the condition, from when a patient seeks diagnosis to possible treatment options. The program will also highlight how CIDP varies from other forms of neuropathies. There will be a Q & A with Dr. Khella following the presentation. Dr. Khella has more than 20 years …

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eNews August 2023

August 2023 August is sure to be a HOT month – and we’re not just talking about the temperature outside! After the recent wins in our advocacy work and an exciting matching gift campaign that launched this month, the Foundation for Peripheral Neuropathy continues its third quarter of the year with promise and excitement. Thank …

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