News

Michael’s Story: Let Your Birthday Help Us All!

MICHAEL WRIGHT has had neuropathy for about six years. Living in Charlotte, NC, with a supportive family, Michael has not let his neuropathy get the best of him. He has become a true activist, helping other patients with peripheral neuropathy and finding ways to bring attention to peripheral neuropathy and raising money for research. Michael founded the group, …

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Vitamins and Supplements for Nerve Health

Our friends at LivOn Labs, producer of vitamins and supplements, share information on supplements for nerve health with us. LivOn Labs is a supporter and partner of FPN. FPN recommends consulting with your health care provider before adding any supplements to your medical regime. Stop us if this sounds familiar. You read an article claiming …

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Terry’s Story: Local Support Group Offers Help

On Friday the 13th of March 2020, when the world stopped for COVID-19, I finally got an answer from my neurologist about the burning pain in my feet and, sometimes, hands. I had a “nickel’s worth of neuropathy” he stated. I remember thinking, “Oh my goodness, if this is only a nickel’s worth what might a …

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Support Group Primer: Update July 2021

In our blogpost. How to Get Support Without Leaving Home published in July 2020, we provided a summary of virtual support groups and social media sites for patients with PN. Here, we update our list, with some new additions and modifications. We hope that anyone struggling to find the support of others who understand the challenges of living with …

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Research Study Back on Track!

Following over a year’s delay due to the COVID-19 pandemic, the IMAGiNe Study is finally back on track! The IMAGiNe Study (Immunoglobulin M(IgM)-Anti-myelin-associated-glycoprotein (MAG) Peripheral Neuropathy Study) is a research program that aims to create a standardized database and biobank to be used for the research and analysis of Anti-MAG peripheral neuropathy. The goal is to be able to …

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jen

Jen’s Story: Raising Awareness for PN Brings People Together

When Jen set out to raise awareness for PN, she did more than she expected. Her outreach helped others and brought people together. Jen shares her story here. Jen’s Story I never thought neuropathy would be part of my story. Prior to my diagnosis, I was a healthy 39-year-old writer, health coach, and personal trainer. …

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someone you know has peripheral neuropathy, 30 million americans do

Join Us for #PeripheralNeuropathyAwareness Week 2021!

Raise Awareness for Peripheral Neuropathy With 30 million people in the US alone with peripheral neuropathy, it is a wonder that more people are not aware of the condition. We need your help to raise awareness for peripheral neuropathy – and the need for more research to find new treatments and someday a cure. Let’s …

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Tell Us Your Story for Peripheral Neuropathy Awareness 2021!

Tell Us Your Story! With more than 30 million patients in the US alone suffering from peripheral neuropathy, more people should know about the disease – and there should be more efforts toward finding treatments and a cure. We want to hear YOUR story, what YOU wish people knew about peripheral neuropathy. Here’s how you …

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